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by Vhoenecke
Sat Jul 10, 2010 10:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Costa Rica
Replies: 36
Views: 10206

I think they are just there now and they have to stay for quite a while (2 weeks?) is what I heard.
by Vhoenecke
Fri Jul 09, 2010 7:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katovice or Sofia???
Replies: 11
Views: 3049

I had appointments booked in both Poland and Bulgaria but went to Poland in April because they offered me a cancellation. I was concerned about Bulgaria at that time because they were just going to be starting up and there wasn't a lot of information. Once they started doing the procedures in Bulgar...
by Vhoenecke
Thu Jul 08, 2010 8:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Badgers wonderful adventure in Poland!!!!!!!!!!
Replies: 156
Views: 41936

Great news and congratulations.
by Vhoenecke
Thu Jul 08, 2010 11:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI- going to Poland...after care in Canada
Replies: 29
Views: 8882

Dear Telit, Glad of your thoughts but why would a neurologist know anything about a vascular condition I think I would want to have my veins opened if they are narrowed. Why don`t you as a vascular guy, you might get a better response. He doesn`t lose money if you get better like your neurologist wo...
by Vhoenecke
Thu Jul 08, 2010 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, Poland: Good, Bad & Ugly
Replies: 27
Views: 6650

I kinda do fault them regarding the veins collapsing on you that quick. I am sure a better surgeon would have been able to tell that your veins needed stents. Just my oppinion of course. I also agree that the nurses there are the best vein finders in the world. Each time it was a one shot deal for m...
by Vhoenecke
Thu Jul 08, 2010 11:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sandy Macdonald-Canada
Replies: 15
Views: 6665

Hi all,

How would I contact Dr. Mc.? I would like to have my followup exams done here instead of having to fly to Poland.

Val
by Vhoenecke
Thu Jul 08, 2010 10:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Effectiveness of MS drugs
Replies: 56
Views: 11035

A lady from Calgary phoned me to get information on the angioplasty treatment. She told me she was just diagnosed with Thyroid cancer and feels it was caused by the MS drugs. I agree with her. Can't remember if it was rebif, Beta, or avonex that she was on. Not really impressive, now they are draggi...
by Vhoenecke
Wed Jul 07, 2010 11:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, Poland: Good, Bad & Ugly
Replies: 27
Views: 6650

Hi Pam, Thanks so much for this informative thread. I was there 28 April. I must agree on some parts. Majek's driving should be addressed. Eye exam shows optic neuritis and if there is red that is optic neuritis. Night staff, surprised they slept in the waiting area on the sofas. I was in a bed that...
by Vhoenecke
Fri Jul 02, 2010 8:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No follow up exam due to cost?
Replies: 7
Views: 2304

I could go to a private place but pay 2500 dollars and no guarantee that they are very good.

Val
by Vhoenecke
Fri Jul 02, 2010 5:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No follow up exam due to cost?
Replies: 7
Views: 2304

Hey Crocky Canada is not much better in the health department as far as I'm concerned. The difference is they have heard of doppler just won't allow it to be done.
At least you don't have to fly 12 hours to get there.

Val
by Vhoenecke
Thu Jul 01, 2010 8:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No follow up exam due to cost?
Replies: 7
Views: 2304

Speaking to Euromedic, if we have restenosis we would have to book another time, they wouldn't treat it then. Yet another trip. If we have our MS symptoms back we will know it and then I will book my trip. What are they going to do at the 6-month check up anyways.

Val
by Vhoenecke
Wed Jun 30, 2010 8:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 78890

Thanks so much Mrs. Wheelie.
by Vhoenecke
Tue Jun 29, 2010 10:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 78890

Hi all,

I was treated in Poland and to help someone get an appointment at Tychy would I send to the email listed on page 1 of this thread or how should they get their name on this list?

Thanks for the help, trying to get as many liberated so our voice is strong.

Val :D
by Vhoenecke
Tue Jun 29, 2010 6:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No follow up exam due to cost?
Replies: 7
Views: 2304

Hoping I don't, if I restenose I will return.

Val
by Vhoenecke
Wed Jun 23, 2010 7:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 12368

Thinking of you today.

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