Search found 23 matches

by Miia
Sat Jun 25, 2016 11:23 pm
Forum: Daily Life
Topic: I made a movie with other MS people
Replies: 2
Views: 2295

Re: I made a movie with other MS people

Forgot to tell you I'm an amateur. You might see it. :) The story is the most important thing here.
by Miia
Fri Jun 24, 2016 1:13 am
Forum: Daily Life
Topic: I made a movie with other MS people
Replies: 2
Views: 2295

I made a movie with other MS people

I wanted to show people MS does not have to stop you living. You can still live and do things even though you're retired or sitting in wheelchair like I am.

The shortmovie is non-profit, free and bilingual, Finnish and English.

Enjoy!

Field on Possibilities

BR,
Miia Luhtalampi
by Miia
Thu Jun 30, 2011 10:40 am
Forum: General Discussion
Topic: MRI after cortison?
Replies: 0
Views: 995

MRI after cortison?

Please, could someone help me quikly. I am so confused and so do the doctors I think. Does anyone of you know, how long time you have to wait after cortison (1 g 3 days) to get an MRI? I've heard under 7 weeks is not enough and you should wait 2-3 months. I mentioned under 7 because I could be havin...
by Miia
Sat Jan 15, 2011 2:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Euromedic Poland and the Azygous vein - please help!
Replies: 17
Views: 4491

I'm gettin really pissed off! I'm also a patient of Euromedic and when I was going there the first time in May 2010, I was 85 % sure, there MUST be something wrong with my azygous because of my symptoms. But they found a stenosis only in my right IJV and it was ballooned. I trusted them so much that...
by Miia
Thu Aug 19, 2010 11:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 193065

Thanks, Perso, that makes sense what comes to destroyed valves. I've got another question. I woke up this morning again very tired, after well slept night and it crossed my mind weather it has something to do with this that my blood pressure is comparably low (70/100). What if the blood flows very w...
by Miia
Wed Aug 18, 2010 11:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 193065

Hi, I've started IBT again 2 weeks ago. First week with 2 inches and now second week 4 inches. I think I sleep very well but is it normal to feel very tired in the morning and during the day? I've allready been liberated, so at least on my right IJV there shouldn't be reflux, so do you have an opini...
by Miia
Fri Jul 16, 2010 2:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Youtube pre and post procedure / testimonial videos
Replies: 212
Views: 117261

L wrote:MilenaFi in a short film, before and after. They are alphabetical so she is between mcbpj and omarxmc80 : )
Thank you for adding my movie here! You've added the one without music, I highly recommend this one:
http://www.youtube.com/watch?v=n87-16_PdMc :)
by Miia
Fri Jul 16, 2010 2:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Video of Dr Simka performing two ultrasound exams.
Replies: 6
Views: 1532

Kiitos, Interrupted! :D
by Miia
Wed Jul 14, 2010 9:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Video of Dr Simka performing two ultrasound exams.
Replies: 6
Views: 1532

I haven't been too active here.

BTW, Olive is also here. Olive is actually her TIMS name, not a real one.
by Miia
Wed Jul 14, 2010 5:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Video of Dr Simka performing two ultrasound exams.
Replies: 6
Views: 1532

Thanks L for posting our video here. :)
by Miia
Wed Jun 23, 2010 1:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 193065

Andrew, that's interesting. I tried IBT for 4 nights and my feet became numb and of course also my balance was very poor. Does this mean that I have so much bad things in my body that those flowed to my legs and feet and my bladder couldn't deal with all of it? Do you know if it's normal to feel lik...
by Miia
Sun Jun 13, 2010 6:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relaps 3 weeks after ccsvi operation, and NO restenosis
Replies: 28
Views: 5358

Sofia, I'm also happy for you. Nice to hear it wasn't restenosis.
I hope I've got only stress causing me numb feet and hands and not restenosis. I just have to relax now.
by Miia
Sun Jun 13, 2010 12:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relaps 3 weeks after ccsvi operation, and NO restenosis
Replies: 28
Views: 5358

Hi everybody, I'm another liberated patient who stresses a lot because of relapses. I had my ballooning in Katowice May 12th and I felt great after it. Then I had sinusitis and fever and I almost lost my walking. I felt a few days well after the infection and again I feel that my both hands and feet...
by Miia
Thu Jun 10, 2010 9:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DR. SIMKA reply about re-stenosis
Replies: 77
Views: 18088

5. Many patients who suffered from transient worsening of symptoms, improved after inclined bed therapy. You can try it, even if not efficient, at least it is 100% safe So Simka now, as well as Dr Sclafani, see the benefit of Inclined Bed Therapy-- I think it would be a smart move for everyone to a...
by Miia
Sat May 22, 2010 8:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 6659

Thank you all. I try to get healthy of this infection,after that I can say more. I still haven't any problems in cognitive functions. That's a good sign I think. Pre op I had a bad brain fog and fatique. I'm definitely going back for check up. In 3-6 months I think. If my condition is getting worse,...