Search found 180 matches

by lovebug
Tue May 16, 2023 9:12 pm
Forum: General Discussion
Topic: CCSVI Surgery
Replies: 1
Views: 1740

CCSVI Surgery

I have not posted on this website in a long time.

Is the CCSVI surgery still being performed in the world ? Or do they call this procedure something else now?
by lovebug
Tue May 16, 2023 9:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Surgery
Replies: 1
Views: 5581

CCSVI Surgery

I have not posted on this website in a long time.

Is the CCSVI surgery still being performed in the world ? Or do they call this procedure something else now?
by lovebug
Tue May 16, 2023 8:59 pm
Forum: General Discussion
Topic: Alpha Lipoic Acid
Replies: 3
Views: 1311

Alpha Lipoic Acid

My Neurologist recently suggested that I try 1200 mg. of Alpha Lipoic Acid per day for nerve pain.
Has anybody tried this?
After 14 yrs. living with MS I doubt I will ever find relief but I keep trying.
Its been a long time since I have posted on here and I think I have missed much.
by lovebug
Sat Dec 30, 2017 10:48 am
Forum: Drug Pipeline
Topic: MSRV Retrovirus, phase 2
Replies: 76
Views: 44552

Re: MSRV Retrovirus, phase 2

Maybe this is what many of us have been waiting for
Can you imagine ?
by lovebug
Sun Dec 03, 2017 9:51 pm
Forum: General Discussion
Topic: Can I have MS and Gout both?
Replies: 8
Views: 2627

Re: Can I have MS and Gout both?

Its been a long time JIMMYLEGS !!! Thank you for your help again.
How have you been doing with MS ?
by lovebug
Sat Dec 02, 2017 10:59 pm
Forum: Avonex
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 8
Views: 10877

Re: New Blood Test Predicts Who Will Benefit From Interferon

Has anybody heard anymore news on this blood test ?
Sorry I have been away from this site for quite awhile.
by lovebug
Sat Dec 02, 2017 10:47 pm
Forum: General Discussion
Topic: Can I have MS and Gout both?
Replies: 8
Views: 2627

Re: Can I have MS and Gout both?

Oh yes you can have Gout and MS !!! I am living proof. I actually was diagnosed with Gout several years earlier than my MS diagnosis. I have had surgeries now on my both big toes and possibly in the future surgeries on my both thumbs. I have extensive damage in my joints from years of Gout. All of m...
by lovebug
Mon Jan 04, 2016 8:47 am
Forum: General Discussion
Topic: Benfotiamine
Replies: 20
Views: 7392

Re: Benfotiamine dosage ?

Does anybody have an idea as to what might be a `safe` dosage to at least start taking Benfotiamine on ?
by lovebug
Sun Jan 04, 2015 9:43 pm
Forum: Drug Pipeline
Topic: Neuropathy Treatment Group--I.D.--Wes Jones -President
Replies: 1
Views: 2556

Neuropathy Treatment Group--I.D.--Wes Jones -President

Has anybody tried these pills for neuropathy treatment? Has it been beneficial or not ? It seems as these pills are different vitamin B forms `ramped up` and into one pill. Does anybody think that this might be harmful for MS patients to take due to the fact that it might be a immune enhancer? :roll:
by lovebug
Fri Nov 15, 2013 6:40 am
Forum: Drug Pipeline
Topic: Rosiglitazone
Replies: 0
Views: 1764

Rosiglitazone

Has anybody tried Rosiglitazone (diabetes drug) for the treatment of nerve pain? It blocks the PPAR-gamma. Whatever that means.
by lovebug
Thu Oct 31, 2013 7:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell
Replies: 3
Views: 1899

Re: Barb Farrell

Does anybody know how Barb is doing these days? Any news. Have I missed it somewhere else?
by lovebug
Mon Aug 05, 2013 8:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MRV for $500 in FL
Replies: 3
Views: 1173

Re: MRV for $500 in FL

Do you know where in Tampa, Florida they are offering this MRV ?
by lovebug
Sat Aug 03, 2013 8:16 pm
Forum: General Discussion
Topic: Your description of the "MS Hug"
Replies: 13
Views: 15703

Re: Your description of the "MS Hug"

My MS Hug has been going on for about 4 years. It stretches all the way around the top of my ribs in a circle to my back. It is like wearing a belt and constantly tightining it. It just does not go away! I am at an end as to what to do about the pain. I have honestly tried so many things but nothing...
by lovebug
Fri Jul 26, 2013 8:37 pm
Forum: Drug Pipeline
Topic: Botox for MS Hug
Replies: 1
Views: 2061

Botox for MS Hug

Has anybody tried Botox injections for the MS Hug ? Was it successful or not ?

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