Search found 412 matches

by fogdweller
Thu Feb 02, 2012 6:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: have most been treated?
Replies: 24
Views: 2612

Re: have most been treated?

I think another reason TIMS is quieter is that there is now a very active Facebook page that many of us follow in lieu of or in addition to the TIMS site. And some of the research we clamoured for is being done, and we are patiently awaiting results.
by fogdweller
Wed Aug 10, 2011 3:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no CCSVI in Israeli study
Replies: 17
Views: 2491

Re: no CCSVI in Israeli study

J Neurol Sci. 2011 Aug 3. [Epub ahead of print] Extra-cranial venous flow in patients with multiple sclerosis. Auriel E, Karni A, Bornstein NM, Nissel T, Gadoth A, Hallevi H.SourceStroke Unit, Department of Neurology, Tel Aviv Sourasky Medical Center, Sackler Faculty of Medicine, Tel Aviv Universit...
by fogdweller
Thu Jul 21, 2011 3:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta's clinical trial prelim. results announced-
Replies: 33
Views: 4839

So then maybe the differences in MS are because of the different ways the body can respond to CCSVI and the severity of the CCSVI. I also add the length of time with the disease. In my case it was very very slow in progessing, but I have had it for over 35 years. I think that the likelihood that da...
by fogdweller
Wed Jul 20, 2011 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta's clinical trial prelim. results announced-
Replies: 33
Views: 4839

Re: Dr. Mehta's clinical trial prelim. results announced-

Improvements occurred in each of the MS types, except in primary progressive MS," Dr. Mehta said. I have had angiplasty for my CCSVI, I have PPMS, and unfortunately this has been my experience. I have apparently restenosed somewhat, but the doctor who did my follow-up suggested that since I had not...
by fogdweller
Thu Jul 14, 2011 10:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567370

Seriously, one should look at the cerebrospinal venous circuit as continuous. it seems to me that adding considerable blood from the renal veins into this pool is part of the equation. What disease or disorder are INRs treating when the stent the dural sinus? It would be interesting to tie that int...
by fogdweller
Thu Jul 14, 2011 10:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 116486

Cece wrote:We have left Brooklyn behind and are now in the Times Square hotel, ready for the symposium patient day tomorrow!
Please start a separate thread dedicated to that. You probably were going to anyway. I sure will look forward to it!
by fogdweller
Sun Jul 03, 2011 9:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Autoimmune The Real Hoax: Dr. Hubbard
Replies: 14
Views: 2223

There have been decades of research on the autoimmune theory and, while not coming up entirely empty, I'd say it's come up next-to-empty. I have very little use with the pure autoimmunity theory. There have been, as Dr. H allegedly said, billions spent and almost nothing of concrete value proven ab...
by fogdweller
Fri Jul 01, 2011 11:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 37097

Cece wrote:There was a time when I mixed up CCSVI and CCVSI but that was seriously a year and a half ago. Beginners. :D
Sounds like a TV show. CCVSI: Miami
by fogdweller
Thu Jun 30, 2011 3:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 37097

I think it depends on how long you have sedation and what type. Also how long your procedure is. My daughter's was long 3.5 hours. Her IR struggled with her difficult Azygos. So indeed she slept for a while in the recovery area. She had "conscious sedation" I think versed and fentanyl. Good point. ...
by fogdweller
Thu Jun 30, 2011 2:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 37097

point is closed. Mine took a couple of hours to stop oozing and I couldn't do anything but lay flat and wait. Yeah. I did not have any anti-coagulant therapy at all, not even baby aspirin, so bleeding was not a problem. I imagine most people had a a bit more of an issue with that. Still, it sounds ...
by fogdweller
Thu Jun 30, 2011 12:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 37097

"UPDATE- Montel is out of surgery, it went extremely well. He is out of recovery and sleeping. Montel wants everyone to know how much he appreciates your thoughts and prayers. He will updating you tomorrow." from his facebook page... Out of surgery? Sleeping? He must have had a radically different ...
by fogdweller
Wed Jun 29, 2011 1:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Monkeys with MS
Replies: 16
Views: 2338

This could be really good news! I have never had much use for EAE since it was created artificially by inducing the kind of problem in mice (auto-immune demylination) that the scientist believed to be the basis of MS, and then usijng it as evidence that MS was primarily an auto-immune demylinating d...
by fogdweller
Sun Jun 26, 2011 10:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567370

The more i treat this, the more I believe that i am not treating MS at all, but most of the time treating ccsvi. This seems more true as more evidence comes in, but how do you explain Dr. Zamboni's original findings that sparked this whole issue, that MS was largely convined to those with MS? Even ...
by fogdweller
Thu Jun 23, 2011 11:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What to do, What to do? Restenosed
Replies: 11
Views: 2018

Thanks everyone who has chimed in!! It sounds as though most of you are pretty much of the same mind as I am. I am going to wait and see. I think we are learning alot about the chronic vascular input to this disease I believe very strongly that the vascular approach is the right one. I have strong d...
by fogdweller
Wed Jun 22, 2011 12:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What to do, What to do? Restenosed
Replies: 11
Views: 2018

What to do, What to do? Restenosed

I had bilateral jugular blockage, was treated in Sept. 2010, had improvement for 2 or 3 days, developed very sore jugulars, and the improvements went away. I did not get follow up diagnosis until March 2011. at that time, I had bilateral jugular reflux , diagnosed per color doppler ultrasound. The t...