Search found 332 matches

by Vhoenecke
Sun Jun 20, 2010 7:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How soon have you seen improvements?
Replies: 14
Views: 4411

My improvements happened on the operating table. I could tell my eyesight was better and that I felt better all over, my energy was there unlike before.

Val
by Vhoenecke
Sun Jun 20, 2010 3:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 203911

I agree Joan P, it is very good to hear both good and bad outcomes in order to make an informed decision. Going into the procedure thinking it is a miracle cure is not good. We all hope for the stopping of disease progression but that may not always happen. Please keep posting if you did not have po...
by Vhoenecke
Sat Jun 19, 2010 11:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Primary Progressive and accidents
Replies: 34
Views: 10242

This totally makes sense, some of us are genetically connected to having bad veins and some of us have had spinal injuries that cause pressure on our veins from the spine.

Wow!
by Vhoenecke
Sat Jun 19, 2010 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Prayers for D and some thoughts...
Replies: 23
Views: 6345

So many people with PPMS are asking if this procedure will work for them and I will send them this thread and the updates from my neighbour who just had his surgery. Yes this treatment does work for PPMS. Thanks so much for bringing this back up.

Val
by Vhoenecke
Sat Jun 19, 2010 11:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thyroid cysts contribute to CCSVI?
Replies: 17
Views: 6172

Wow, I had thyroid trouble with my first pregnancy.
by Vhoenecke
Sat Jun 19, 2010 9:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been liberated that is a primary progressive MSer
Replies: 22
Views: 5838

A neighbour of mine in the small town I live in is currently in Bulgaria. He has seen quite a big improvement with his MS. His ability to talk has improved, his strength and many more improvements. I think the original thought that this doesn't work for PPMS is being proven wrong.

Val
by Vhoenecke
Fri Jun 18, 2010 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 18280

Ernst, I won't pinch you to check if you are dreaming because it would hurt! :lol: I just want to take this moment to wish you a wonderful trip to a great country. I loved my experience in Poland, there are excellent doctors in that country. Here is to the beginning of a new life with your wife. Val
by Vhoenecke
Wed Jun 16, 2010 6:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Letter writing campaign for Barb Farrell - VICTORY
Replies: 97
Views: 25158

What a saint Patrick is for helping the hospital when they didn't help him. He is in my prayers.

Val
by Vhoenecke
Wed Jun 16, 2010 6:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 12370

That's the 5% that don't have CCSVI. I had my docs but they were never asked for.
by Vhoenecke
Wed Jun 16, 2010 5:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question regarding Katowice...
Replies: 2
Views: 1628

Can't help you re stent as I didn't have one but I heard 6 months on drugs. If you are in Canada us your receipts to claim on Income Tax as a medical expense, including your flights there. Just have fun, love Poland would go back in a heart beat.
by Vhoenecke
Tue Jun 15, 2010 8:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BMK, Albany, NY, Dr. Siskin and my Liberation
Replies: 45
Views: 19057

I'm with Cheer, he doesn't have IRB approval yet, maybe we shouldn't be shouting this from the rooftops.
by Vhoenecke
Fri Jun 11, 2010 7:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 12370

Great new, I was there April 28th. Had a blast and feel like a million bucks.

Val
by Vhoenecke
Thu Jun 10, 2010 9:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Money in Poland, visa, ATM's, American Express?
Replies: 6
Views: 2106

The cities are close, I think I went to that hospital for my MRV from the Euromedic in Katowice.

Val
by Vhoenecke
Thu Jun 10, 2010 12:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Money in Poland, visa, ATM's, American Express?
Replies: 6
Views: 2106

Hey Jason that is good advice there are bank machines there that do work but it is good to have a bit on you when you land if you want to get something.

You don't need much though 500 Zloty is about 150 CDN.

Val
by Vhoenecke
Thu Jun 10, 2010 11:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Money in Poland, visa, ATM's, American Express?
Replies: 6
Views: 2106

I got my bank to order some PLN(Zloty) I would recommend 1000 or so. Not sure about the pin number on the ATM machines there was a bank machine in the mall attached to the hotel I used it to get cash from my visa. My bank said using visa is secure let them know you are travelling out of country and ...

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