Search found 38 matches

by simone
Tue Jul 05, 2011 1:54 pm
Forum: Regimens
Topic: anyone on IVIG???
Replies: 7
Views: 5909

Thinking of starting IVIg.....found this post. Is it that risky? Gave up on this post as there was no reply and now for some reason got an email. I don't know what risks Imacalus is referring to . It is a pooled blood product . They say the risks of viral infection are extremely rare given the proc...
by simone
Fri Apr 15, 2011 11:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A request
Replies: 56
Views: 10812

" I am home now, which I like much better. "

May you stay home and continue to improve .

Just saw your thread Bluesky. I am so sorry you have been having such difficulties. I send you lots of good healing wishes.
by simone
Sat Feb 12, 2011 9:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160867

So happy to hear this wonderful news Cece. You are amazing. Your ability to function to the level you have been, with these huge blockages is awesome! Can't imagine how you will use your abilities next. Thank you and Dr Sclafani for all that you have done. Ditto on the previous advice and would like...
by simone
Fri Dec 24, 2010 4:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 45478

Holly, congratulations on your new position and welcome. A magnificent match. A wonderful worker. A fantastic fit. An empathic employee. A perfect pairing. An omniscient offer. A CCSVI career. An excellent endeavor. A great gal. A terrific team. A lovely lady. A jammin' job. A happy hiring! ~HP 'Co...
by simone
Wed Dec 01, 2010 2:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: THANKSGIVING
Replies: 43
Views: 9574

May your good fortune continue and multiply.
Mazel tov!
So grateful to have you on our side.
With love :D
by simone
Thu Nov 25, 2010 11:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: It's about time, Dr. Sclafani
Replies: 33
Views: 12409

So happy to hear this wonderful news! Your unwavering dedication to alleviate human suffering is so very appreciated Dr. Sclafani. Your work to get centers set up is brilliant and much needed. Thank you for all that you do! Thank you Michelle for persevering. Thank you Holly for all your doings and ...
by simone
Sun Aug 08, 2010 2:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 20212

Hi Bluesky, Just found your thread and am so happy to hear that you got treated. Your posts are so palpably descriptive and your sharing very much appreciated. I am amazed with all you have been dealing with and being able to take care of your children, including cognitive impairment, you can be so ...
by simone
Tue Jun 29, 2010 12:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

Re: thyroid disease in MS

Will all the drama of last week, i forgot to bring up another concept that Paolo and Fabrizio brought up during my visit with them. CCSVI causes cerebrospinal venous collateral flow. One of the major pathways for collaterals is just upstream to the most common area of obstruction, down low near the...
by simone
Thu Jun 24, 2010 4:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

Ok the IRB had many valid arguments and some arguments that revealed the inadequacy of my appliication. I did not make some points forcefully enough and thus they argued against my application because they thought the trial was for other purposes. For example i called my study a "safety and ef...
by simone
Thu Jun 24, 2010 1:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

Re: dr sclafani study

[quote="BCSailor" What should a randomized trial require of its doctors' experience before they begin the trial? if i were writing a multicenter trial, i would have a course, probably lasting five days, followed by a requirement of 30 procedures reviewed by the primary investigator before...
by simone
Tue Jun 22, 2010 8:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

To quote a friend's constant quote:

"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." Margaret Mead
by simone
Tue Jun 22, 2010 6:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

The sighting the inept sudo- attempt of germany is very worrisome as are the trials that are planned with inexperienced docs. IRB suppose to be caring for the patients it has been said. Are they all neuros? and did they get paid by....? Patients having input too scary for them? Docs relating to pati...
by simone
Wed Jun 16, 2010 11:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

Re: RESEARCH IDEA

Over the past couple of months, a number of patients have sent me CDs containing MRvenograms, ultrasounds and venograms, along with interpretations. I have viewed many with dismay I would say in general that the majority of the tests have been poor, inaccurate, inaccurately reported, and displayed ...
by simone
Mon Jun 14, 2010 9:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

Re: THINGS I LEARNED IN FERRARA #2 THE ULTRASOUND

That ultrasound is quite specific. The Doppler is quite relevant and the images need to be taken in just the right way, otherwise the diagnosis is unclear. So it is clear that we need to create a standard. that standard needs to be specific, reproducible and simple. by the time i learn this one, pa...
by simone
Wed Jun 09, 2010 10:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370326

Hello all, Just thought to mention that there is no way Sclafani, while with Zamboni, does not have internet access...they all have computers with internet. He's most likely way to immersed to post right now. zina U got that rigjt sister Its five freakin am and I am still working Dr z asked me to p...

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