This Is MS Multiple Sclerosis Knowledge & Support Community

[/quote]the moral of the story is if you take up smoking again you might die of cancer but your ms might be a little better. I was a smoker for around 8 years before I was DX with RR. I found that as the years went by I would get dizzier and weaker than normal after smoking. In one of the articles I...

Hope its soon !

I was hoping the Vascular group would have started their trial by now.

Any new info from CommunityCare Physicians? It sounded great with poss ins coverage. Anyone get a scheduled date? On another note: Iwrote an email to AMEDS yesterday and got this in return yesterday. Dear Sir At the present time we set up dates for June and July for our patients registered In Januar...

I called Marcin Duszynski and he told me that since we registered on February 2nd the waiting period is maximum 3 months. As far as the training regarding ccsvi testing , the doctors were trained in Italy by the company that manufactures their medical testing equipment. miranda :) Good to know abou...

thank you Liber8 I hope they call or contact soon I just sent in the passport application. I emailed AMEDS to inquire about treatment dates. I got home and they had emailed me Dear Sir At the present time we set up dates for June and July for our patients registered In January and February .Your Fe...

I also thought Dr S was finding 100% CCSVI in his patients that were coming to see him

[/quote] i trust that i am not being seen as a negative backbiter![/quote] After the help you have given to patients and the knowledge you have been willing to share I doubt any one would call you a back biter! This is completely opinions. Some people don't want to "OUT" Drs, some do. Some...

anyone else contacted by this clinic for potential dates ? Anyone given a date for test/treat for that matter?

Oh yeah, I noticed that people seem to have quieted down some on here about how they are doig 3,6,9,12 months after their procedure. Of course I may be looking in the wrong spot too. I don't want to see the uproar fade out. If you get the chance to continue to spread the word of how you are doing pl...

@CATFREAK

This has nothing to do with treatment and the like. I just have to laugh every time I see your AV.

I was DX in '93 and had a few strong symptoms at first. Then years of a mild/moderate relapse now and then. Big issues in 2005 and heat/fatiuge since along with cement leg and pains. I am not sure if a person is shown to have CCSVI what symptoms you would expect to see. I am sure there are healthy c...

If there is anyone who gets a date post here and when you had first contact was then we might have a reference to go by. I think the hardest is not quite knowing when or if we were forgotten somewhere. Don't worry about it. My first contact with them was late February and even though I have gotten ...

I think a lot of us forget of the # of people in the medical community that have friends and family that have had this done. Even Drs have had it. And look at the Tracking Thread. I am not saying that everyone should have this done, but I have had this disease for over 16 years and this makes the mo...

I know, it would be great if Simka and his team had helped AMEDS with training etc. I have not yet heard if AMEDS has had their training and where.