Search found 52 matches

by suze
Wed Oct 15, 2014 8:59 pm
Forum: General Discussion
Topic: Study shows MS patients benefit from exercise
Replies: 10
Views: 1493

Re: Study shows MS patients benefit from exercise

I have found that specialist neurological physiotherapists are really good at designing exercises to target specific areas of weakness.
by suze
Fri Jan 11, 2013 9:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sleeping position
Replies: 7
Views: 2036

Re: Sleeping position

I don't understand why, but if I do anything that stretches the nerves in my spine, my right knee just collapses when I walk, and it becomes painful etc. sleeping curled up or with on my side with one knee drawn up is one of the things that stretches my spine. If I sleep on my side with a cushion un...
by suze
Fri Nov 16, 2012 3:06 pm
Forum: Medical Devices
Topic: Cooling pillow?
Replies: 2
Views: 3150

Re: Cooling pillow?

In the summer I use cold packs, I also have some cold wrist and neck wraps and a cooling vest. If my body temperature rises even a small amount I am really spastic. If I know I will have to get into the car after it has been parked in the sun, I have a few cold packs in a freezer box ready and I jus...
by suze
Fri Sep 07, 2012 7:24 pm
Forum: Ampyra
Topic: Would like to hear from people using Ampyra
Replies: 22
Views: 23571

Would like to hear from people using Ampyra

Reply to topic in 'general' section: I have been using it for about 2 months. It's definitely not a wonder drug. I'm really not sure if I am walking any better - maybe marginally. As that research from squiffy stated, I think I would get more or equal benefit from physio. I think I might go off it f...
by suze
Fri Sep 07, 2012 7:09 pm
Forum: General Discussion
Topic: Would like to hear from people using Ampyra...
Replies: 2
Views: 1013

Re: Would like to hear from people using Ampyra...

I have put a response in the Ampyra strand.
by suze
Mon Jul 30, 2012 3:58 am
Forum: Daily Life
Topic: you never know :(
Replies: 5
Views: 1911

Re: you never know :(

Sorry JL.
by suze
Thu Jul 12, 2012 12:07 am
Forum: Ampyra
Topic: Ampyra - 2+ years and working great
Replies: 3
Views: 4834

Re: Ampyra - 2+ years and working great

Even if it allows the taker to exercise a bit more and hopefully increase mobility, it would be good value.
by suze
Wed Jul 11, 2012 12:40 am
Forum: Ampyra
Topic: Ampyra - 2+ years and working great
Replies: 3
Views: 4834

Re: Ampyra - 2+ years and working great

It is good to hear that it is working for someone. I have only just started taking Fampyra and it hasn't had time to work. It's very expensive here ($600/month) but at least if it works, I will have some options.
by suze
Sat Mar 03, 2012 9:59 pm
Forum: Site Support
Topic: General thread
Replies: 3
Views: 4392

Re: General thread

As you were! It's working!
Thanks
by suze
Sat Mar 03, 2012 9:57 pm
Forum: Site Support
Topic: General thread
Replies: 3
Views: 4392

Re: General thread

I click it to open and nothing happens - it won't open. I have been trying every day for about a week.
I guess if it is just me then I can start looking from this end.
Thanks for responding.
by suze
Sat Mar 03, 2012 5:54 pm
Forum: Site Support
Topic: General thread
Replies: 3
Views: 4392

General thread

I haven't been able the 'General' thread for about a week. I wondered whether others were also having difficulty.
by suze
Fri Feb 24, 2012 12:44 am
Forum: General Discussion
Topic: Question about ms and heat exposure.
Replies: 8
Views: 2168

Re: Question about ms and heat exposure.

It is related to core body temperature. If the exposure to heat is short enough to not raise body temperature, then there is no problem.
Every time my body temperature is sufficiently raised, my symptoms get a lot worse, but as soon as I cool down I'm fine again.
by suze
Thu Dec 08, 2011 10:48 pm
Forum: Natural Approach
Topic: Results from our Red Wine experiment....
Replies: 5
Views: 2598

Re: Results from our Red Wine experiment....

I've always privately felt that red wine is beneficial. It certainly doesn't do any harm. Only good red though. Try some West Australian red from Margaret River or Mt Barker, that is particularly good.
by suze
Wed Nov 16, 2011 8:09 pm
Forum: Natural Approach
Topic: Diet supplements/older women
Replies: 10
Views: 1715

Re: Diet supplements/older women

We have just started harvest. Men running around acting busy. I think they are just planting their winter wheat in US.