Search found 39 matches

by Perky
Wed Apr 13, 2011 1:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Interesting article about artery-widening neck patch
Replies: 23
Views: 5428

Interesting article about artery-widening neck patch

I read this in the Daily Mail yesterday; http://www.dailymail.co.uk/health/article-1375833/How-patch-neck-Alzheimers-bay.html . Very interesting - I wonder if a similar treatment could be developed for the veins in CCSVI? It could possibly be a solution to the scarring/clotting problems associated w...
by Perky
Tue Feb 15, 2011 5:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 242923

I had my bed inclined for several months, through pieces of wood that my husband fixed to the bed, but got him to take them off around 3 months ago as I didn't feel it was working anymore, and I wanted a fancy headboard that didn't work with the inclined bed, and also I slept on a flat bed on holida...
by Perky
Mon Feb 14, 2011 6:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood flow and remission in MS: a new interpretation
Replies: 30
Views: 8042

Does anyone else have the urge to get hold of some poppers to sniff and see what happens? :?
by Perky
Mon Jan 10, 2011 1:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can Saunas be good for CCSVI?
Replies: 12
Views: 3588

I hear what you're saying about heat - I've experienced this too, but for me the issue is humidity more than temperature; I've holidayed in very hot but dry countries and have actually felt much better while there. It seems the university in the article has been using infrared saunas in its studies,...
by Perky
Sun Jan 09, 2011 3:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can Saunas be good for CCSVI?
Replies: 12
Views: 3588

Can Saunas be good for CCSVI?

I read an article today about saunas and blood flow; A daily 15-minute sauna could be the equivalent of taking regular exercise and save you from heart disease, Japanese scientists have found. Researchers at Kagoshima University discovered that two weeks after taking a sauna every day, a group of me...
by Perky
Mon Jan 03, 2011 6:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The thought of it grosses me out
Replies: 28
Views: 6683

Hi DenverCO. Do you mean that the thought of liberation/angioplasty/stents grosses you out? If so, I can certainly relate to that. I've always been squeamish about veins, and particularly ones that pulsate visibly and palpably such as those in the neck! For this reason I don't relish the thought of ...
by Perky
Mon Nov 29, 2010 7:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oxford Mail (England) and CCSVI
Replies: 2
Views: 1665

Well done Mark! I wish I had an MS centre like yours near to where I live.
by Perky
Fri Nov 26, 2010 2:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: initial results from Buffalo EVTMS study
Replies: 13
Views: 4456

I don't get it; why doesn't Dr Z think CCSVI causes MS? I can't see anything obvious in those results that would lead him to think that.
by Perky
Sat Nov 13, 2010 3:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Egypt in December.
Replies: 20
Views: 4633

I love Egypt and its warm and friendly people. Have you been before? If I were you, I would be very tempted to combine getting my veins widened with a relaxing week in Sharm!

Good luck to you, and I hope you see the very best results.
by Perky
Wed Nov 10, 2010 3:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a Doctor recommended to me today..
Replies: 5
Views: 2450

That is nice to hear, and very encouraging! I have been feeling a bit disappointed/negative about the liberation procedure lately, after hearing about mostly non-positive experiences, so this has made me feel a bit more hopeful. Thanks for sharing this with us! (and it's always nice to hear some UK-...
by Perky
Tue Jun 22, 2010 11:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Doppler result= No Stenosis, phlebography needed??
Replies: 12
Views: 2500

Can I ask where you were tested, adamt? I am interested as you mention the price in £'s.
by Perky
Mon Jun 21, 2010 11:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Patients stories and the tracking sticky!
Replies: 5
Views: 2403

I personally don't find the tracking sticky very 'reader friendly'; it is a bit tiresome wading through all the info on the entries to get to the important bit (ie whether liberation was successful or not!), and often you end up reading entries which detail cases that haven't even been tested or tre...
by Perky
Mon Jun 21, 2010 11:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Serbian Minister of Health approves CCSVI angioplasty
Replies: 31
Views: 13882

Excellent news! Thankyou for explaining that for us, Margom. Am I right in thinking CCSVI treatment is to be offered under what is Serbia's equivalent of the national health service in Britain, ie paid for by the state rather than privately by the patient?
by Perky
Wed Jun 16, 2010 1:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: One Month Update after seeing Dr Kostecki
Replies: 9
Views: 2889

What an lovely, uplifting post this is! Thankyou for sharing that with us.

I hope your improvements continue, and that more of us can experience the same in good time...
by Perky
Mon Jun 14, 2010 12:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Study casts doubts over vein blockages in people with MS
Replies: 69
Views: 18312

This really, really depresses me, especially as London hospitals were involved. I so hope it's flawed.

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