Search found 28 matches
- Wed Jan 11, 2012 2:16 am
- Forum: Copaxone
- Topic: Thinking About Going Off Copaxone
- Replies: 17
- Views: 22519
Re: Thinking About Going Off Copaxone
I stopped copaxone after finding out I was asymptomatic for a chronic bacteria implicated in MS. Chalmydia Pneumoniae. You can look it up under 'antibiotics'. I was always a healthy person, however childhood asthma and respiratory infection prior to 1st MS relapse made me think something more sinist...
- Wed Jan 11, 2012 2:11 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How are you doing since treatment??
- Replies: 35
- Views: 7500
Re: How are you doing since treatment??
I'm doing fantastic. ALL symptoms gone. I have gone from not being able to work ---------to working FULL TIME!! without fatigue or tiredness. It's nice to experience 'normal' people tiredness for once instead of lassitude. I follow Terry Wahls diet (hard but well worth it) and I crossfit to maintain...
- Thu Aug 26, 2010 7:27 am
- Forum: Copaxone
- Topic: I think copaxone is beginning to work..
- Replies: 1
- Views: 3665
I think copaxone is beginning to work..
Hey all, I've been told by shared solutions + neurologist that copaxone will begin to work after 9 or so months of continuous use, however, i think i can confidently say after 8 months 2 weeks it has officially begun working. The reason i say that is i had a relapse Aug 2009-November 2009, December ...
- Sat Jul 31, 2010 7:27 pm
- Forum: General Discussion
- Topic: Had to give up Masters degree to MS..
- Replies: 9
- Views: 2850
Thanks L!! I asked about deferring - they do not offer deferrment as this year is the last year it is being offered, and anyone beginning the course must complete it by december 2011. That's okay, theres other ways around it. I can just reapply after my procedure, but when youre studying - all you w...
- Sat Jul 31, 2010 8:48 am
- Forum: Copaxone
- Topic: How long does Copaxone take to work?
- Replies: 8
- Views: 16471
i manually inject. i had gone interstate and realised i left my autoinject at home. i should mention that my original autoinject was faulty, the needle was entering my skin at an angle and it HURRTT! ANyway. I had no choice but to manually inject for the 7 days awayy from home. i found that i did no...
- Fri Jul 30, 2010 3:45 am
- Forum: General Discussion
- Topic: Had to give up Masters degree to MS..
- Replies: 9
- Views: 2850
Thanks everyone! your posts have made me realise that I DID make the correct decision - I never thought about the ability to re-apply! duh to me! Anyway, I feel a little better today. Dahlia - that is a fantastic achievement!! I would love to do that too - infact with this whole CCSVI issue, I wante...
- Thu Jul 29, 2010 5:43 am
- Forum: General Discussion
- Topic: Had to give up Masters degree to MS..
- Replies: 9
- Views: 2850
Had to give up Masters degree to MS..
hey all, I feel terrible, so I am seeking solace. I had to give up an offer to begin a Master's in Science today to someone better equipped to endure it. I'm 23, dx 7 months, but symptoms began 2004, and I have absolutely NO mental clarity at all! Restful nights sleep, 10 hours, naps during the day,...
- Tue Jul 27, 2010 10:20 pm
- Forum: Regimens
- Topic: My regimen
- Replies: 13
- Views: 4616
Just a question. How do you manage to sleep at night with 400mg Coenzyme Q10? I use it to give me energy during the day and fight fatigue. It actually boosts oxygen concentration around the body - especially the brain - which results in an increase of energy. Pretty interesting stuff. Good for you f...
- Tue Jul 27, 2010 5:25 pm
- Forum: Copaxone
- Topic: loss of appetite on copaxone
- Replies: 5
- Views: 7845
- Tue Jul 27, 2010 5:20 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Iron in the Brain
- Replies: 2
- Views: 2123
- Tue Jul 27, 2010 6:50 am
- Forum: General Discussion
- Topic: MS lassitude what do you do?
- Replies: 9
- Views: 2891
My answer probably wont be helpful, but I CANT seem to function when ive been delegated a task. If i am left at my free will - i can do ANYTHING! However, lassitude is horrible. but thanks to the occupational therapist at the MS society, i rest quite frequently (2-3 naps a day) and i havent hit lass...
- Tue Jul 27, 2010 6:43 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: POV - "Chronic cerebrospinal venous insufficiency and M
- Replies: 6
- Views: 2737
POV - "Chronic cerebrospinal venous insufficiency and M
Has anybody read this article?! by the way, it's a "point of view", so i dont even know how the BLEEP it got published in the Annals of Neurology - oh, wait, Annals of Neurology ?! oh, THAT's how this rubbish managed to get published! Man, I should REALLY use my brain a little bit more hey...
- Tue Jul 27, 2010 4:58 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI: Rant about neurologists
- Replies: 31
- Views: 7769
wow i didnt realise this thread would receive such an overwhelming response. I am quite proactive in getting the CCSVI word out. even my GP offered to refer me to an IR before i had even asked! i think he's a keeper. He did say the government has put a lot of red tape over the medical field, so its ...
- Sun Jul 25, 2010 7:36 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI: Rant about neurologists
- Replies: 31
- Views: 7769
CCSVI: Rant about neurologists
I am sooooo angry with neurologists right about now, well, specifically MY one(s). My initial neurologist - who i am still seeing - called me a "damn hippy" for following the Swank Diet for starters. Then simply brushed off CCSVI cause "vascular surgeons are not neurologists" yet...