As an ex CCSVI participant I have moved on to the next step of trying to overcome MS and this comes in the shape of a skydive.
All of the money raised will go to the Anne Rowling Neurology Clinic and more can be found here:
https://edinburghuni.workwithus.org/Fun ... ?page=7067
Search found 128 matches
- Wed Jan 25, 2012 2:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Charity Skydive for MS
- Replies: 3
- Views: 1261
- Tue Mar 22, 2011 12:15 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI or Tysabri??
- Replies: 27
- Views: 6936
HHi,
I was on Tysabri until this time last year and I stopped because I went over to Poland for CCSVI procedure. I was great for 3 months then I got worse pretty quickly and I went back on Tysabri. I am still not back to the way that I was but I have improved and hope to get better. So I would suggest st...
- Thu Dec 16, 2010 2:20 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr Zamboni's Wife?
- Replies: 8
- Views: 3497
Dr Zamboni's Wife?
Does anyone know how she is getting on since her procedure?
- Mon Dec 06, 2010 3:37 am
- Forum: Stem Cells
- Topic: Another step closer:
- Replies: 2
- Views: 1880
- Fri Nov 12, 2010 4:08 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: blocked stent question - w a r n i n g !
- Replies: 54
- Views: 18027
:
Hi, I am due to go back to Katowice on Monday 16th November. I also had a stent placed in my Azygos vein and have been getting worse since my original procedure in March. I was great initially after my procedure and this lasted for 3-4 months, I don;t know what they will find in Poland but hope they...
- Wed Nov 03, 2010 3:23 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 1 year after my CCSVI procedure in Poland/Katowice.
- Replies: 15
- Views: 4852
:
Hi,
that is a shame that you are no longer feeling any benefits.
I am in a similar position and I am going back to Poland on 18th November for my check up.
I would love for them to fix me but as I have a stent I do not believe that there is much that they can do.
that is a shame that you are no longer feeling any benefits.
I am in a similar position and I am going back to Poland on 18th November for my check up.
I would love for them to fix me but as I have a stent I do not believe that there is much that they can do.
- Thu Oct 28, 2010 8:16 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Badgers wonderful adventure in Poland!!!!!!!!!!
- Replies: 156
- Views: 40901
:
What a struggle, my MS journey is now a complete rollercoaster, though I fail to reach the heights that I felt after Poland. I have been very poor recently and this has prompted me to contact my MS specialist to find out about going back on TYSABRI. I am hoping that can take me back to where I was; ...
- Mon Oct 25, 2010 8:02 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Angela has PML...
- Replies: 51
- Views: 14620
:
I feel so sorry for you Angela, I hope you can pull through. God bless.xxx
- Mon Oct 11, 2010 1:50 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A May Thurner Question & Euromedic (Poland)
- Replies: 13
- Views: 3842
???????
I had the procedure on 24th March as you can see and you may also have read my updates as well. If not I am now in a worse state than I was before Poland but I have not given up, from what I have been reading on May-Thurner Syndrome it does sound possible that is what I now have. My left leg is very...
- Mon Sep 20, 2010 11:28 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 6-month update from Dunkempt
- Replies: 12
- Views: 3962
-
Hi, I was in Poland at the same time as you, 23/24th March. Great to hear the good news of your continued improvements. I was good until recently and I am due to start LDN today to try to sort the problem. Hopefully it will work and I can be back to the way I was after Poland. All the best :D :D :D
- Mon Sep 20, 2010 1:08 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Liberation Survey Part 1 - just after treatment
- Replies: 16
- Views: 7138
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I had great improvements after the procedure and I was looking forward to going on holiday to see further improvements. My walking was much smoother and I could look around me while walking, I was even told that my speach was much stronger and concise. :D :D :D You can read on the 6 months post proc...
- Mon Sep 20, 2010 12:59 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Liberation Survey Part 3 - after six months
- Replies: 7
- Views: 4671
...........
I have voted and I seem to be the only one who has got worse. This only happened after 5 months but there may have been a number of factors which could have had an impact on this - 1 - I lossed my job. 2 - My new baby was born. 3 - I was due to move home which looked to have fallen through but is ba...
- Fri Sep 17, 2010 1:53 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Other veins involved in CCSVI??
- Replies: 11
- Views: 3209
...
The Iliac vein - It runs somewhere near the Azygos vein and due to the increase in blow flow the body uses this as a collatoral.
I am no Dr by the way it is just what I have read.
I am no Dr by the way it is just what I have read.
- Thu Sep 16, 2010 11:12 pm
- Forum: Low Dose Naltrexone
- Topic: LDN Precriptions
- Replies: 5
- Views: 3501
....
I saw my specialist last week and he is wanting to put me back on Tysabri, I said I would like to try LDN and see what happens. He said that I can take both of them at the same time. I don't know how that works but I refused anyway, still a little sceptical about Tysabri and the possibility of havin...
- Wed Sep 15, 2010 11:19 pm
- Forum: Low Dose Naltrexone
- Topic: LDN Precriptions
- Replies: 5
- Views: 3501
....
I have improved since returning from holiday but I am starting LDN this week and may be going back to Poland if there is no great improvement.