This Is MS Multiple Sclerosis Knowledge & Support Community

Hi In January this year I had one of the most severe relapses in my MS "career". Before I go further let me present recent time line. August 2010 - going off Tysabri after 21 infusions because of side effects November 2010 - follow-up with Dr. Simka - IJVeins are patent January 2011 - The ...

HappyPoet wrote:
"When Tysabri Stops, Multiple Sclerosis Lesion Counts May Rebound"

Yeah, that's what happenned to me...

MrSuccess wrote:I am sure greyman will accept your research .

Yes, I will.
Apologies for losing my temper.

bruce123 wrote:Stents seemed to be used fairly often by many of the doctors, especially in Poland..

Bullcrap!
It is Poland where the stents are rarely used for CCSVI procedure, only when absolutely needed! Please don't spread such unconfirmed rumours.

greyman, thank you so much for keeping us informed. whatever decision you make as to where or when to get this done i want you to know that i and i'm sure many others are keeping you in our thoughts and wishing you success and health. correct me if i'm wrong, but you did get ccsvi treatment and it ...

frodo wrote: A hand made translation.:

And I think that's the best one that I got . Thank you Frodo!

My interpretation: - "Your case can be involved," so you need an excellent, experienced doctor. - You informed him of your understanding that "not much" patients "find improvement, because patients do not progress all the same," i.e., everyone is different. - "The...

OK, I got some answer. Is there anyone speaking Spanish here :) ? This time I don't want to count on the stupid translators, too many doubts. OK, here's the answer from dr. C-R: Estimado Adam, ya ha salido el tratamiento para tu domicilio, tu caso puede ser intervenido, pero como ya te comunique el ...

greyman, do you have any updates you'd like to share about ctos? been thinking about you. i hope all is going good for you. blossom, thanks for your interest and warm words. No, I don't have any updates yet. It's already been two weeks since my visit at dr. Castillo's office. I sent an e-mail to hi...

Mutley wrote: What’s the layout of his office like? I’m in a wheelchair and wonder about stair problems etc?

The flat is wheelchair ununfriendly. So maybe not too friendly but still possible to cope.
To get to the lift one has to climb 2 or 3 stairs. Stupid. Assistance needed.

Adam

Hi Adam, Firstly let me say thanks for starting this thread. I do hope this ends up in starting a dedicated CTOS forum, I think it’s needed. Sorry to hear that you can now add CTOS to Lyme disease and Wilson's disease, but let’s hope that you can find some relief with being treated for these :D It’...

Disclaimer. If you: - don't know Madrid very well - don't speak Spanish - are not an aggressive driver then NEVER rent a car in Madrid. This is my advice after some bad experience with driving in that city but I don't want to go to details. I'll only describe the visit in dr. Castillo y Recarte's of...

Congratulations on your diagnosis. CTOS of both arteries! Wow! I take that to mean you have CTOS on BOTH SIDES? Yes, please let us know the details. Did Dr. Castillo say if your condition is congenital? Will he be removing muscle and bone? On both sides? (...) Hi HappyPoet Yes, on both sides. Dr. C...

Just a short report. I've just returned from Madrid, where I visited dr. Castillo. The main news is that I DO have CTOS, on both arteries.
More details tomorrow.
Br,
Adam

Leonard Cohen only covered Hallelujah. The first to sing it was Jeff Buckley.