Search found 522 matches

by Donnchadh
Thu Feb 11, 2016 2:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Parkinson's and veins?
Replies: 1
Views: 1033

Parkinson's and veins?

I seem to recall seeing some images of a brain with Parkinson's disease with a vein connection.

But I can't seem to find the study so was hoping someone might recall it?

For a friend.

Donnchadh
by Donnchadh
Fri Jan 29, 2016 4:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are the stents holding up?
Replies: 16
Views: 2453

Re: How are the stents holding up?

Lucky break: my procedure has been moved up to 23 February.

Scared, worried, and hopeful!

Donnchadh
by Donnchadh
Thu Jan 14, 2016 1:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are the stents holding up?
Replies: 16
Views: 2453

Re: How are the stents holding up?

Got a call from my neurosurgeon's office about the procedure; it's scheduled for 29 February.

Leap Day; hope it's a lucky day for me.

Donnchadh
by Donnchadh
Tue Jan 05, 2016 10:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are the stents holding up?
Replies: 16
Views: 2453

Re: How are the stents holding up?

Some great news! A neurosurgeon who has done some vital procedures on me before, has agreed to do a procedure on the left internal jugular vein stenosis. It's going to be difficult because where the stenosis is located; at the skull base. "If I can open it up, and IF I can put a stent in, I will." T...
by Donnchadh
Tue Dec 29, 2015 10:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are the stents holding up?
Replies: 16
Views: 2453

Re: How are the stents holding up?

My stent in the right internal jugular vein implanted July 2015 is widely patent. Just had an ultrasound and the blood is draining nicely.

The left side is still untreated; ran into medical dogma stating "you only need one vein open" to survive.

Meanwhile my symptoms are getting worse.

Donnchadh
by Donnchadh
Mon Jul 27, 2015 10:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Study (satire)
Replies: 64
Views: 13790

Re: Wheelchair Study (satire)

Dr. Nero Oligist announced a major neurological finding, after reviewing fifty year old abstracts. "Wheelchairs only need one wheel to be effective, and insisting that both wheels be functional is misplaced," stated Dr. Nero Oligist. Followups tests were done with the world infamous NAKAJI brand of ...
by Donnchadh
Mon Jul 27, 2015 9:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Donnchadh: Update report; so close, yet so far.
Replies: 4
Views: 1487

Re: Donnchadh: Update report; so close, yet so far.

Right now, I am very sleepy. The trip has drained me physically and it was an emotional roller coaster ride. Will answer your questions later.

I have an appointment with Dr. Nero O.

Donnchadh
by Donnchadh
Sun Jul 26, 2015 6:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Donnchadh: Update report; so close, yet so far.
Replies: 4
Views: 1487

Re: Donnchadh: Update report; so close, yet so far.

I misspelled the doctor's name. It is Nakaji.

Donnchadh
by Donnchadh
Sat Jul 25, 2015 1:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Donnchadh: Update report; so close, yet so far.
Replies: 4
Views: 1487

Donnchadh: Update report; so close, yet so far.

I am posting this from Phoenix AZ because I had an appointment with Dr. Nakaji at the Barrow Neurological Institute. They require all your reports and test images to be sent to them before scheduling an office visit, with a review charge of $100 upright. Not covered by insurance. After waiting about...
by Donnchadh
Sun Feb 15, 2015 5:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 2896

Re: CCSVI Treatment for Primary Progressive MS?

Thank you Vesta and congratulations to Donnchadh (beautiful ancient Keltic name?). In my case the jugular veins showed severe malformations. The veins are substituted by veins taken from my leg. And two useless muscles that were blocking the flow were cut (I do not miss anything). Om the right side...
by Donnchadh
Fri Jan 30, 2015 5:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 2896

Re: CCSVI Treatment for Primary Progressive MS?

An update. The throat surgeon who assisted with the two earlier procedures to remove the bone spurs has agreed to assist with the vein graft but he needs a neurosurgeon to do the difficult part dealing with the sigmoid sinus. I have an appointment 19 February with a neurosurgeon to "pitch the idea" ...
by Donnchadh
Thu Dec 25, 2014 7:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New study: 83% of 552 pwMS have CCSVI
Replies: 12
Views: 1942

Re: New study: 83% of 552 pwMS have CCSVI

What would be typical external vein issues? External vein issues include entrapment of the jugular vein by the omohyoid muscle http://www.hindawi.com/journals/cris/2012/293568/ http://phl.sagepub.com/content/29/9/632.abstract or inpingement by the atlas or styloid process http://www.pubfacts.com/de...
by Donnchadh
Thu Dec 25, 2014 7:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 2896

Re: CCSVI Treatment for Primary Progressive MS?

I have been diagnosed as Primary Progressive MS by a neurologist. I started seeking CCSVI treatments in 2010 when it was considered an "underground" procedure because there was a lack of convincing case studies. In retrospect, I now know that there were EIGHT different things wrong with my neck. But...
by Donnchadh
Fri May 09, 2014 5:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New research- UV rays, nitric oxide and MS symptom relief
Replies: 48
Views: 8707

Re: New research- UV rays, nitric oxide and MS symptom relie

Interesting. Yesterday I had to wait outside for about a half hour for my Postmaster to arrive. Here in northern Illinois, it was the first day over 70 degrees and sunny. Usually, I rarely go outside. Today, my symptoms were a little bit better and I couldn't figure out why. It might have been due t...
by Donnchadh
Sat Feb 22, 2014 7:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568345

Re: DrSclafani answers some questions

Dr. Sclafani: Have you ever used a cutting balloon catheter on a venous stenosis? Or know someone else who has? Results, whether good or bad? Donnchadh Sorry for the delay. i havent gotten any notifications that I had notes to this thread I have used cutting wires, but not cutting balloons. It is m...