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by Cece
Wed Jan 05, 2022 8:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dialysis like blood treatment called HELP apheresis
Replies: 0
Views: 2084

Dialysis like blood treatment called HELP apheresis

https://www.google.com/amp/s/amp.thegua ... microclots

There's a treatment called HELP apheresis that filters microclots and inflammatory platelets out of the blood. I wonder if that could help in MS or CCSVI?
by Cece
Sun Jul 14, 2019 7:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bidirectional flow in the fine veins
Replies: 8
Views: 3565

Re: Bidirectional flow in the fine veins

How was it received at ISNVD? Did you get any useful feedback? It also seems to me that, for it to be venosclerosis, then it is not a variant of normal, but it is actually abnormal. Early on some of the abnormalities were dismissed as within the vast normal spectrum seen for veins. But venosclerosis...
by Cece
Sat Jul 13, 2019 12:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: twisty jugular vein image
Replies: 1
Views: 2533

twisty jugular vein image

https://link.springer.com/article/10.10 ... 018-1616-9
Image

What is going on there? How does a jugular vein get all twisty like that?
by Cece
Fri Jul 12, 2019 9:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bidirectional flow in the fine veins
Replies: 8
Views: 3565

Re: Bidirectional flow in the fine veins

https://www.omicsonline.org/open-access/the-pathology-of-the-internal-jugular-vein-wall-in-multiple-sclerosis-2376-0389-1000160.php?aid=63610 From Zamboni on the pathology of the IJV: Stuck, immobile valve leaflets were observed in clinical practice on MS patients in course of catheter venography, e...
by Cece
Fri Jul 12, 2019 12:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bidirectional flow in the fine veins
Replies: 8
Views: 3565

Re: Bidirectional flow in the fine veins

I did a site search here and this is the first time we've discussed vortex flow using the phrase "vortex flow" although reflux seems to be the same concept. I found a good breakdown of the differences between laminar flow, turbulent flow and vortex flow: http://mriquestions.com/laminar-v-t...
by Cece
Thu Jul 11, 2019 10:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Predicting the Aqueductal Cerebrospinal Fluid Pulse
Replies: 0
Views: 2464

Predicting the Aqueductal Cerebrospinal Fluid Pulse

https://www.mdpi.com/2076-3417/9/10/2131/htm Meanwhile from Dr. Beggs... this was published in May of this year. Venous flow in the neck is the strongest predictor of the aCSF pulse. The cerebrospinal fluid (CSF) pulse in the Aqueduct of Sylvius (AoS) (the aqueductal CSF (aCSF) pulse) is closely lin...
by Cece
Thu Jul 11, 2019 10:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bidirectional flow in the fine veins
Replies: 8
Views: 3565

Re: Bidirectional flow in the fine veins

That's a new idea in the second paper. Rather than saying the bad valves cause bad flow, you are saying the bad flow may be causing bad valves and septum and etc. It's not even bad flow precisely but vortex flow that would be naturally occurring when the jugulars encounter a junction with a larger v...
by Cece
Mon Jul 08, 2019 8:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bidirectional flow in the fine veins
Replies: 8
Views: 3565

Bidirectional flow in the fine veins

https://www.sciencedirect.com/science/a ... T-_0UrPAc0

A physics derived explanation for what having blocked jugular veins does to the blood vessels of the brain
by Cece
Thu Jul 04, 2019 5:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 42
Views: 22807

Re: Is Dr. Sclafani still around? damn right

Let me state emphatically, that there is good basic science into the effects of venous outflow disruptions, there is good evidence of safety for these procedures The truth is that the negative press and the witchhunting done against other caring physicians led my employer to make a business decisio...
by Cece
Tue May 28, 2019 5:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 83829

Re: Improvement reports

https://www.theobserver.ca/2014/07/31/multiple-sclerosis-symptoms-ebbing-after-liberation-therapy-man-says/wcm/74313f00-ac10-1474-84bc-e920911334d1 "I was saying before ‘if death was a 10, I feel like a nine,’" said the 35-year-old. Now, he said, "I feel probably a five." The blu...
by Cece
Tue May 28, 2019 5:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 83829

Re: Improvement reports

https://www.everydayhealth.com/columns/ms-fitness-challenge/one-time-champion-powerlifter-with-ms-training-compete-again/ MG: I feel I am truly a miracle. I had two CCSVI [chronic cerebrospinal venous insufficiency] treatments and changed my entire lifestyle. She doesn't really say how the CCSVI pro...
by Cece
Thu May 23, 2019 5:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 83829

Re: Improvement reports

https://www.cbc.ca/news/canada/ottawa/discredited-ms-treatment-patient-researcher-impact-1.3809026 "[My doctor] believes that everything I've done is a fad. That's his word … it's a little dismissive," said Penny Setterfield. The 62-year-old Ottawa woman went to New York for liberation the...
by Cece
Thu May 23, 2019 5:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 83829

Re: Improvement reports

https://www.cbc.ca/news/canada/ottawa/d ... -1.3809026
Despite research suggesting CCSVI doesn't play a role in MS, D'Eon said she feels ongoing benefits from the treatment, and thinks others could as well.
by Cece
Thu May 23, 2019 4:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Role of cerebral hypoperfusion in MS
Replies: 5
Views: 3551

Re: Role of cerebral hypoperfusion in MS

alright, never mind, I am going to take PQQ

I keep thinking what I need to do is exercise more but it is hard to do that consistently!

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