Search found 82 matches

by ppicklee
Wed Sep 08, 2010 1:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Globe and Mail article: The cure for MS includes...
Replies: 25
Views: 5194

Got to love...

gotta love this dialogue. I am one who is just this side of EDSS 10 (the scale doesn't go higher than 10 so I guess that means......) and I would like the opportunity to choose or refuse service. I'm trying to find some one to try a "Liberation" on me. I will hope and I can try. Right?
by ppicklee
Wed Sep 08, 2010 1:04 pm
Forum: General Discussion
Topic: IT IS A ROUGH DAY...
Replies: 15
Views: 4317

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No problem jimmylegs. I have done so much that this hard to keep straight but I will tell you what I can. Started with Rebif (insert long story here. Ironic ha ha.) Was offered a baclofen pump install into my tummy to which I said no thanks. Then I did some oral chemotherapy. Then some special order...
by ppicklee
Wed Sep 08, 2010 10:23 am
Forum: General Discussion
Topic: IT IS A ROUGH DAY...
Replies: 15
Views: 4317

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Thank you Jimmylegs but... nope. I would do a little mj spray (even though I am a self-confessed control freak) but I can't use my hands. Buck up P, I said to myself... buck up.
by ppicklee
Wed Sep 08, 2010 7:49 am
Forum: Medical Marijuana
Topic: Cannabis may relieve chronic nerve pain
Replies: 13
Views: 4129

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I have done the mj in herb form, then the spray form also. But truth be told I did not like where it put my head space. Guess I am too much of a control freak. Ya think?? :-)
by ppicklee
Tue Sep 07, 2010 5:03 pm
Forum: General Discussion
Topic: IT IS A ROUGH DAY...
Replies: 15
Views: 4317

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Crap... now I'm crying. Voice command hates crying! Thank you Lyndacarol & Mirry!. Your words of encouragement... sweet balm for this aching wound. Thank you!!
by ppicklee
Tue Sep 07, 2010 1:50 pm
Forum: General Discussion
Topic: IT IS A ROUGH DAY...
Replies: 15
Views: 4317

IT IS A ROUGH DAY...

IT'S A ROUGH DAY... please please understand me, it is a really rough day. I'm not having a pity party just a really rough time. I have lots to be thankful for. And I am... I am truly thankful for the many many things I've been given. A wonderful husband, wonderful friends, wonderful family etc. So ...
by ppicklee
Mon Sep 06, 2010 2:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No progressive patients in the Quwait study?
Replies: 13
Views: 2966

PPMS ?

I'm really interested in this too. Does anyone have any info? Thanks!
by ppicklee
Sat Sep 04, 2010 12:48 pm
Forum: Introductions
Topic: Newbie
Replies: 1
Views: 1310

Welcome

Hi tejana971 welcome to the site. Yes this site is a wealth of information. I trust that you will find it very useful. Again... welcome and feel free to ask your questions and get some dialogue going. :-)
p
by ppicklee
Thu Sep 02, 2010 12:41 pm
Forum: Introductions
Topic: diagnosed 1996 just joining thisisms
Replies: 10
Views: 2587

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PS -- itunes is very voice command friendly
by ppicklee
Thu Sep 02, 2010 12:32 pm
Forum: Introductions
Topic: diagnosed 1996 just joining thisisms
Replies: 10
Views: 2587

Mud?? Scottysue and I are talking

Remember what I said about me and my husband laughing that a Mercedes was cheap?? It is cheap compared to this. Anyways... technology is awesome. I have all that you spoke about. Keep those suggestions coming :-)
p
by ppicklee
Wed Sep 01, 2010 2:22 pm
Forum: Introductions
Topic: Hello - New Member
Replies: 4
Views: 1807

Intros

Welcome ybt! Nice to have you. Really nice to see another Canadian. Me too! Winnipeg. I was diagnosed in 1993. Now I'm PPMS. So you got the good end of the stick :-). Just joking around. It's true... sometimes this just does suck more than other times. You sound like you have had quite the run in wi...
by ppicklee
Wed Sep 01, 2010 12:06 pm
Forum: Introductions
Topic: diagnosed 1996 just joining thisisms
Replies: 10
Views: 2587

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Scottysue. Please never apologize for a long story. I think we are all here to support each other. If you need to vent. Vent. It is safe and I will listen. I basically go to my neurologist to appease my long-term disability claim. The course that I have been on is not "sexy" enough. By &qu...
by ppicklee
Thu Aug 26, 2010 1:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: info@health.gov.sk.ca
Replies: 13
Views: 2892

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AMcG & Scottysue -- I too share your disquiet. We have great, informative, knowledgeable doctors in this country and I find it a great shame that people feel the need to look elsewhere for treatment. I am more than willing to sign a waiver if that is what is required. Can somebody please tell me...
by ppicklee
Thu Aug 26, 2010 1:34 pm
Forum: Introductions
Topic: diagnosed 1996 just joining thisisms
Replies: 10
Views: 2587

Continuing......

Scottysue -- I was diagnosed 1993. It's been a progression and now I'm a quad. I know what you mean about $$$. My husband and I just laugh and say... a BMW... that is cheap. :-) AMcG -- this is great news. I'm so happy for you that you seem to be breathing deeper and if you don't mind me saying so.....
by ppicklee
Wed Aug 25, 2010 11:30 am
Forum: Introductions
Topic: diagnosed 1996 just joining thisisms
Replies: 10
Views: 2587

Good to have you

Just wanted to say hi mud and welcome. :-) I'm sorry but I can't answer all of your questions about breathing. I can only speak about my own experience and that I'm just becoming short of breath now. It has been a long road and I am glad that the breathing thing has only started recently. Do whateve...

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