Search found 7 matches

by Astrid1961
Thu Nov 11, 2010 1:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Follow Up Doppler
Replies: 12
Views: 3174

I have a question, Dr Simka told me that doppler gives just indication of the problems, only the angiography will show what is wrong.
But how can a check up doppler be enough to see if there is restenose or other problems?

Astrid
by Astrid1961
Thu Jul 01, 2010 11:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blockages versus valve problems
Replies: 2
Views: 1941

I had no reflux or narrowing from the jugular veins. Just inflammation of the right jugular and a bad working valve because of this. radiologist thinks balooning is not necessary, but the doctor has too look at this problem. I also have narrowing of the vertibrale vein, that goes through the spinal ...
by Astrid1961
Wed May 26, 2010 12:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberated PPMS'ers, please post your experiences here!
Replies: 59
Views: 17771

I am 48, and have ppms. I will have the scans in Germany, Dusseldorf, on 17 june. Mri( 3 tesla) , echo-doppler, and ct scan( this is a trial, and because of this it is free) . For me Dusseldorf is only 1.5 hour driving bij car. They start this week. When you have treatment there you get 5 sorts off ...
by Astrid1961
Fri Mar 05, 2010 12:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: From the perspective of a fourteen year old
Replies: 13
Views: 4004

Vonna, your daughter is incredable, she can tell it better than the most doctors/neurologists can. Everyone can understand what ccsvi is, because she explaines it in a way that it gets to you. Thank her for that. And i know this will help a lot. I did understand everything she wants to say and i am ...
by Astrid1961
Fri Feb 05, 2010 5:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 244318

Hello Andrew, I am not very good in english writing, sorry. I have a question, maybe it has been asked before, but i can't find it. I have my bed since januari 10, 2010 inclined. I wonder if it matters how i sleep? I sleep always on my belly. And what about the use of a pillow. I have ppms, since 4 ...
by Astrid1961
Wed Jan 13, 2010 12:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure in Poland
Replies: 87
Views: 46268

I also hope that before next year doctors in our country will do the scanning en the liberationtreatment. I think they can do it now, but they have to dare. ( i hope i spell it right, my Englisch is not very good). And about the name, i now exectly what you mean, at first they think always our son's...
by Astrid1961
Mon Jan 11, 2010 2:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure in Poland
Replies: 87
Views: 46268

I send an email on 12 december 2009, and 2 weeks later i received one back from Dr.Simka, i also am on the waitinglist for januari 2011. And i hope, when they start treatments in Paris/slowakije it will be sooner. I think some people from the list will have their treatments in their own country. Bry...

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