Search found 261 matches

by Rosegirl
Mon Mar 05, 2018 5:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Trigeminal Neuralgia, MS and Veins
Replies: 1
Views: 1138

Re: Trigeminal Neuralgia, MS and Veins

Dealing with problems of the trigeminal nerve (TN) is similar to the ongoing discussion of CCSVI. Are the veins really blocked, and if so, from the inside or from an outer impingement? Likewise, the TN exits the brain past the jaw, and the TMJ can act like a bone spur to cause irritation, either int...
by Rosegirl
Wed Oct 26, 2016 4:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 57715

Re: Improvement reports

I also had major improvements in that immediately after the procedure, I could read very small print. This has continued for years. My ophthalmologist said that these kinds of changes are common. The procedure changed the fluid pressure within the skull. When it normalized, the eyeball was no longer...
by Rosegirl
Fri Jun 03, 2016 4:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Atlas/TMJ treatment with Dr M Amir to negate CCSVI treatment
Replies: 12
Views: 6524

Re: Atlas/TMJ treatment with Dr M Amir to negate CCSVI treat

Aliki, You did not describe your symptoms, but here is a brief recap of my story. Like you, I am being treated by a holistic dentist and have already noticed some remarkable effects from treatment. For an overview of how a holistic dentist (not a general dentist) looks at treatment of so-called MS s...
by Rosegirl
Sat May 28, 2016 5:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1602192

Re: DrSclafani answers some questions

Does the ISNVD thought collective include other practitioners like dentists and ophthalmologists? Certainly, it takes a special kind of forward-thinking practitioner in the respective field, but their insights show an entirely different view of what happens inside the skull and beyond. For example, ...
by Rosegirl
Fri May 27, 2016 10:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1602192

Re: DrSclafani answers some questions

To follow up on Dr. Sclafani’s idea of “thought collectives”: Just as a headache might be a brain tumor, it is more likely from another cause. Maybe one just needs reading glasses. Or maybe a decongestant. Patients are often at the mercy of whatever “ologist” from whom they seek help. And if that “o...
by Rosegirl
Wed Dec 09, 2015 5:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Alternative Treatment/Therapies After Two Failed Treatments
Replies: 1
Views: 1189

Re: Alternative Treatment/Therapies After Two Failed Treatme

In 2010, I started a thread called "When CCSVI Fails, try AO and/or the Dentist", http://www.thisisms.com/forum/chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic21951.html. I had three CCSVI procedures (2010 - 2012). Each corrected major blockages (that apparently then reoccured). My only m...
by Rosegirl
Sun Oct 11, 2015 4:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a prescription med to treat CCSVI
Replies: 5
Views: 1157

Re: a prescription med to treat CCSVI

Anyone know how old "elderly" is?
by Rosegirl
Thu Aug 20, 2015 4:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI improvements
Replies: 4
Views: 1319

Re: CCSVI improvements

My first procedure was at Georgetown University Hospital where their MS department did a small study of CCSVI procedures. I was the last of 30 patients treated. The study was stopped because they did not get the good results they expected. A review of the procedure images by other radiologists prove...
by Rosegirl
Wed Aug 19, 2015 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI improvements
Replies: 4
Views: 1319

Re: CCSVI improvements

At first glance, it would seem that CCSVI is all about flow, getting blood out of the brain at a normal, unrestricted rate. The initial treatment for patients was essentially opening veins that were clogged for various reasons. A much smaller number of treatments were on veins that had pressure or i...
by Rosegirl
Tue Aug 18, 2015 7:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI improvements
Replies: 4
Views: 1319

CCSVI improvements

It’s been several years since my third CCSVI procedure. I could barely walk and that was the reason for treatment. I was wondering, however, if others were like me and got unexpected benefits. Further, what if our doctors could use those to identify more accurately what controls what? For example, r...
by Rosegirl
Mon Apr 27, 2015 4:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI ad
Replies: 14
Views: 1823

Re: CCSVI ad

So again, why do YOU think Dr. Arata is not doing the best he can for his patients? He performs angioplasty in the jugulars and the azygous vein regardless of whether there is a blockage there. There are risks to angioplasty and I believe a doctor should do it only in the presence of a diagnosed bl...
by Rosegirl
Sun Apr 26, 2015 7:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI ad
Replies: 14
Views: 1823

Re: CCSVI ad

Dr. Arata figured out a way to charge $10,000 for venoplasty without having to repair the vein or venous flow.... enrages me, but he's out their promoting and publishing and people seem to be buying what he's selling. I will never understand. . . argh. cheer Cheer, I have also dealt with a number o...
by Rosegirl
Sun Apr 26, 2015 6:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AtlasBalance (jaw misalignment) Treatment - EJC
Replies: 222
Views: 38352

Re: AtlasBalance (jaw misalignment) Treatment - EJC

What wonderful news about Emma! Thanks for keeping us posted. Have you shown Dr. Amir the paper that Dr. Sims did about TMJ as it relates to gait and balance? The link is below.
by Rosegirl
Thu Apr 23, 2015 5:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI ad
Replies: 14
Views: 1823

Re: CCSVI ad

I don't understand such strong and negative views of specific doctors that haven't treated you. Cheerleader, do you have a medical background that qualifies you to evaluate Dr. Arata's methodology and pricing? Why would you imply that one woman's successful treatment would necessarily work for other...
by Rosegirl
Sun Apr 19, 2015 5:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI ad
Replies: 14
Views: 1823

Re: CCSVI ad

I think it's great to question what our "MS" really is. If you put 500 MS patients in a room, you'd still not have much of an overlap of symptoms, let alone causation. Cog fog and gait problems, heat intolerance and bowel issues. And the list could go on and on. The only pattern I see is that many d...