This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Everyone, My son who was 23 yrs of age started having the mitoxantrone. he had 3 doses over 3 months. and 4 dos every three months. 7 in total over 15 months. (12 mg) He seemed to handle it pretty well with not much side effects. He took the nause a tablets as advised by the neuro. I just want to...

Hi Everyone, Today my son has had another venogram. The veins had remained opened and there was no narrowing found. Blood flowing was good. No ballooning was required. It is confusing= as the last doppler test showed stenosis in both jugular veins. MRV also showed slight narrowing as well. So the be...

Great work Everyone! Just to let you all know Saw Prof T today. My sons veins have restenosed again according to the doppler test done by Julie. He originally did notice very little improvements for a frew days and that was it. Seeing he noticed some slight improvements it is worth having an MRV to ...

Hi Everyone, Just to let you all know my son has had another test with Julie and the results were pretty much the same as when we had the first test. Stenosis of more than 50% in both jugular veins. It is perhaps the reason why he has not had much improvement. WE shall see prof T next week to see wh...

Hi All, It has been 41 days since my sons procedure with prof T. Not much to say in terms of improvements as he has not noticed anything major. Perhaps slight bladder improvement. Having a doppler test done with Julie next week. Will keep you guys posted of the results. Perhaps it takes some time fo...

Hi Guys, These numbers are great! I hope more people are training as INt radiologists it sounds like they will be very much in demand now and in the future. I think it is also important to tell people about ccsvi. a lot of people that I talk to have not heard about ccsvi. When I tell them they are i...

Hi Everyone, Just like to let you all know my sons procedure today went really well. Proffessor T and his whole team assisting were all great. He was so tired that he needed to go straight to bed. It was a long day for him he was up from 5am till 5.30 pm when we arrived home . We managed to meet wit...

My son is very sensitive to noise as well It must be one of the symptoms of having MS.
When I am talking normal he thinks that I am shouting.

Hi to All, Hope everyone is doing well after their procedures. Kerry thankyou for posting that is very good news. I am so happy for you and for all the others that are experiencing some good changes. My son is going in tomorrrow hope all goes well and i will keep you posted. How is everyones walking...

Hi to All, Nico great to hear that you are doing well. Really happy for all that are having some great improvements. :D My Son had an MRi/MRV and the report shows no vein abnormality. & yet the doppler test showed more than 50% stenosis. Why is it that it did not show up on the MRV would anyone ...

Thanks for all the updates guys. :D Adolfo & Kerry Please keep posting your great results will give us mor hope . My son is having his venogram this coming Wed as well. Cannot wait to see some improvements for him as well. I shall keep you updated on his results as well. Just hope all goes well ...

Hi to all, Kerry thanks for the updated video you look great and you sound so positive. Thanks to all who are posting their improvements it is very encouraging to read the good results. Everyday everytime I get a moment I log on to read up on your improvements. My son is booked to have procedure on ...

That is great to hear Kerri that all went well for you.
Hope you have some major improvements to share with us in the coming days. Cannot wait for the video. It would be great to see.
Wish you a speedy recovery.

Very Happy for you I hope you have some great improvements please keep us posted . I have been checking every few minutes to see your update . Well Done . Dr sounds great cannot wait to meet him
Please keep us posted regularly with all your results from procedure
Good luck Adolfo!