Search found 55 matches

by Chris1967
Wed Jan 19, 2011 5:38 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Starting Chemo for MS in 9 Days. Am I nutz?
Replies: 6
Views: 6242

Thanks NHE. I did some reading. Im not sure the pulsed version is the way Im going so monday I will most likely back out once im there. I began making alternate plans for the high dose version. I understand the dangers. MS has got a hold of my life anyway. In my mind, theres is nothing worse than le...
by Chris1967
Sat Jan 15, 2011 4:33 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: cytoxan therapy
Replies: 47
Views: 26916

Thank you Colleen, I greatly appreciate your help.
by Chris1967
Sat Jan 15, 2011 3:02 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Starting Chemo for MS in 9 Days. Am I nutz?
Replies: 6
Views: 6242

Thanks. What Im saying is I am going regular 4 hr transfusion onece every 28 days. Neuro was not big on the idea of HDC, wasnt clear why but i remember he made reference to my edss score of 6.5 being too hight (secondary progressive) and not rr. Anyway, no, I just starting the regular or what ever d...
by Chris1967
Sat Jan 15, 2011 11:56 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Starting Chemo for MS in 9 Days. Am I nutz?
Replies: 6
Views: 6242

Starting Chemo for MS in 9 Days. Am I nutz?

Chris here, was wondering if anyone could help. I am scheduled to start cyclophosphomide therapy in 9 days. Its a major infusion, four hours, every 28 days. How do I know Im doing right with this...my neoro told me the hicy is not something they do there and could not refer to anyone accept John Hop...
by Chris1967
Sat Jan 15, 2011 11:42 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: cytoxan therapy
Replies: 47
Views: 26916

Hi Chris, I'll be working with Dr. Balabanov from Rush. Hopefully I'll start in january. All insurance company dependent at this point. Can you tell me about your experience from that regard? Colleen Hello Colleen different Chris here, was wondering if you could help. I am scheduled to start cyclop...
by Chris1967
Tue Dec 07, 2010 8:00 am
Forum: General Discussion
Topic: Amalgam fillings (10), should I have them removed?
Replies: 10
Views: 2022

Amalgam fillings (10), should I have them removed?

Seasons Greetings to All. I hope everyone with MS is staying positive in their daily struggles. I know first hand how tough that is. You're not alone. I would appreciate any information on whether or not mercury poisening in persons with MS is real, if so, is there anyone who beleives it is causativ...
by Chris1967
Thu Sep 02, 2010 6:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Getting Re-Liberated Locally
Replies: 14
Views: 2820

Hello everyone , thanks for all the well wishes. The surgery went without a hitch, everything smooth as can be, I feel ok. I got there as requested at 7:30 AM, had to wait till about two o'clock. very much like the surgery in Bulgaria, it lasted approximately 45 min. to an hour tops. I have an appoi...
by Chris1967
Tue Aug 31, 2010 1:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Getting Re-Liberated Locally
Replies: 14
Views: 2820

Good for you Chris. Excellent work ... I hope you get the results you hope for! Thanks. I just sat there, wife beside me and argued that we NOT talk about my neurologist. He asked if I had one and I said yes, now lets move on. He insisted, I insisted (respectfully)...i sure wish I had more type in ...
by Chris1967
Tue Aug 31, 2010 1:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Getting Re-Liberated Locally
Replies: 14
Views: 2820

Re: Getting Re-Liberated Locally

Can you tell me what reasons your vascular surgeon gave for being anti-stent? (Likely the usual reasons, I know.) Best of wishes for your procedure and your health. Cece he did not give any specific reasons, I just remember he made a negative comment or two. I want to type and express myself and ju...
by Chris1967
Tue Aug 31, 2010 12:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Getting Re-Liberated Locally
Replies: 14
Views: 2820

CureIous wrote:Glad BCBS is taking care of you. Is that PPO or HMO if I may ask?

Good luck on your followup, hopefully they'll find something.

Mark.
Thanks Mark. HMO
by Chris1967
Tue Aug 31, 2010 10:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Getting Re-Liberated Locally
Replies: 14
Views: 2820

Getting Re-Liberated Locally

Liberated in Bulgaria May 5, 2010. I'm getting 're-liberated' at my local hospital tomorrow, Sept 1, 2010 by local cardiovascular surgeon. Total cost for me and my family to fly to Sofia (business class, 3 of us), be liberated, celebrate, splurge and come home: $25,000. Total cost at my local hospit...
by Chris1967
Tue Aug 31, 2010 10:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation Survey Part 2 - after three months
Replies: 10
Views: 3662

Just voted, thank you. My vote fell in the 'worse' catagory as you didnt have a waayyy f*c*ing worse catagory. Liberated in Bulgaria May 5, 2010. I'm getting 're-liberated' at my local hospital tomorrow, Sept 1, 2010 by local cardiovascular surgeon. Total cost for me and my family to fly to Sofia (b...
by Chris1967
Mon Aug 02, 2010 5:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another con-CCSVI
Replies: 23
Views: 4325

I dont see a thing wrong with this doctors view point. After all, does he stand to gain from discrediting the CCSVI theory? I would guess not. Ive had CCSVI treatment in Bulgaria on May 5th of this year. I have gotten much worse in the following months. You couldnt prove this theory by me at this po...
by Chris1967
Mon Aug 02, 2010 11:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 Months Post Lib. Proc. In Bulgaria. WAY MORE DISABLED
Replies: 40
Views: 8332

I am soooo FRUSTRATED, angry and i am getting depressed... This is way too hard... I am alone in this. It takes hours to write up letters and then tire for the rest of the day... But people without this condition don't understand all it takes out of us to put things together... I am feeling defeate...
by Chris1967
Mon Aug 02, 2010 7:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 Months Post Lib. Proc. In Bulgaria. WAY MORE DISABLED
Replies: 40
Views: 8332

Did you have any improvement initially or was it downhill from the start? I had some improvements in circulation as my feet were warmer. I think the results to this point have been either I have restenosed or the surgery itself was harmful. I wont know the answer to this Im afraid. I have asked my ...