Search found 19 matches

by ShakyJay
Wed Feb 09, 2011 3:43 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: I have the Infection....
Replies: 8
Views: 4589

Shaky Jay, Something seems not right in your post. Did your neuro tell you specifically that you had PML and then sent you home! Or did your neuro tell you that you had the 'rebound effect' and maybe used the word IRIS? It seems strange to me, as a former longterm user of Tysabri, and a close reade...
by ShakyJay
Sun Jan 30, 2011 6:29 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: I have the Infection....
Replies: 8
Views: 4589

Re: I have the Infection....

ShakyJay, I'm saddened to hear about the change in your status in getting PML. I realize that you must be in a state of shock from the news and the rapid decline in your health. However, I hope that you can stay focused to follow your doctor's guidelines so that you can recover to a more stable sta...
by ShakyJay
Sun Jan 30, 2011 12:58 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: I have the Infection....
Replies: 8
Views: 4589

I have the Infection....

So I just returned from my Neuro out in Colorado, and it is official... I have the "rare" brain infection. I have only been on Tysabri for a little over a year. I had no idea about the rebound effect, this was never told to me before starting. I knew about the odds of the the PML and I was...
by ShakyJay
Sat Aug 21, 2010 4:27 pm
Forum: General Discussion
Topic: What do you do for energy?
Replies: 3
Views: 1820

FORCE yourself into daily excersize. Whatever it is you are able to do, just do it, regularly. You will have more energy during the day and sleep better at night. If I miss it for a few days, I can feel my body exhaustion starting to kick back in. I have to agree with this...Although it is hard som...
by ShakyJay
Sat Aug 21, 2010 4:18 pm
Forum: Introductions
Topic: newbi :o)
Replies: 4
Views: 1558

Welcome!! Lots of good info here.
by ShakyJay
Sun Jul 18, 2010 6:42 pm
Forum: Daily Life
Topic: Student loan questions, please help
Replies: 12
Views: 5322

Yeah I am trying to buy a house now, this renting thing does not make sense anymore, and they have shot my credit to heck over the past year...so I don't know what to do. I didn't think that bankruptcy took care of federal loans? But even if it did I think that I need to get a house before even look...
by ShakyJay
Sat Jul 17, 2010 10:29 pm
Forum: Exercise and Physical Therapy
Topic: Running with MS
Replies: 21
Views: 27021

Those of you that run, do you struggle with spasticity? I have painful spasticity and work hard at keeping it under control. I tried running this week, just a little then walked mostly. Want to start a running plan for myself, but not sure the spasticity mixes well with that idea. Went and saw my n...
by ShakyJay
Mon Jul 05, 2010 10:46 am
Forum: Daily Life
Topic: Student loan questions, please help
Replies: 12
Views: 5322

Ah...so that's what I was looking for, thanks gothic!!
by ShakyJay
Mon Jul 05, 2010 10:06 am
Forum: Daily Life
Topic: Student loan questions, please help
Replies: 12
Views: 5322

Yeah I have not had a drop of alcohol in over 8months and have completely changed my eating habits and working out habits, I know that all this is great, but it still defers from the fact that I have 90g in debt for something that I can't do. This was something that I went through about 4 years ago,...
by ShakyJay
Mon Jul 05, 2010 4:19 am
Forum: Daily Life
Topic: Student loan questions, please help
Replies: 12
Views: 5322

i think you could still be a chef depending on your signs symptoms and progression to date, and also whether you are open to some of the diet and lifestyle changes that help so many with ms. alternately what about doing something along the lines of dietitian/nutritionist, or food journalism? what i...
by ShakyJay
Sun Jul 04, 2010 10:00 pm
Forum: Introductions
Topic: Newbie here..
Replies: 6
Views: 2036

Welcome to the site!
by ShakyJay
Sun Jul 04, 2010 9:52 pm
Forum: Daily Life
Topic: Student loan questions, please help
Replies: 12
Views: 5322

Student loan questions, please help

So I am not going to go into too many details, but I will give a brief overview of my problems, hopefully someone can help with my problem. I went to culinary school down in Texas, graduated with honors got offered a great job making a great salary, packed my bags went to graduation, three days late...
by ShakyJay
Sun Jul 04, 2010 9:39 pm
Forum: Exercise and Physical Therapy
Topic: I LOST 45LBS!!!
Replies: 1
Views: 4803

I LOST 45LBS!!!

So I know that I have been hit or miss on the forums here, honestly it is my fault, and I have no one to blame but myself. But I just wanted to share a little story to some of those and hopefully give some of those who need a little encouragement. About six months ago (January) I switched neurologis...
by ShakyJay
Sun Jan 31, 2010 12:47 pm
Forum: General Discussion
Topic: What do I do??? Please help...
Replies: 7
Views: 1946

Thanks lynda, I guess that I am just frustrated at the whole situation...I hate feeling helpless and not knowing what to do to resolve the problem. I think that I am going to rest today, as the steroid treatment made me kind of exhausted for some reason. I know that there is a great debate on steroi...
by ShakyJay
Sun Jan 31, 2010 12:10 pm
Forum: General Discussion
Topic: What do I do??? Please help...
Replies: 7
Views: 1946

I was on the swank diet and lived by it religously for about a year. I think that it helped, but I still had a relapse while I was on it. Now I just watch what I eat, limit my red meat intake, and supplement it with vitamins. I think all these things are great but it does answer the original questio...

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