Search found 25 matches

by walcat
Mon Feb 21, 2011 1:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Loobie update - 18 months out
Replies: 25
Views: 6521

Loobie - Thanks for the update! It's thanks to all you pioneers I was tested and treated for CCSVI, my life is so much better. I enjoying reading how everyone is doing. My doctor told me he's discovering it's the azygos that affect the legs. I'm now 5 mos. post.
by walcat
Sat Sep 11, 2010 7:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treated for CCSVI almost a YEAR ago! Here's where I stand...
Replies: 23
Views: 6559

Rhonda,
Happy Anniversary! Thank you for sharing, I've been following all you pioneers since November, and it's thanks to all of you that I've been pushing for this. I finally have my day coming. I hope your numbness clears!
by walcat
Sun Aug 22, 2010 5:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Diagnosis Code for CCSVI
Replies: 6
Views: 3788

This came from Joan's Facebook dated 21 Aug 2010.
venogram-75820, 75860, 75870, 75872, 75945, 37250
Venous Ultrasound-93970
Angioplasty/Stenting-35475, 75962, 37205,75960
Diagnosis Code-459.81
by walcat
Sun Aug 15, 2010 7:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 5 days to go!
Replies: 12
Views: 2650

Good Luck!! Please keep us informed as to how she's doing.
by walcat
Sun Aug 15, 2010 7:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My MRV images from Hubbard Foundation...
Replies: 9
Views: 2636

Congratulations! I hope everything works out for you. I heard from Devin a few days ago, and I'm now waiting for my date from the Hubbard Foundation. Can't Wait!!! :D
by walcat
Sun Aug 08, 2010 8:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2350348

Dear Dr. Sclafani
You are so wonderful, thank you for your dedication for all us MSers!
by walcat
Fri Jul 30, 2010 2:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: About 1/3 see no improvement at all?
Replies: 46
Views: 10969

For me I had given up hope on anything to help my MS, until I discovered CCSVI last November. The CRAB drugs (which only made me worse!) only work 30% of the time. Where as getting the blood flowing again helps 66% has much better odds, and therefore I'm going to take my chances and get the procedure.
by walcat
Fri Jul 30, 2010 1:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 Months Post Lib. Proc. In Bulgaria. WAY MORE DISABLED
Replies: 40
Views: 10797

Chris, I'm so sorry to hear you are worst. Thank you for sharing with us! I'm on a waiting list, and I'm glad I'm going in not expecting miracles. I've been looking for a doctor in my area since January. I'm on a waiting list for a doctor out of state, which is coming soon. I was able to find a loca...
by walcat
Fri Jul 30, 2010 1:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Just two weeks!
Replies: 26
Views: 5869

Congratulations! I hope everything goes fantastic for you!!! Please keep us informed.
by walcat
Sat Jul 10, 2010 7:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 35293

I'm am so thrilled for Barb and her family. I am glad she continues to improve everyday!!!
by walcat
Mon Jul 05, 2010 7:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Well worth a read..
Replies: 4
Views: 2282

That was a very good comment! I had given up on ANYTHING to help MS, I stopped my med's 4-5 yrs ago I haven't even seen my neurologist in about 2 years. Now I have something that's gives me hope - CCSVI!
by walcat
Tue Jun 29, 2010 4:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Get PROPERLY tested for Lyme Disease!
Replies: 47
Views: 13282

Thanks Whitey, I found that very interesting! I was bit by a tick about 3-4 years before my first MS attack. I live in Idaho where there is a small percentage of Lyme Disease.
by walcat
Tue Jun 29, 2010 4:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI AND MS - TIP OF ICEBERG????
Replies: 12
Views: 3044

I was told here in the States, that I can't give blood. Their reason is because of the drugs I've taken in the past, even though I'm no longer on any drugs.
by walcat
Tue Jun 22, 2010 8:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2350348

Dr. Sclafani, My heart just sank when I read what happened. You have done so much for CCSVI and MS’rs. I too am willing to donate, along with all my family & friends. Keep your chin up, we will overcome all the naysayers. :D
by walcat
Sat Jun 19, 2010 3:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi WORKS !!!!!!
Replies: 14
Views: 4318

Congratulations!!! I'm so happy for you!

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