Search found 128 matches

by Badger
Wed Jan 25, 2012 2:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Charity Skydive for MS
Replies: 3
Views: 845

Charity Skydive for MS

:-D As an ex CCSVI participant I have moved on to the next step of trying to overcome MS and this comes in the shape of a skydive.

All of the money raised will go to the Anne Rowling Neurology Clinic and more can be found here:

https://edinburghuni.workwithus.org/Fun ... ?page=7067
by Badger
Tue Mar 22, 2011 12:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI or Tysabri??
Replies: 27
Views: 4945

HHi,

I was on Tysabri until this time last year and I stopped because I went over to Poland for CCSVI procedure. I was great for 3 months then I got worse pretty quickly and I went back on Tysabri. I am still not back to the way that I was but I have improved and hope to get better. So I would suggest st...
by Badger
Thu Dec 16, 2010 2:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Zamboni's Wife?
Replies: 8
Views: 2759

Dr Zamboni's Wife?

Does anyone know how she is getting on since her procedure?
by Badger
Fri Nov 12, 2010 4:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blocked stent question - w a r n i n g !
Replies: 54
Views: 14164

:

Hi, I am due to go back to Katowice on Monday 16th November. I also had a stent placed in my Azygos vein and have been getting worse since my original procedure in March. I was great initially after my procedure and this lasted for 3-4 months, I don;t know what they will find in Poland but hope they...
by Badger
Wed Nov 03, 2010 3:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 1 year after my CCSVI procedure in Poland/Katowice.
Replies: 15
Views: 3710

:

Hi,

that is a shame that you are no longer feeling any benefits.

I am in a similar position and I am going back to Poland on 18th November for my check up.

I would love for them to fix me but as I have a stent I do not believe that there is much that they can do.

:wink:
by Badger
Thu Oct 28, 2010 8:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Badgers wonderful adventure in Poland!!!!!!!!!!
Replies: 156
Views: 30974

:

What a struggle, my MS journey is now a complete rollercoaster, though I fail to reach the heights that I felt after Poland. I have been very poor recently and this has prompted me to contact my MS specialist to find out about going back on TYSABRI. I am hoping that can take me back to where I was; ...
by Badger
Mon Oct 25, 2010 8:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angela has PML...
Replies: 51
Views: 11697

:

I feel so sorry for you Angela, I hope you can pull through. God bless.xxx
by Badger
Mon Oct 11, 2010 1:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A May Thurner Question & Euromedic (Poland)
Replies: 13
Views: 2831

???????

I had the procedure on 24th March as you can see and you may also have read my updates as well. If not I am now in a worse state than I was before Poland but I have not given up, from what I have been reading on May-Thurner Syndrome it does sound possible that is what I now have. My left leg is very...
by Badger
Mon Sep 20, 2010 11:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6-month update from Dunkempt
Replies: 12
Views: 2869

-

Hi, I was in Poland at the same time as you, 23/24th March. Great to hear the good news of your continued improvements. I was good until recently and I am due to start LDN today to try to sort the problem. Hopefully it will work and I can be back to the way I was after Poland. All the best :D :D :D
by Badger
Mon Sep 20, 2010 1:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation Survey Part 1 - just after treatment
Replies: 16
Views: 5031

-

I had great improvements after the procedure and I was looking forward to going on holiday to see further improvements. My walking was much smoother and I could look around me while walking, I was even told that my speach was much stronger and concise. :D :D :D You can read on the 6 months post proc...
by Badger
Mon Sep 20, 2010 12:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation Survey Part 3 - after six months
Replies: 7
Views: 3423

...........

I have voted and I seem to be the only one who has got worse. This only happened after 5 months but there may have been a number of factors which could have had an impact on this - 1 - I lossed my job. 2 - My new baby was born. 3 - I was due to move home which looked to have fallen through but is ba...
by Badger
Fri Sep 17, 2010 1:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Other veins involved in CCSVI??
Replies: 11
Views: 2393

...

The Iliac vein - It runs somewhere near the Azygos vein and due to the increase in blow flow the body uses this as a collatoral.

I am no Dr by the way it is just what I have read. :wink:
by Badger
Thu Sep 16, 2010 11:12 pm
Forum: Low Dose Naltrexone
Topic: LDN Precriptions
Replies: 5
Views: 2443

....

I saw my specialist last week and he is wanting to put me back on Tysabri, I said I would like to try LDN and see what happens. He said that I can take both of them at the same time. I don't know how that works but I refused anyway, still a little sceptical about Tysabri and the possibility of havin...
by Badger
Wed Sep 15, 2010 11:19 pm
Forum: Low Dose Naltrexone
Topic: LDN Precriptions
Replies: 5
Views: 2443

....

I have improved since returning from holiday but I am starting LDN this week and may be going back to Poland if there is no great improvement.

:? :D :? :D