This Is MS Multiple Sclerosis Knowledge & Support Community

ssmme,

That is the kind of heat intolerance the procedure helps the crippling kind. I have been out for many warm days doing hiking etc and no problems.

Val

That's great news. The small improvements with MS are huge in my books.

Val

Mshusband, You are correct, they will be saying this in the future but I think it will be quite a bit farther in the future than you give them. In ten years there will be a few more rumblings but they are trying to slow this down as much as they can. A few months ago I said to my family that in 50 y...

Went on LDN when I came home and quit Copaxone.

http://www.ldninfo.org/

Generic drug that actually works.


Val

One of my FB friend's wife had restenosis as she was one of the first 20 patients done in Poland. She was good for 3 months then had restenosis. Her husband wanted to check out Bulgaria. There they found way more than the original stenosis and she is doing very well.

Val

I had the same problem with emailing just as Simka's email changed to the euromedic. Noticed on this site that many were getting dates that had contacted after mine. Emailed again and said that I had emailed at end of December and they got me in right away. Loved my time there, if possible go and st...

I know this is abit off-track but a health professional blogging from overseas today states her eye color has changed post liberation. Really interesting. I am so glad that someone said something about this eye colour change. My eyes have changed back to their original green-hazel that I had in my ...

I went to Poland, had lesions in my MRI in Canada. They know what they are doing in Poland, you would be treated there and get better plain and simple.

I agree with Andrew, the drugs are usually to blame for issues and if you ask doctors they know very little about drugs. Take you time with raising your bed, going slowly in stages is good advice. My husband and I still use IBT and swear by it. I have been up 7" since the end of December, I had...

I had my procedure on April 28th, been out in some very hot days. Wouldn't have been there pre-procedure but now no issues. Can't believe that changed, I thought heat intolerance would be with me for life.


Val

Johnson you have a huge MS community wishing you all the best. Loved my Poland experience and if yours is half as good you will be thrilled. Enjoy the breakfasts and the beautiful people. Best of all enjoy the treatment.

Val

Good job Magoo, I have the same results that you do with treatment but we don't know if the people with more damage will have repair in let's say 5-10 years. No one knows what will happen until that time comes. It is promising to see people that were not able to walk very much or very well are getti...

isadora,

remind him that you sent email March 4 he will move your date up.

@ blossom,

Yes they put it in their magazine but at the back. Who reads their garbage anymore. Have asked to be taken off their list. Don't know many MSers with much to do with the Society. Freedman uses them as his cash cow, 24 people allow it to go to the government. ONE DIED!

That worry/stress will soon be gone, mine is for sure.

Val