Search found 20 matches

by highhopes
Sun Feb 21, 2010 8:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: time to blacklist the naysayers!!
Replies: 5
Views: 2402

put your money into research to find what is after the vascular situation (that some people do not even have)... ive been working on iron chelators, but we still dont know how this part of the new puzzle even fits into place... remember, CCSVI is still an infant...
by highhopes
Thu Feb 11, 2010 5:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: this is interesting... PKAN
Replies: 8
Views: 3006

just read that thread that you posted, AC, and it looks like i have to find a neurologist that is interested in this theory.

i AM interested, but i am a filmmaker and a musician, NOT a specialist with regards to the human brain...

thanks for that link!
by highhopes
Thu Feb 11, 2010 4:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: this is interesting... PKAN
Replies: 8
Views: 3006

AC, i did a search too and deferiprone was buried in the posts deeply and i gave up tracing down the word... if anybody knows info about deferiprone, could you post it? dedicated to deferiprone? CCSVI is still quite new, so i doubt there is much info available on the iron deposites in the brain. i a...
by highhopes
Thu Feb 11, 2010 3:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: this is interesting... PKAN
Replies: 8
Views: 3006

this is interesting... PKAN

any posts on Deferiprone?

http://abclocal.go.com/kgo/story?sectio ... id=7267620

i dont know where this belongs, but interesting nonetheless...
by highhopes
Sat Jan 30, 2010 3:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

cece, its very much like what (i assume) all MSers go through when they meet with friends and they say, "you look great! things must be going well!" all the while you want to say, "no, i feel quite different from great", and scowl. thats putting it mildly! only the people in our ...
by highhopes
Sat Jan 30, 2010 10:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

ozarkcanoer, i went into the testing procedure expecting nothing. needless to say, the skepticism of the docs and my father (a man i love and respect) rubbed off on me. but what a surprise i did find! i send my best wishes your way and hope you are able to find the results you are looking for! this ...
by highhopes
Sat Jan 30, 2010 8:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Kamikaze-Some Shameless Self-Promotion
Replies: 46
Views: 7856

i dig your style! a good read...

you got my vote, cap'n kamikaze! :twisted: lol
by highhopes
Sat Jan 30, 2010 7:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

thanks for the kind remarks! the entire time ive been on my journey, i have had EVERYONE in mind, not just myself. almost to a fault. i think i may have leaked a bit too much info, but with all the excitement i have felt in the past couple of weeks, i just could not help myself! the last thing i wan...
by highhopes
Fri Jan 29, 2010 6:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

i did, huh? lol thanks to all of you for your help! i WAS an av tech before i had to claim disability, but i know next to nothing when it comes to computers... just not my bag... anyway, there is a group of interventional neuro radiologists EXTREMELY interested in my case. im flying out to the midwe...
by highhopes
Fri Jan 29, 2010 5:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

beta test... lol
Image
Image

notice anything weird???
by highhopes
Fri Jan 29, 2010 4:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

no options under "file" so i did the screen shot...

now how do i post the images?

i just toyed with the [img] tags and got nothing in my preview. what do i do?

thanks
by highhopes
Fri Jan 29, 2010 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for the techies...
Replies: 20
Views: 5003

question for the techies...

i have my MRV images on the cd that the hospital gave me. the images can only be opened and viewed by the software that came on the cd. i would like to somehow capture these images in a jpeg or tif file, but i do not have the skills. if any of you can help me do this, without using photoshop, would ...
by highhopes
Mon Jan 18, 2010 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am in doubt about CCSVI diagnostics
Replies: 40
Views: 9913

edit
by highhopes
Mon Jan 18, 2010 10:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question for Colorado MS'ers and CCSVI
Replies: 22
Views: 5859

i am sitting in the radiologist's offfice/reading room of the hospital that i was able to get an MRV done at. the results were astonishing!!! i have yet to transfer the images to a universally viewable file format, but my left jugular is NON-EXISTANT and my right is over 70% stenosed. the techs had ...
by highhopes
Mon Jan 11, 2010 9:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angioplasty In Jugulars
Replies: 24
Views: 8540

these videos are HIGHLY informative! i HIGHLY recommend that everyone here view them!

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