Search found 213 matches

by ThisIsMA
Fri Jun 19, 2020 12:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Article on CCSVI in Veins and Lymphatics 2020; Volume 9:9053
Replies: 0
Views: 203

Article on CCSVI in Veins and Lymphatics 2020; Volume 9:9053

Here is a link to a new article in Veins and Lymphatics 2020; Volume 9:9053. If someone else has already posted this, my apologies. I couldn't find any reference to it in my brief search of ThisIsMS CCSVI posts from this year. It discusses a re-analysis of the Brave Dreams trial, finding improved ou...
by ThisIsMA
Tue Jun 16, 2020 10:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vascular malformations masquerading as demyelinating disease. May be the explanation?
Replies: 2
Views: 1848

Re: Vascular malformations masquerading as demyelinating disease. May be the explanation?

Wow, I'd sure like to read that study, but its behind a paywall. It does list the highlights of the study which include: Highlights • AVMs/dAVFs can mimic demyelinating disease like NMO, ADEM, or transverse myelitis. • Symptoms of vascular malformation can be worsened if treated with steroids. • In ...
by ThisIsMA
Tue Jun 16, 2020 9:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Endothelin-1 activates microglia
Replies: 2
Views: 169

Re: Endothelin-1 activates microglia

Hi Frodo, This seems like an excellent study that Joan should know about if she hasn't already seen it. I don't see a link to the study though. Can you post one? Thanks!
by ThisIsMA
Tue Jun 16, 2020 9:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bosentan and chemical CCSVI
Replies: 1
Views: 192

Re: Bosentan and chemical CCSVI

Thanks Frodo, Another good clue to MS. A long time ago I had an MRI that said my brain had reduced oxygen. I was amazed the doctor didn't seem to want to try to fix that. Reduced oxygen makes so much sense. I feel groggy all the time. And even though I used to be very smart, I feel like I'm trying t...
by ThisIsMA
Tue Jun 16, 2020 8:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: vascular problems in the MS eyes
Replies: 4
Views: 139

Re: vascular problems in the MS eyes

Interesting study! 5 out of 7 subjects with MS had this, that's a high percentage (71.4 percent). Even though a very small sample size. Hopefully they'll follow up with a larger study. Thanks for posting this study.
by ThisIsMA
Fri Jan 11, 2019 9:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Beijing Institute--neurosurgeons treating jugular veins
Replies: 2
Views: 1269

Re: Beijing Institute--neurosurgeons treating jugular veins

Hi Joan, Thanks so much for posting this. I think everything you have done so far to contribute to the sharing of information about CCSVI has been extremely helpful. Its not your fault that the western world of medical research has the limitations it does. That's incredibly good news that China is m...
by ThisIsMA
Thu Jan 10, 2019 12:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: eye research supporting CCSVI
Replies: 1
Views: 2503

Re: eye research supporting CCSVI

Hi Cece,

Great find! I think you should share that eye study with Dr Sclafani and Dr Zamboni, in case they aren't already aware of it.

M.A.
by ThisIsMA
Wed Jan 09, 2019 11:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Coagulation dysfunction in multiple sclerosis
Replies: 2
Views: 1594

Re: Coagulation dysfunction in multiple sclerosis

Hi Jimmilegs, Thanks for posting this! I also read today that there is some evidence that aspirin (a blood thinner) may help with MS. https://www.alzforum.org/news/research-news/could-aspirin-day-keep-multiple-sclerosis-bay I do really like the idea of optimizing naturally occurring vitamins though,...
by ThisIsMA
Mon Sep 17, 2018 3:43 pm
Forum: Medical Marijuana
Topic: Cannabidiol attenuates EAE
Replies: 3
Views: 1519

Re: Cannabidiol attenuates EAE

Thanks for posting this!

I know its just mice, but it sure sounds hopeful.

CBD is legal where I'm located, so might be worth a try. I will keep searching ThisIsMS for more information on CBD oil for MS.
by ThisIsMA
Mon Sep 17, 2018 3:17 pm
Forum: General Discussion
Topic: Study on immune response in MS targets........
Replies: 3
Views: 1183

Re: Study on immune response in MS targets........

I found your old post from 2015 by searching for TLR9, which stands for Toll Like Receptor 9. The study you quoted and linked to seems related to this recent article in Scientific American titled: Brain’s Dumped DNA May Lead to Stress, Depression New research suggests genetic material from the mitoc...
by ThisIsMA
Sat Jan 13, 2018 1:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Altitude and blood flow
Replies: 78
Views: 22608

Re: Altitude and blood flow

Hi Theskyking, I don't know the answer to your question and I'm not a medical professional, but if higher elevation makes blood thicker (as someone said earlier in this thread) and if CCSVI is real, and if a person has CCSVI, then it seems like living at lower elevation might be helpful since thinne...
by ThisIsMA
Sun Dec 31, 2017 4:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 66674

Re: Improvement reports

Hi Cece, Also there is this quote from the article you provided a link to above: Dr. Maria Grazia Piscalgia, a neurologist in Ravenna, Italy, referred 28 of the 115 patients to the Brave Dreams study. She told CTV News that eight of those patients received placebo angioplasty, while 20 were given th...
by ThisIsMA
Sun Dec 31, 2017 9:25 am
Forum: Medical Devices
Topic: Brainport: The electric tongue stimulator for balance
Replies: 6
Views: 9311

Re: Brainport: The electric tongue stimulator for balance

Hi Daisy3,

Did you ever make it to Canada to try the electric tongue stimulator, and did it help?

M.A.
by ThisIsMA
Sun Dec 31, 2017 9:18 am
Forum: General Discussion
Topic: Have you tried QUELL for nerve pain?
Replies: 5
Views: 2097

Re: Have you tried QUELL for nerve pain?

Actually in my case I was thinking of trying "Quell" for something else besides pain. I read an amazing chapter in a book by Norman Doidge called "The Brain's Way of Healing Itself". Here's a link to that book. Its probably also available through libraries: https://www.amazon.com/Brains-Way-Healing-...
by ThisIsMA
Sat Dec 23, 2017 1:09 pm
Forum: General Discussion
Topic: Have you tried QUELL for nerve pain?
Replies: 5
Views: 2097

Re: Have you tried QUELL for nerve pain?

Hi Elliot8, Did Quell help you? Please post an update, thanks! I've read that people with MS have low endorphins. Quell it's supposed to increase endorphins. Apparently endorphins are anti-inflammatory. So I am curious about whether Quell might help in general with MS: perhaps slow progression or he...

Go to advanced search