Search found 33 matches
- Sun May 19, 2013 9:17 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Symptoms right after 1st HICY infusion?
- Replies: 1
- Views: 5705
Symptoms right after 1st HICY infusion?
Hello, I am currently undergoing HSCT (Hematopoietic Stem Cell Transplantation) with Dr Burt in Chicago which also involves large doses of chimo - cyclophosphomide like revimunne. I had my first dose of chimo on Monday and was discharged to the local hotel afterwards.I have posted in the HSCT sectio...
- Sat May 18, 2013 8:37 am
- Forum: Stem Cells
- Topic: BEGAN HSCT - 5/13/13
- Replies: 4
- Views: 2799
BEGAN HSCT - 5/13/13
Hello, I am currently undergoing HSCT in Chicago. I had my first dose of chimo on Monday and was discharged to the local hotel afterwards. Today I started the neuropen shots and the antibiotics. My stem cells will be harvested on Thursday next week. Here is the thing: My MS has flared up somewhat af...
- Thu Feb 09, 2012 5:09 pm
- Forum: Medical Devices
- Topic: Terry Wahls and using a neuromusular Aide: The 300 PV EMP
- Replies: 23
- Views: 30405
Re: Terry Wahls and using a neuromusular Aide: The 300 PV EM
Hello, everyone! I was very impressed by Dr Wahl's recovery and I am planning on starting her diet. I would also like to do the neuromuscular stimulator she used. But I read she first used the 300 PV and then she switched to TDR68 in order to facilitate both the the number of minutes and muscle grou...
- Thu Apr 29, 2010 11:26 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI in Bulgaria
- Replies: 1107
- Views: 266461
Hi again, I am a bit surprised to hear Dr Zamboni has been there in Nov. last year as I was in communication with them in Dec. and I wasn't told that Dr Zamboni has been there. They said this was something experimental and they were going to do Bulgarian patients first and start taking foreigners in...
- Thu Apr 29, 2010 7:31 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI in Bulgaria
- Replies: 1107
- Views: 266461
Hello all, As a person with MS who has been going through a lot of suffering I stand behind the information about Bulgaria that I gave you earlier. It is nice that other people's friends are trying to translate too but it worries me that the info is different from what I have read, for instance the ...
- Tue Apr 27, 2010 5:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI in Bulgaria
- Replies: 1107
- Views: 266461
Hi all, Yes I speak Bulgarian and reread the forum for you carefully and took notes. First of all the doctors are really very good and the best ones in Bulgaria. Someone on the forum said about them “kind, considerate, caring, great team, excellent professionals”, another person said about the surge...
- Mon Apr 26, 2010 2:23 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI in Bulgaria
- Replies: 1107
- Views: 266461
Hello, Have you tried going on a Bulgarian MS forum? As far as I know they have had between 20 and 30 patients and at least 3 on the forum complained they got thrombosis. (I am wondering how common this is in Dr Dake's patients who got stents?) One guy wrote there he had a great improvement but the ...
- Sun Feb 21, 2010 1:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI scanned in UK
- Replies: 20
- Views: 6378
- Sun Feb 21, 2010 1:29 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: My doctor is on the NMSS board for review
- Replies: 15
- Views: 5960
- Sun Feb 21, 2010 12:35 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI in Bulgaria
- Replies: 1107
- Views: 266461
Hi Anna, Congratulations for getting an appointment! I am also waiting to be contacted by someone (I have given my info to Buffalo, Albany, Georgetown, Poland, UK - two clinics). I am anxiously waiting to hear from someone from any of these places but at the same time I am concerned if I will make t...
- Sat Feb 20, 2010 1:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Skype
- Replies: 6
- Views: 2793
- Fri Feb 19, 2010 4:42 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: More on iron chelation
- Replies: 49
- Views: 18403
- Fri Feb 19, 2010 4:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: More on iron chelation
- Replies: 49
- Views: 18403
Thanks for the advice, L! I will definitely look for a Green Tea supplement! And thank you, Zina, for sharing what you have found out about IP6 as well as for the advice about soaking food! I have tried soaking nuts, seeds and rice and they are much tastier and much healthier! I also wanted to point...
- Fri Feb 19, 2010 3:34 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Petition for CCSVI Treatment to be Recognized by your Govnt
- Replies: 0
- Views: 1805
Petition for CCSVI Treatment to be Recognized by your Govnt
Dear friends, Recently I read a great article posted by Markus77 for which I am very thankful to him and which is actually a petition for a faster approval of CCSVI treatment by various countries. However, I noticed that not many people have signed it (less than 1000 for the US) and that it is not v...
- Fri Feb 19, 2010 11:41 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: biogen and ccsvi
- Replies: 26
- Views: 8270
It won't be long before Biogen and Teva stocks sink! I'd suggest that their investors look around and realize that CCSVI is a revolutionary breakthrough discovery that will forever change the way MS is diagnosed and treated!!! Their investors must seriously consider selling. Only little research is ...