Search found 208 matches

by ThisIsMA
Fri Jan 11, 2019 9:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Beijing Institute--neurosurgeons treating jugular veins
Replies: 2
Views: 439

Re: Beijing Institute--neurosurgeons treating jugular veins

Hi Joan, Thanks so much for posting this. I think everything you have done so far to contribute to the sharing of information about CCSVI has been extremely helpful. Its not your fault that the western world of medical research has the limitations it does. That's incredibly good news that China is m...
by ThisIsMA
Thu Jan 10, 2019 12:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: eye research supporting CCSVI
Replies: 1
Views: 773

Re: eye research supporting CCSVI

Hi Cece,

Great find! I think you should share that eye study with Dr Sclafani and Dr Zamboni, in case they aren't already aware of it.

M.A.
by ThisIsMA
Wed Jan 09, 2019 11:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Coagulation dysfunction in multiple sclerosis
Replies: 2
Views: 562

Re: Coagulation dysfunction in multiple sclerosis

Hi Jimmilegs, Thanks for posting this! I also read today that there is some evidence that aspirin (a blood thinner) may help with MS. https://www.alzforum.org/news/research-news/could-aspirin-day-keep-multiple-sclerosis-bay I do really like the idea of optimizing naturally occurring vitamins though,...
by ThisIsMA
Mon Sep 17, 2018 3:43 pm
Forum: Medical Marijuana
Topic: Cannabidiol attenuates EAE
Replies: 3
Views: 846

Re: Cannabidiol attenuates EAE

Thanks for posting this!

I know its just mice, but it sure sounds hopeful.

CBD is legal where I'm located, so might be worth a try. I will keep searching ThisIsMS for more information on CBD oil for MS.
by ThisIsMA
Mon Sep 17, 2018 3:17 pm
Forum: General Discussion
Topic: Study on immune response in MS targets........
Replies: 3
Views: 1036

Re: Study on immune response in MS targets........

I found your old post from 2015 by searching for TLR9, which stands for Toll Like Receptor 9. The study you quoted and linked to seems related to this recent article in Scientific American titled: Brain’s Dumped DNA May Lead to Stress, Depression New research suggests genetic material from the mitoc...
by ThisIsMA
Sat Jan 13, 2018 1:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Altitude and blood flow
Replies: 78
Views: 21071

Re: Altitude and blood flow

Hi Theskyking, I don't know the answer to your question and I'm not a medical professional, but if higher elevation makes blood thicker (as someone said earlier in this thread) and if CCSVI is real, and if a person has CCSVI, then it seems like living at lower elevation might be helpful since thinne...
by ThisIsMA
Sun Dec 31, 2017 4:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 328
Views: 56319

Re: Improvement reports

Hi Cece, Also there is this quote from the article you provided a link to above: Dr. Maria Grazia Piscalgia, a neurologist in Ravenna, Italy, referred 28 of the 115 patients to the Brave Dreams study. She told CTV News that eight of those patients received placebo angioplasty, while 20 were given th...
by ThisIsMA
Sun Dec 31, 2017 9:25 am
Forum: Medical Devices
Topic: Brainport: The electric tongue stimulator for balance
Replies: 6
Views: 8611

Re: Brainport: The electric tongue stimulator for balance

Hi Daisy3,

Did you ever make it to Canada to try the electric tongue stimulator, and did it help?

M.A.
by ThisIsMA
Sun Dec 31, 2017 9:18 am
Forum: General Discussion
Topic: Have you tried QUELL for nerve pain?
Replies: 5
Views: 1825

Re: Have you tried QUELL for nerve pain?

Actually in my case I was thinking of trying "Quell" for something else besides pain. I read an amazing chapter in a book by Norman Doidge called "The Brain's Way of Healing Itself". Here's a link to that book. Its probably also available through libraries: https://www.amazon.com/Brains-Way-Healing-...
by ThisIsMA
Sat Dec 23, 2017 1:09 pm
Forum: General Discussion
Topic: Have you tried QUELL for nerve pain?
Replies: 5
Views: 1825

Re: Have you tried QUELL for nerve pain?

Hi Elliot8, Did Quell help you? Please post an update, thanks! I've read that people with MS have low endorphins. Quell it's supposed to increase endorphins. Apparently endorphins are anti-inflammatory. So I am curious about whether Quell might help in general with MS: perhaps slow progression or he...
by ThisIsMA
Fri Aug 25, 2017 1:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Doppler ultrasound tests can be normalised
Replies: 1
Views: 1207

Re: Doppler ultrasound tests can be normalised

This is an interesting study, but I didn't see any mention of how many people with MS were diagnosed with CCSVI versus how many healthy controls were diagnosed with CCSVI. Or that same information expressed in percentages. Did I miss that or was it not mentioned? If it wasn't mentioned, it would be ...
by ThisIsMA
Tue May 23, 2017 1:14 pm
Forum: General Discussion
Topic: What's going to happen to me?
Replies: 10
Views: 1005

Re: What's going to happen to me?

And what I meant by "plan" is to see when it's appropriate to apply for disability and how I can be properly cared for. I don't think the government actually pays for home care in my province so I kept wondering what to do if worse comes to worse. Believe me, I'm aware that it's unpredictable and I...
by ThisIsMA
Tue May 23, 2017 11:58 am
Forum: General Discussion
Topic: New MS diagnosis
Replies: 7
Views: 804

Re: New MS diagnosis

There are lots of ways to learn about MS in addition to from your doctor. When I was newly diagnosed I received pressure from my neurologist to go on a disease modifying drug. The list of side effects of those drugs was very sobering. After researching, I decided not to take the drugs and I have no ...
by ThisIsMA
Mon May 22, 2017 9:53 pm
Forum: General Discussion
Topic: What's going to happen to me?
Replies: 10
Views: 1005

Re: What's going to happen to me?

Hi Purpleberry, That's the million dollar question for ALL of us, whether we have MS or not! Its really not possible to predict the future. There is a saying with MS that "Everyone's MS is different." This is very true! Most people don't have all or even most of the possible symptoms of MS. And ther...
by ThisIsMA
Mon May 22, 2017 8:40 pm
Forum: MS Etiology and Pathogenesis
Topic: specific auto-antibodies in blood
Replies: 2
Views: 843

Re: specific auto-antibodies in blood

Great find! At the end where they disclose their affiliations it sounds like they are applying for patents to turn this into a test that could be used to diagnose MS and to determine the transition from RRMS to SPMS. I hope they also look for PPMS biomarkers. Its interesting that they chose depleted...