Search found 57 matches

by Hooch
Sat Nov 02, 2013 6:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: atlas compression of IJV
Replies: 50
Views: 7590

Re: atlas compression of IJV

I eye, have you tried NUCCA? I have had a lot of success seeing Dr Jim Moore in Stittsville - he is so close to where you live.
by Hooch
Wed Oct 16, 2013 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: secret OTC drug could help remyelination
Replies: 7
Views: 1874

Re: secret OTC drug could help remyelination

I read this this morning. I made a comment on the possibility that the reason for not disclosing the name of the drug had to do with money. I also referenced CCSVI in this as another example of not having a huge benefit financially (implying drug companies).
by Hooch
Fri Oct 04, 2013 9:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sherbrooke twitter
Replies: 13
Views: 1557

Re: Sherbrooke twitter

It was a pity you weren't staying at the Delta I eye - we had a very quiet room. You missed out reporting on Clive Beggs's talk. He is an engineer from England, also with personal reasons for getting into this type of work. He reported on Dr Paulo Zamboni's neck collar study which he had been helpin...
by Hooch
Tue Sep 10, 2013 2:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ALBANY RESEARCHERS CANCEL MS CLINICAL TRIAL
Replies: 18
Views: 2541

Re: ALBANY RESEARCHERS CANCEL MS CLINICAL TRIAL

I would just like to echo Cheer. Dr Siskin is an excellent doctor and researcher as well as a very nice person. I know that if he could have made this work he would have. Now the concern is that the next researchers will probably be using far less well qualified IR's who have not treated several hun...
by Hooch
Thu Aug 22, 2013 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Debunking the latest study ‘debunking’ CCSVI
Replies: 23
Views: 2798

Re: Debunking the latest study ‘debunking’ CCSVI

In all fairness Cece not as much had been published about using IVUS back in 2010 but I asked for it when I was treated by Dr Siskin in Sep. 2010, meaning we certainly knew about it here (from Dr Sclafani I believe). I was told that it was expensive and not necessary (I was disappointed) and I think...
by Hooch
Mon Jul 15, 2013 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: chronic lyme disease and ccsvi
Replies: 3
Views: 1290

Re: chronic lyme disease and ccsvi

I believe that Chlamydia Pneumoniae fits in here too - either acquired before or after birth. There are probably others too.
by Hooch
Thu Jun 20, 2013 4:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1594340

Re: DrSclafani answers some questions

I would just like to express my thanks to you Dr Sclafani. Although I post rarely I have read this whole thread over the last few years and it has helped me greatly. I would like to add that I have a dear friend that was treated by you twice and is extremely happy with her outcomes. I too believe th...
by Hooch
Sun May 12, 2013 9:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Could angioprism or chelation help us post-balloon angio?
Replies: 1
Views: 975

Re: Could angioprism or chelation help us post-balloon angio

I have been chelating high levels of Mercury for the last six months followiing removal of my amalgam fillings over last summer. This appears to be helping me. I am missing the detoxification gene (from both my parents). I had treatment for CCSVI in Sep 2010 with Dr Siskin but he was unable to find ...
by Hooch
Sat Feb 09, 2013 4:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Still feel like your banging your head against a wall?
Replies: 3
Views: 1047

Re: Still feel like your banging your head against a wall?

I am also in Canada and although I haven't posted much recently I have been following TIMS and Joan's Facebook thread. Our health system here is so broken when it comes to treating chronic diseases. I still think that acute and surgical problems are treated, on the whole, well. Unfortuately for us t...
by Hooch
Thu Mar 08, 2012 4:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Third CCSVI treatment tomorrow
Replies: 29
Views: 2384

Re: Third CCSVI treatment tomorrow

We wish you all the best. I know that you are a true pioneer and amongest the very first of us to have this done. I am beginning to feel like an "oldie" - Sep. 2010, nearly 18 months on!
by Hooch
Tue Feb 28, 2012 12:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: neurologists fail to dissuade patients
Replies: 5
Views: 1049

Re: neurologists fail to dissuade patients

Unbelievable - this is a scientific process, I don't think so. As Cece so rightly says we are way to well informed! How can doctors stoop so low.
by Hooch
Wed Feb 15, 2012 8:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: how to get OHIP to fund CCSVI treatment
Replies: 15
Views: 2475

Re: how to get OHIP to fund CCSVI treatment

I am Penny Setterfield - out in the open at last! My reason for writing this letter is not only to support Judy Butcher but to sow a seed in the minds of the general public as to how CCSVI has to be taken out of the neurology context. It is written in a fairly easy to understand format but I am a li...
by Hooch
Mon Feb 13, 2012 6:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: how to get OHIP to fund CCSVI treatment
Replies: 15
Views: 2475

Re: how to get OHIP to fund CCSVI treatment

I live in Ottawa and went through the same process after my angioplasty in Sep. 2010. However mine never got as far as I felt I could not win and could not afford to hire a lawyer to help me. I have written a letter to the editor in support of Judy Butcher - I just hope they publish it. If anyone el...
by Hooch
Sun Feb 05, 2012 4:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 529729

Re: CCSVI and CCVBP

Thank you, I will get an appointment with the one NUCCA chiropractor here in Ottawa and at least see if anything can be done. I do have MS and I do get tinnitus on the left side - same side as my Bell's Palsy was and the most stenosed of my jugulars.
by Hooch
Sun Feb 05, 2012 10:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 529729

Re: CCSVI and CCVBP

I have a question - I have received CCSVI treatment (nearly 18 mths and holding important benefits like sleeping deeper and less fatigue). I was away recently and developed Bell's Palsy. It mostly has gone away - quite quickly I believe (about 10 days). Because of the brainstem and demyelination of ...