Search found 332 matches

by Vhoenecke
Mon Dec 27, 2010 7:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: hypovolemia and CCSVI
Replies: 52
Views: 7931

This whole pregnancy thing makes sense. I was so good during my last pregnancy then it got worse after. I did not know that I had MS for a few years later so looking back to that time it all makes sense. Once the pregnancy was over and blood volume decreased my illness got worse. Really good topics ...
by Vhoenecke
Wed Dec 01, 2010 7:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Answering Accusations
Replies: 73
Views: 9451

I am very sorry Joan, I know all that your have done for us. I am very thankful to you and those of us that matter know you do not profit from all the work that you do. God Bless!!!
by Vhoenecke
Wed Dec 01, 2010 7:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland... round 2 :)
Replies: 32
Views: 5341

Wishing you all the best Mags.
by Vhoenecke
Wed Dec 01, 2010 7:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Bill Code is treated for CCSVI
Replies: 13
Views: 2939

I don't think it is bordering on criminal I think it IS criminal. We in Canada have no local, we have to travel. I personally went to Poland, I can't have followup at home and will be travelling for my followup. I will go to the same place Dr. Code went to for his treatment. I do wish Dr. Code all t...
by Vhoenecke
Fri Nov 05, 2010 3:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: relapse 5 mos post liberation
Replies: 14
Views: 3204

Sadly, restenosis is an issue and with the procedure in the infancy stage we will have trouble. I do agree that the people doing the procedure should offer warantee work. I am not saying doing the procedure again for free but offering a reduced rate would make a lot of sense. All the best to you in ...
by Vhoenecke
Sun Oct 03, 2010 2:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabird's Bulgaria Adventure
Replies: 46
Views: 8710

Hey Hubby, I am on Liva's Facebook if that's where the pictures are being posted. Look forward to updates enjoyed your last adventure too. Was reading Esta's 2nd time in Poland and I can tell they are doing things different now. They totally didn't check me post surgery and now they are doing a dopp...
by Vhoenecke
Sun Sep 26, 2010 8:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A May Thurner Question & Euromedic (Poland)
Replies: 13
Views: 2831

I had angioplasty at Euromedic in April. I now wish they would have gone in the left. The reason for this is all of this new information coming out. I do think that soon in the future that will be protocal for future surgeries.
by Vhoenecke
Thu Sep 16, 2010 10:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Would you do it again?
Replies: 35
Views: 6547

Yes, it is like I am given my life back that I haven't had for 20 years. My children have never known "me" and now they do. I realize that I am one of the first that has had this procedure as an MS patient and I am willing to have it done again if needed. I just wish I could have it done at home.
by Vhoenecke
Fri Sep 10, 2010 5:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treated for CCSVI almost a YEAR ago! Here's where I stand...
Replies: 23
Views: 4937

Thanks so much Rhonda for not forgetting about your TIMS friends. Sounds pretty good to me after a year. We are so lucky to have this procedure available to us now, what hope did we have two years ago and so many have been done now. I was concerned about your return of numbness and stiffness. Do you...
by Vhoenecke
Tue Aug 24, 2010 10:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 14706

Bluesky, Thanks so much for sharing with us it means so much to rread about your journey. I was really touched by what you said regarding "inside" feeling. I had my procedure at the end of April and my family has noticied big changes in me. The most profound change that I have noticed is the inside ...
by Vhoenecke
Tue Aug 24, 2010 9:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Tysabri video and ccsvi
Replies: 8
Views: 1975

I went off copaxone as it doesn't work which has been proven time and time again. I had angioplasty for CCSVI, stopped Copaxone and began LDN (generic drug which shows promise for MS and no devastating side effects). All the best to you and remember drugs just get the rich richer. I find that in the...
by Vhoenecke
Wed Aug 11, 2010 1:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Spasticity
Replies: 10
Views: 2673

My spasms were bad in my right leg and upper shoulders. My bad part was from my groin down to my knee and then in my calf muscle. Since my surgery I can't really complain about my spasms. They must be at least 90% gone. I am very happy. I think one symptom of narrowed veins is spasms.

Val
by Vhoenecke
Thu Jul 15, 2010 8:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 199906

I have 5 friends there now and they are all really happy with their decision to go to Sofia. They are giving rave reviews about the doctors there. It is a top-notch hospital. I will tell them to post here when they get home.

Val
by Vhoenecke
Wed Jul 14, 2010 9:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going Back to Poland for a check Up.
Replies: 7
Views: 1727

When was your original surgery? I haven't been contacted yet and I don't know if I will go. What all tests are they going to be doing? If it's just a doppler maybe I could do it here.
by Vhoenecke
Wed Jul 14, 2010 9:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Re:
Replies: 49
Views: 10383

Thanks so much for sharing this information. We must all know that we do have risks and we appreciate you letting us know your plight. Bless you and I hope things turn around for you.


Val