Search found 11 matches

by christophelux
Fri Jun 25, 2010 12:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BNAC study help wanted
Replies: 0
Views: 1726

BNAC study help wanted

Buffalo is the only scientific blinded study already under way and that since April 2009. Other studies will start soon but are not operational already. 1 700 patients will be tested for CCSVI and the outcome could trigger widespread recognition of MS / CCSVI relationship. First 500 patients results...
by christophelux
Sat Jun 19, 2010 6:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: making CCSVI charitable contributions
Replies: 29
Views: 43563

buffalo needs help

Buffalo is the only sicentific blinded study already under way and that since April 2009. Other studies will start soon but are not operational already. 1 700 patients will be tested for CCSVI and the outcome could trigger widespread recognition of MS / CCSVI relationship. First 500 patients results...
by christophelux
Fri Apr 16, 2010 2:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Release of Buffalo result - When?
Replies: 0
Views: 1413

Release of Buffalo result - When?

Full Buffalo results were supposed to be released at the AAN this week. I have not seen the text of the release, does anyone know when it is available to the general public and if sone presentations were made at the conference?
by christophelux
Mon Mar 15, 2010 2:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo is in business !!
Replies: 9
Views: 3513

CCSVI diagnostic update

Seems they are pressed by Neuro community to refrain from calling it a diagnostic. I am afraid next step will be the cancellation of the testing. Has anyone more news? Apart form the diagnostic, the Combined Transcranial and Extracranial Venous Doppler (CTEVD) study is supposed to be presented in Ap...
by christophelux
Fri Mar 12, 2010 2:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 263300

stenting

livabird, it is true that for the time being France ms association (www.arsep.org) led by Neruo is strongly against CSSVI and deleted 130 pages postings on this topic on their forum. But Dr fransceschi is not a neuro, he is a vascular specialist and a strong believer in ccsvi. He is member of the sc...
by christophelux
Thu Mar 11, 2010 1:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 263300

Be careful about stenting

It seems that some people here are confident that CCSVI stenting is safe and venous stenting common. I talked to a famous vascular surgeon some days ago and he confirmed that stenting veins is very uncommon and raised a lot of issues. Veins are much thinner than arteries. if stent discolates it goes...
by christophelux
Thu Mar 11, 2010 1:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Zamboni words of caution on stents.
Replies: 31
Views: 14151

Dr Franceschi position

Dr Franceschi is well known venous expert and the leader in CCSVI research in France. I saw him a few weeks ago and he said he is strongly against stenting as it is not safe. For him, it could not be a first time option, only if restnenosis it could be carefully studied. Zamboni statement (first mes...
by christophelux
Tue Mar 09, 2010 3:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI concerns
Replies: 57
Views: 12569

be careful

CCSVI debate is quite difficult but I think some basics should be reminded : 1 - actual first line treatments are working and are safe. It has been proved by rigorous blind studies that they have a efficiency rate of 30 % and I think no one can really seriously challenge it. And this is true for the...
by christophelux
Sun Mar 07, 2010 4:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 149006

HELLO TO ANYONE WHO CAN ASSIST- I think I can speak for most MS sufferers around the globe that the CCSVI scan gives us something to look forward to ... just having the test. But it doesn't seem so straight forward to get the test in the first place. Today alone we tried to call the Paris hospital ...
by christophelux
Mon Jan 25, 2010 2:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 368045

it seems that poland Katowice (Dr Simka) is the only place active right now in CCSVI operations. Others will do it soon but only on clinical trials.

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