Search found 14 matches

by Pauline
Mon Aug 02, 2010 11:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 Months Post Lib. Proc. In Bulgaria. WAY MORE DISABLED
Replies: 40
Views: 10923

Chris-- I'm so sorry. I hope you can be seen by medical professionals in your area. LR gives great advice. Here's a thread you started back in January regarding going to Poland. I know this doesn't help you, but I've really been trying to make sure patients have follow-up care and that they stay ho...
by Pauline
Tue Jul 06, 2010 5:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372101

balloon types

color=indigo]quote - Dr Sclafani: i would use a high pressure balloon. if you had a sausage appearance with a high pressure balloon, a low pressure balloon is not going to do much. Bars are places i go after work.....i think in atmospheres. moderate balloons go up to about 8 atm. high pressure ballo...
by Pauline
Mon Jul 05, 2010 6:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372101

Sorry just posted a question as a new topic! My question is for Dr. Sclafani! Dr. Sclafani I'd like to ask you a couple of questions. I had a stent put into my left IJV and there now seems to be some re-narrowing (intra-stent stenosis maybe due to intimal hyperplasia). My doctor is going to try to o...
by Pauline
Mon Jul 05, 2010 6:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: different types of balloons in angioplasty
Replies: 0
Views: 1819

different types of balloons in angioplasty

Dr. sclafani I'd like to ask you a couple of questions. I had a stent put into my left IJV and there now seems to be some re-narrowing (intra-stent stenosis maybe due to intimal hyperplasia). My doctor is going to try to open the vein more again ( a different doctor to the one who did the original a...
by Pauline
Wed Jun 30, 2010 10:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani's Italy Presentation
Replies: 77
Views: 16137

Re: Dr. Sclafani's Italy Presentation

Greetings, I have edited the presentation given by Dr. Sclafani in June 2010 at Dr. Zamboni's conference in Italy and made it available as an easily downloadable mp3. Please do not link to it, but instead save it to your own computer and help spread it far and wide. sclafani_italy_june_2010 "Z...
by Pauline
Tue Jun 29, 2010 9:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post Liberation/Who's had folllow up exam?
Replies: 9
Views: 2741

Pauline, thanks for your good info. What meds are you taking for blood thinners? Plavix, aspirin, or anything? thanks, Rose Hi Rose. I'm only taking aspirin now. I took Areplex injections for 7 days, Plavix for 8 weeks together with omeprazole ( an drug which they advise in case of stomach irritati...
by Pauline
Mon Jun 28, 2010 11:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post Liberation/Who's had folllow up exam?
Replies: 9
Views: 2741

Had a follow-up Doppler last Monday 10 weeks after procedure - locally. Done by very competent IR who 'dopplers' jugular and other veins "all the time" (for dialysis and cancer patients). Could see stent clearly in place but now narrowed again!! Now becoming apparent to many, I think, that...
by Pauline
Tue Jun 08, 2010 1:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blocked stent question - w a r n i n g !
Replies: 54
Views: 18113

I'm very curious how long the people with blocked stents were on anticoagulants (Plavix, Warfarin , Heparin etc). Dr. Kostecki prescribed 14 days of 60mg of Clexane once a day for 14 days, 75mg of Plavix once a day for a year and 150 mg ASA once a day for life. I've been reading other posts in the ...
by Pauline
Tue May 18, 2010 8:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Italian doctor's MS treatment more hype than help ?
Replies: 19
Views: 4303

Response to the Canadian Newspaper article

Wow Ashton! Absolutely fantastic. Thank God for people like you.
Knowledgable, compassionate, inquisitive, informative, open-minded.... can't think of enough personal attributes!!

Pauline
by Pauline
Mon May 17, 2010 8:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Italian doctor's MS treatment more hype than help ?
Replies: 19
Views: 4303

improvements??

Bece, have you still seen little or no improvement? If your veins are still open, as in like other healthy normal people's, then that's bound to be better than if they're blocked. Since the procedure, I still have my good days and bad days but I think anybody with MS will inevitably have these wheth...
by Pauline
Tue May 11, 2010 9:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: esta and poland - finally my turn
Replies: 51
Views: 12314

scaffolding!

Ha ha - wonderful! I'm probably one of them. Whatever they put in I hope it's working and making you feel great!!

Pauline
by Pauline
Tue May 11, 2010 1:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: esta and poland - finally my turn
Replies: 51
Views: 12314

balloons and stents

Esta probably someone has told you already, but the balloon doesn't stay - they only inflate it while the catheter is in to open up the vein. If the vein stays open on its own then they don't put a stent in but the meaurement you gave sounds like a stent measurement. They gave you an 'information' c...
by Pauline
Sun May 09, 2010 9:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Once is never enough
Replies: 32
Views: 6402

Balloon use in angioplasty

IN ANGIOPLASTY, THERE IS NO BALLOON LEFT IN A VEIN OR ELSE HOW WOULD THE BLOOD FLOW?? The balloon is inflated to open the vein and then to place the stent, if one is to be used. It's then deflated and withdrawn. :!: "A catheter – a fine, flexible, hollow tube – with a small inflatable balloon a...
by Pauline
Sat May 08, 2010 12:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Scanning in Glasgow: Will they use the right protocol?
Replies: 11
Views: 3022

Essential Health Clinic Glasgow

Dr. Tom Gilhooley is my doctor and although I now live temprorarily in the Middle East, I always consult with him on my return to the UK as well as communicating regularly with him. I've been consulting with him for a number of years - since he first prescribed my LDN. He is a wonderful, professiona...

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