Search found 7 matches

by pukai
Mon Jun 24, 2019 5:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 42
Views: 23243

Re: Is Dr. Sclafani still around?

Dr Sclafani, this is the best news we have heard for quite a long time! The (scientific) situation here in Germany concerning CCSVI is devastating. A doctor willing to treat ascertained symptoms connected with jugulars (and therefore part of CCSVI) has big problems in justifying his decision.... At ...
by pukai
Fri Feb 24, 2017 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366796

Re: DrSclafani answers some questions

Hello Dr. Sclafani, I am very glad to see you writing again in this forum! A lot of things happened during the last months; I will send you a pm - please give me some more time. I think, many of us - posters and readers of this thread - have been waiting for "good" news from the ISNVD meet...
by pukai
Thu Oct 02, 2014 5:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366796

Re: DrSclafani answers some questions

Nutcracker Syndrome - CCSVI - Midline Congestion Syndrome - Venous Back Jets As I already wrote in my first post Thursday last week, in 2013, during my first treatment of stenosed jugular vein valves on both sides in Brooklyn, a severe Nutcracker syndrome was diagnosed. With IVUS, Dr. Sclafani found...
by pukai
Thu Oct 02, 2014 5:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366796

Re: DrSclafani answers some questions

The information I found here - that's what I can say for sure today - has changed my life as someone being at first diagnosed with a "mild" form of RRMS in 1997, which started to suddenly deteriorate since 2009. With "Cheerleader' s" first notes from the Bologna meeting, which I...
by pukai
Thu Oct 02, 2014 5:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366796

Re: DrSclafani answers some questions

Thank you, Marcus. You have succeeded as well as today's medicine can, and I hope you have very long-lasting results. The description of the problem with misdirected kidney drainage is very informative. Keep up the jogging! And thank you, too, Dr. Sclafani. Hello 1eye, i will try to give more infor...
by pukai
Thu Sep 25, 2014 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366796

Re: DrSclafani answers some questions

Dear TIMS - followers, dear Dr. Sclafani, my name is Marcus, I' m living in Germany, and I had the CCSVI treatment in Brooklyn including Nutcracker stenting in the beginning of this year. I have been what is called a "lurker" in this forum for almost exactly five years now, and for a long ...
by pukai
Thu Nov 14, 2013 7:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366796

Re: DrSclafani answers some questions

Dear Dr Sclafani,
congratulations from a long-time "lurker" from Germany for this very helpful thread and for taking your time for explanations! Please stick to your most appreciated commitment for patients and CCSVI!
Thank you very much and best wishes
- Marcus

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