Search found 15 matches

by kevin4apenny
Wed Jul 22, 2020 3:12 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Gray matter atrophy
Replies: 5
Views: 3481

Re: Gray matter atrophy

As a Retired senior nurse diagnosed 2001 but with presenting symptoms since age 16 (1975), I have been particularly interested an disturbed by the level of research dedicated to PML as a known side-effect of Tysabri nd the fact that the drug was withdrawn at least TWICE but reinstated purely because...
by kevin4apenny
Mon Jul 20, 2020 7:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 307584

Re: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-

Hi Sharon and all It years since I posted but I have worked with Prof. Schelling since co organising the ' 2011 UK CCSVI conference. ' the lack of NHS attention has sadly continued to be not only disappointing but actually has arguably exacerbated my symptoms ! If nothing else, I have been left to d...
by kevin4apenny
Mon Sep 06, 2010 6:15 am
Forum: General Discussion
Topic: sensitivity to alcohol, codeine and other drugs
Replies: 7
Views: 2286

sensitivity to alcohol, codeine and other drugs

HI guys, Has anyone here found themselves to be sensitive to ALCOHOL or CO-CODAMOL? I have ALWAYS had horrendous hangovers until I packed in drinking it altogether. I recently found I have hangovers when I take Cocodamol for my (old guy's) bad back and shoulder cramps and NEURITIS. My OPTIC NEURITIS...
by kevin4apenny
Wed May 12, 2010 4:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Caution.....
Replies: 22
Views: 9220

8O Well I never ! I just got dumped by my GP for insisting on a referral for a doppler even to have it in writing that I 'cant have it'. ( had cointacted my 'Member of the Scottish Parliament' so I need a record .... but she seemed to take offence, and I really did get on with her until that point. ...
by kevin4apenny
Sun May 02, 2010 4:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LIVABIRD's Poland Adventure
Replies: 130
Views: 21593

To Livabird, Capegirl and Costumenational Hi Guys. I am really crap at this site so I only pray I can find this again. So Good Liva has had improvements. I was so 'glad' to read reactoins to the GP probs people have reagarding CCSVI - MINE HAS TAKEN ME OFF HER LIST! : :cry: . Widdayado?? Only baecau...
by kevin4apenny
Thu Apr 08, 2010 3:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 307584

Thanx for the info hockeydad! Cheerleader and 1hotmama, I totally agee re the patronising :x and the involvement of the Pharm co.'s whostand to lose BILLIONS. I have written to my GP insisting on a 'dianosis for VENOUS BLOCKAGE which would be dangerous'so that if they deny me this right I will SUE t...
by kevin4apenny
Thu Apr 08, 2010 3:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ameds in Poland - Warsaw - Are they a reputable hospital?
Replies: 4
Views: 2727

I am also down for Ameds. Look very good and great at responding...but you can't judge from that. I'm in Scotland (the MS Capital 8O ), but dying to get to California sometime soon. :D There is a new clinic Essential Health Clinic Near where I stay but not sore about this one (too much doubt about c...
by kevin4apenny
Wed Apr 07, 2010 4:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - False Hope?
Replies: 8
Views: 2065

Hi folks :D Happy_canuk I quite agree. what a rational person you are. It's a huge logistical issue. I did tell one of our MP's ( I am in Scotland - MS CAPITAL, apparently, about Zamboni and CCSVI but have heard NOTHING since so I will email them again. I did hear though, on (Nurse) Elaine De Lack's...
by kevin4apenny
Sun Mar 28, 2010 1:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We had good news and bad news
Replies: 41
Views: 25910

dear Whyarewehere I am not adept at using thisims yet, please excuse me. I was replying to a post by 'mrsjitters' who mentioned the sad fact of a fatality. I am so sorry if it has brought sad memories. It is a credit to this group of supportive, loving people that Molly is remembered fondly by you a...
by kevin4apenny
Tue Mar 23, 2010 2:23 pm
Forum: Introductions
Topic: Hello, new here (Wanted opinions from actual MS sufferers.)
Replies: 7
Views: 2146

Stents, Risks and Misquotations

:) HI Mrs Jitters Thanks for the reply and thanks also for the link and take care, remember stress can cause panic attacks which will make you feel dizzy and numb/weird sometimes by the way, as can PREGNANCY :D . I knew there would be other factors in the fatality case. Existing family predispositio...
by kevin4apenny
Sat Mar 20, 2010 1:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We had good news and bad news
Replies: 41
Views: 25910

Dear Whyarewehere Firstly please forgive any inadvertant coincidence...I do not want to offend anyone. You seem very well gen'd up on the whole Liberation thing...... so you would be be the one to ask, or if anyone reading thi can comment... I read from another thread that, although there are known ...
by kevin4apenny
Sat Mar 20, 2010 12:58 pm
Forum: Introductions
Topic: Hello, new here (Wanted opinions from actual MS sufferers.)
Replies: 7
Views: 2146

:? Hi Mrs Jitters

I was surpised to read that of fatality.... :!: Could you perhaps expand on this ? It is alarming and very sad. I wonder if there were other factors involved.
Isn't the site a good way to keep in touch?

Good luck
by kevin4apenny
Wed Mar 17, 2010 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: APRIL Poland anyone??
Replies: 33
Views: 6956

GOOD LUCK TO ALL GOING FOR TREATMENT

DAMN it :x I meant to say Good luck i my forst post - butg I choked and blew it :(

Kevin(thecornernow)
by kevin4apenny
Wed Mar 17, 2010 3:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: APRIL Poland anyone??
Replies: 33
Views: 6956

Good Luck Fraser and the rest of you!!

Hi I'm Kevin4apenny new kid on the block. I'm amazed at the knowledge you all have and the support you share. I just deleted my post (I think) and it is very late so this may be a duplicate, sorry :? I want to let you know that 'Tokuda Hospital in Sofia' are publishing prices but their site although...
by kevin4apenny
Sun Mar 14, 2010 4:04 am
Forum: Introductions
Topic: Hello, new here (Wanted opinions from actual MS sufferers.)
Replies: 7
Views: 2146

I'm new too-howdoyou do

:) Hi Mrsjitters I had the same reaction from some of my family ... perhaps a bit of denial? Don't worry, why should they be any more sure than the doctors. Well no you've found Thisisms - rejoice ! A geat Forum eh? Such support and LOTS of knowledge/info. I nursed MS so I knew in 1982 that I'd had ...

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