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I stopped copaxone after finding out I was asymptomatic for a chronic bacteria implicated in MS. Chalmydia Pneumoniae. You can look it up under 'antibiotics'. I was always a healthy person, however childhood asthma and respiratory infection prior to 1st MS relapse made me think something more sinist...

I'm doing fantastic. ALL symptoms gone. I have gone from not being able to work ---------to working FULL TIME!! without fatigue or tiredness. It's nice to experience 'normal' people tiredness for once instead of lassitude. I follow Terry Wahls diet (hard but well worth it) and I crossfit to maintain...

Hey all, I've been told by shared solutions + neurologist that copaxone will begin to work after 9 or so months of continuous use, however, i think i can confidently say after 8 months 2 weeks it has officially begun working. The reason i say that is i had a relapse Aug 2009-November 2009, December ...

Thanks L!! I asked about deferring - they do not offer deferrment as this year is the last year it is being offered, and anyone beginning the course must complete it by december 2011. That's okay, theres other ways around it. I can just reapply after my procedure, but when youre studying - all you w...

ms nurse and neurologist said 9 months before it begins to work as an activated chemical in the boy but we all have different physiology, could be 6 for some, or 12 months for others

stick to it its been the most efficacious of them all`

i manually inject. i had gone interstate and realised i left my autoinject at home. i should mention that my original autoinject was faulty, the needle was entering my skin at an angle and it HURRTT! ANyway. I had no choice but to manually inject for the 7 days awayy from home. i found that i did no...

Thanks everyone! your posts have made me realise that I DID make the correct decision - I never thought about the ability to re-apply! duh to me! Anyway, I feel a little better today. Dahlia - that is a fantastic achievement!! I would love to do that too - infact with this whole CCSVI issue, I wante...

hey all, I feel terrible, so I am seeking solace. I had to give up an offer to begin a Master's in Science today to someone better equipped to endure it. I'm 23, dx 7 months, but symptoms began 2004, and I have absolutely NO mental clarity at all! Restful nights sleep, 10 hours, naps during the day,...

Just a question. How do you manage to sleep at night with 400mg Coenzyme Q10? I use it to give me energy during the day and fight fatigue. It actually boosts oxygen concentration around the body - especially the brain - which results in an increase of energy. Pretty interesting stuff. Good for you f...

I've lost about 8kg since beginning copaxone - january 2010. I have a suppressed appetite too it seems, but the high vit D someone mentioned might contribute as i am on the high end of the scale. Normal is 60-160 and i am 155 units/ml

What I had read last night was that neurologists are refuting the "iron overload" theory because MRI is supposed to detect iron causing oxidative damage. However, a few prominent studies found that weighted MRI detects highh iron concentration WITHIN the lesion - which is what you'd expect...

My answer probably wont be helpful, but I CANT seem to function when ive been delegated a task. If i am left at my free will - i can do ANYTHING! However, lassitude is horrible. but thanks to the occupational therapist at the MS society, i rest quite frequently (2-3 naps a day) and i havent hit lass...

Has anybody read this article?! by the way, it's a "point of view", so i dont even know how the BLEEP it got published in the Annals of Neurology - oh, wait, Annals of Neurology ?! oh, THAT's how this rubbish managed to get published! Man, I should REALLY use my brain a little bit more hey...

wow i didnt realise this thread would receive such an overwhelming response. I am quite proactive in getting the CCSVI word out. even my GP offered to refer me to an IR before i had even asked! i think he's a keeper. He did say the government has put a lot of red tape over the medical field, so its ...

I am sooooo angry with neurologists right about now, well, specifically MY one(s). My initial neurologist - who i am still seeing - called me a "damn hippy" for following the Swank Diet for starters. Then simply brushed off CCSVI cause "vascular surgeons are not neurologists" yet...