Search found 9284 matches

by Cece
Tue May 28, 2019 5:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 57164

Re: Improvement reports

https://www.theobserver.ca/2014/07/31/multiple-sclerosis-symptoms-ebbing-after-liberation-therapy-man-says/wcm/74313f00-ac10-1474-84bc-e920911334d1 "I was saying before ‘if death was a 10, I feel like a nine,’" said the 35-year-old. Now, he said, "I feel probably a five." The blurriness in his visio...
by Cece
Tue May 28, 2019 5:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 57164

Re: Improvement reports

https://www.everydayhealth.com/columns/ms-fitness-challenge/one-time-champion-powerlifter-with-ms-training-compete-again/ MG: I feel I am truly a miracle. I had two CCSVI [chronic cerebrospinal venous insufficiency] treatments and changed my entire lifestyle. She doesn't really say how the CCSVI pro...
by Cece
Thu May 23, 2019 5:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 57164

Re: Improvement reports

https://www.cbc.ca/news/canada/ottawa/discredited-ms-treatment-patient-researcher-impact-1.3809026 "[My doctor] believes that everything I've done is a fad. That's his word … it's a little dismissive," said Penny Setterfield. The 62-year-old Ottawa woman went to New York for liberation therapy in 20...
by Cece
Thu May 23, 2019 5:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 57164

Re: Improvement reports

https://www.cbc.ca/news/canada/ottawa/d ... -1.3809026
Despite research suggesting CCSVI doesn't play a role in MS, D'Eon said she feels ongoing benefits from the treatment, and thinks others could as well.
by Cece
Thu May 23, 2019 4:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Role of cerebral hypoperfusion in MS
Replies: 5
Views: 320

Re: Role of cerebral hypoperfusion in MS

alright, never mind, I am going to take PQQ

I keep thinking what I need to do is exercise more but it is hard to do that consistently!
by Cece
Tue May 21, 2019 12:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dayton Interventional Radiology
Replies: 7
Views: 256

Re: Dayton Interventional Radiology

viewtopic.php?t=19478

No recent reports but here's a few from 2012. Is it still Dr. Syed?
by Cece
Tue May 21, 2019 12:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cerebral blood-flow clinical trial
Replies: 2
Views: 170

Re: Cerebral blood-flow clinical trial

Bosentan, interesting!

https://en.wikipedia.org/wiki/Bosentan

I would try it if it were available.
by Cece
Mon May 06, 2019 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 66000

Re: Notes from CureIous' at Stanford

Where is the migrated stent lodged? Not the heart but an artery feeding the lungs? I would be so mad, not at it happening but that you weren't informed and options considered back when there were options.
by Cece
Mon Dec 24, 2018 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cerebrospinal fluid flow is reduced in MS
Replies: 1
Views: 601

Re: cerebrospinal fluid flow is reduced in MS

Overall, these results indicate that dynamic 11C-PiB PET can be used to observe pathological changes in cerebrospinal fluid dynamics and that cerebrospinal fluid-mediated clearance is reduced in Alzheimer's disease and multiple sclerosis compared to healthy controls. So something called a dynamic 1...
by Cece
Mon Dec 24, 2018 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 2236

Re: CCSVI procedure failed...

jimmylegs I love how knowledgeable you are about nutrients and vitamins
good luck and merry christmas to all
by Cece
Mon Dec 17, 2018 11:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI procedure failed...
Replies: 25
Views: 2236

Re: CCSVI procedure failed...

the CTA don't show (IJV + brachiocephalic vein junction) That would be the primary area that would need to be seen and the most likely area where you were treated during angioplasty. Sigh. You could still benefit from a doppler of that area but it doesn't seem like your doctor is onboard. Anyway, t...
by Cece
Sun Dec 16, 2018 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: eye research supporting CCSVI
Replies: 1
Views: 873

eye research supporting CCSVI

https://eandv.biomedcentral.com/articles/10.1186/s40662-018-0123-0 Microvascular blood flow velocities measured with a retinal function imager: inter-eye correlations in healthy controls and an exploration in multiple sclerosis Conclusions Inter-eye arteriolar and venular BFVs do not differ signifi...