Search found 308 matches

by Daisy3
Mon Apr 27, 2015 2:31 pm
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: The biotin trial results are out
Replies: 121
Views: 27718

Re: The biotin trial results are out

BTW using pure biotin powder (no filler) and a manual capsule filler I started taking 300mg per day yesterday. The powder came with a bonus electronic scale (100 gram capacity with a tare function to subtract the capsule weight). May I ask where you bought it? I'd like to find out too-don't think i...
by Daisy3
Sat Mar 29, 2014 11:42 am
Forum: General Discussion
Topic: Intrathecal steroid treatment for progressive MS
Replies: 0
Views: 998

Intrathecal steroid treatment for progressive MS

Müller et al. Reduction in the free radical status and clinical benefit of repeated intrathecal triamcinolone acetonide application in patients with progressive multiple sclerosis. Clin Neuropharmacol. 2014;37(1):22-5 BACKGROUND: Previous open trials performed repeated intrathecal application of the...
by Daisy3
Sat Mar 15, 2014 10:53 am
Forum: General Discussion
Topic: japan--saying they might have an ms cure
Replies: 5
Views: 2215

Re: japan--saying they might have an ms cure

This page has his email if you would like to contact him and let us all know what you find out: http://www.ncnp.go.jp/nin/guide/r_men/yamamura-e.html Searching on Google scholar for this guy leads to a number of hits coming from different angles. Its a big claim, with no supporting evidence. If it ...
by Daisy3
Fri Mar 14, 2014 8:20 am
Forum: General Discussion
Topic: japan--saying they might have an ms cure
Replies: 5
Views: 2215

Re: japan--saying they might have an ms cure

Any more information on this? Seems a bit thin on the ground.
by Daisy3
Fri Mar 14, 2014 1:20 am
Forum: General Discussion
Topic: Set of compounds to treat MS in new way identified
Replies: 2
Views: 1105

Re: Set of compounds to treat MS in new way identified

I thought this was discovered in 2008?
Anyway, any update on the trial?
by Daisy3
Fri Feb 07, 2014 5:37 am
Forum: General Discussion
Topic: MS BREAKTHROUGH RADIO INTERVIEW
Replies: 2
Views: 1148

Re: MS BREAKTHROUGH RADIO INTERVIEW

Thank you for posting Seeva,

This sounds very exciting.
The patient that was treated had SPMS. I wonder if this would apply to PPMS as that is considered a completely separate disease process?

Daisy
by Daisy3
Wed Jun 05, 2013 11:20 pm
Forum: General Discussion
Topic: Multiple Sclerosis: MS Treatment 'Breakthrough'
Replies: 16
Views: 3260

Re: Multiple Sclerosis: MS Treatment 'Breakthrough'

This sounds like the most positive find scientists have ever made for MS yet.

I wonder what others think?
by Daisy3
Fri May 24, 2013 12:51 am
Forum: General Discussion
Topic: What is going on?
Replies: 9
Views: 888

Re: What is going on?

Would you say the same thing for PPMS'ers? I would, Daisy. I know that some people think the various forms of MS are actually different diseases with different causes. However, I think that people accurately diagnosed with MS (no matter the variety – RRMS, SPMS, PPMS,…) have symptoms resulting from...
by Daisy3
Sun May 19, 2013 8:39 am
Forum: General Discussion
Topic: Is it just me?
Replies: 2
Views: 678

Is it just me?

I really feel upset when I look online to see if there is any updates on research on MS that would help us understand the disease and try to treat it. It is even more shameful that our 'experts' have no idea about progressive MS at all.
If you have any glimmers of hope then please share..
by Daisy3
Sun May 19, 2013 8:35 am
Forum: General Discussion
Topic: What is going on?
Replies: 9
Views: 888

Re: What is going on?

Would you say the same thing for PPMS'ers?
by Daisy3
Mon May 06, 2013 5:08 pm
Forum: Ampyra
Topic: No added benefit proven for Fampiridine in MS
Replies: 5
Views: 5373

Re: No added benefit proven for Fampiridine in MS

So, the OH tried this drug in the last few weeks and has actually deteriorated. I have not seen such a rapid and more scary deterioration in him before. He is off the drug now but I fear the bad legs are here to stay.
by Daisy3
Thu Apr 25, 2013 7:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: THE ROOT CAUSE
Replies: 10
Views: 1315

Re: THE ROOT CAUSE

Sorry to hear that Dania,

Can you do anything about it?
by Daisy3
Fri Mar 15, 2013 3:21 pm
Forum: General Discussion
Topic: help .primary progressive multiplescelrosis
Replies: 20
Views: 3434

Re: help .primary progressive multiplescelrosis

Is anyone being prescribed Intrathecal methotrexate in the UK for PPMS? Our Neurologist is pretty conservative and says no whenever we make a request. Admittedly,the requests are not on drugs tested on PPMS,but what is? We really only anectodal evidence to go on..and I don't think I could take it if...
by Daisy3
Fri Mar 15, 2013 3:11 pm
Forum: General Discussion
Topic: What can i do to improve my vision - Nystagmus
Replies: 11
Views: 3479

Re: What can i do to improve my vision - Nystagmus

Hello DC, My OH has nystagmus so I really sympathise. I also had to respond and share what meagre information I think you might find useful.. Contact lenses help him to control the nystagmus when he needs to concentrate and the other thing he uses is eye gel for sore eyes. These are both anectodal,a...