This Is MS Multiple Sclerosis Knowledge & Support Community

Hello everyone, I would like to reboot my immune system but I read here that there may be a 3-year waiting list for John Hopkins. I also read that there is the so-called Dr Brodsky protocol which looks the same to me as what they do at John Hopkins and I was wondering if I have higher chances of doi...

I had angio (no stents) in March in Poland and I had some great improvements (my spastisity disappeared, I had strength to walk unaided in the morning and in the evening, my bad sensations in the hands at night disappeared, my head tensions disappeared and I began to tolerate heat) but the spactisit...

Lisa, thanks for the response and all the helpful advice! I don't think it is FDA approved but from what I was reading I thought one can somehow buy it and there was the contact info of a doctor from the Hope clinic that was posted here some time ago. I don't know how things are now but would apprec...

Hi all, I would like to try SF1019 but when I called earlier today the phone number for the Hope clinic that someone has listed on the forum earlier (it was also the same as the one I found on google): Hope Clinic Phone: 435-438-5551 Can someone please tell me what the accurate number is? Or if they...

Hello dear friends, I know that Dr Castillo is the best doctor to go to regarding CTOS but for those of us who live in the US, could we at least be tested for CTOS locally? I came across this site www.atosa.org where they have a list of doctors experienced in CTOS in every state. What do you think? ...

Hi Marie, Erika and everyone! I just wanted to thank Marie for creating this topic! And thank you Erika as well for sharing your experience! I created a thread recently called stenting & restenosis but have not gotton much response at all. I hope your topic will have more success! I am also very...

I meant yesterday I talked to the doctor, not today! Yesterday I was worried I have restenosis and today I am doing much better.

Dear Dr Sclafani, I had balloon angioplasty in Poland in the middle of March after which I had a great improvement for about two weeks. Afterward most of my improvement went away and I became even worse than before the procedure. Last Thursday I had venography locally (Albany) that found out one mor...

Hi Cece, Thanks for the great advice! I also thought stents are pretty solid and chances of collapsing are very slim. By the way, this morning I was stunned by the lightness and the looseness of my legs that I had right after getting up! I walked 100 meters on my own (with little stops) even before ...

Hello everyone, I had balloon angioplasty in Poland in the middle of March after which I had a great improvement for about two weeks. Afterward most of my improvement went away and I became even worse than before the procedure. Last Thursday I had venography locally (Albany) that found out one more ...

Hello all, on the topic of restenosis: I had the procedure (just ballooning) on March 10 in Poland and I lost most of my improvements about 15 days later. Now I am even worse than I was before the procedure. Also, it took them 3 times with the balloon in order to fix my left jugular, once for the ri...

Hi all, I also had the liberation treatment on the 10th of March! What I will remember forever is that after a goodnight sleep in the hotel room the 2nd day after the procedure I could walk slowly unaided right after waking up. I was amazed to feel to stiffness at all and that's been ever since!:) I...

Hi all,

I am also scheduled for testing and procedure on March 9 and 10.

I am very excited!:)