This Is MS Multiple Sclerosis Knowledge & Support Community

Interesting prices because I got a call on Monday and the cost was not that high. I was asked if I was interested in coming in and have the venogram ($600). I would like a trial with a IRB before I sign up. They have not gotten appproval yet for a trial. I think it is impartitive that results are sh...

The UB study is NOT being done by IR's but by neurosurgeons. Are they the bridge between our MS Drs and IR's?

Just attended the one yesterday for the BNAC here in Buffalo (Hamburg). They did raise over $1000 but I think they needed better advertsing because I stumbled upon it on facebook. I did get to meet with the Dr who did my doppler at the BNAC and had a interesting conversation with him. He returns to ...

My girlfriend out in Chicago goes to Mayo. She goes and sees a female who is a Devic specialist. I had discussed CCSVI with her before she left and she was very interested and I wondered since she had devic if the azygos was involved. Her specialist was hostile to her when she brought it up so she d...

Excellent SammyJo. been following you for years. Kim

Just returned from Toronto for my sons hockey tournament and I had to drive by the Hamilton exit driving back to the states. Is anybody going to post Driving me crazy!

I realize that everybody likes to be negative but I have a different few of the leaving of DR Munsch and it comes from this: One of the more intriguing experimental drugs for multiple sclerosis has just entered its first clinical trial. Cambridge, MA-based Biogen Idec (NASDAQ: BIIB) has now started ...

Thanks for posting for me cheerleader. I'm glad the group is as excited as I was when I read this in the local paper. I also have a lead on a Dr who "might" be involved in the "fix" at this facility. Hopefully my contact will come thru. Every person that I have meet in Buffalo in...

got my vote photo I'm a photography buff and looked at some of your stuff awhile back

As to what Dr Munsch ment by" wealthy" I couldn't inturrpert his meaning. I took it as negative originally but then I mulled it over and though I was just being sensitive. My friend from Chicago went to Mayo and took the info to her Dr who is a Devic's specialist and she did not get a good...

I was at a msactive source talk in Dec in Buffalo with Dr.Munsch being the speaker. I went to see if he would bring up ccsvi. At the end the have a question @A session. I wrote on my 3x5 card " what is your opinion of the CCSVI theory?". To the person that I came with I said doubt the drug...

I live in s of Buffalo and yesterday our local news chanel gave the opporunity for 45 minutes question and answer session via the web with a previous head of our largest county hospital. I typed in what do you think of CCSVI theory. Since it was on live video I watched him read my question and then ...

I feel the same way as you . Should I "go for it" but know the line is already long. Once the UB study gives a report next week there is going to be a lot of American who will know about it.(I'm assuming it is postitive.) My GP was not thrilled with the stenting > My husband who works for ...

I don't fault the MS society for being cautious. What I would have like to have seen was the Canadian societys response which was we have some cash send us your research parameters. I just got off the phone with my GP. As Im tell him about the research he is on his computer and brining up article af...

I myself just recieved the call today for the doppler at UB. If you find any answers to your questions I would be very interested. I have asked around about stenting and every person said they wouldn't use a Dr in Buffalo. There has to be some UB participants that got stents? Kim