This Is MS Multiple Sclerosis Knowledge & Support Community

As a Retired senior nurse diagnosed 2001 but with presenting symptoms since age 16 (1975), I have been particularly interested an disturbed by the level of research dedicated to PML as a known side-effect of Tysabri nd the fact that the drug was withdrawn at least TWICE but reinstated purely because...

Hi Sharon and all It years since I posted but I have worked with Prof. Schelling since co organising the ' 2011 UK CCSVI conference. ' the lack of NHS attention has sadly continued to be not only disappointing but actually has arguably exacerbated my symptoms ! If nothing else, I have been left to d...

HI guys, Has anyone here found themselves to be sensitive to ALCOHOL or CO-CODAMOL? I have ALWAYS had horrendous hangovers until I packed in drinking it altogether. I recently found I have hangovers when I take Cocodamol for my (old guy's) bad back and shoulder cramps and NEURITIS. My OPTIC NEURITIS...

8O Well I never ! I just got dumped by my GP for insisting on a referral for a doppler even to have it in writing that I 'cant have it'. ( had cointacted my 'Member of the Scottish Parliament' so I need a record .... but she seemed to take offence, and I really did get on with her until that point. ...

To Livabird, Capegirl and Costumenational Hi Guys. I am really crap at this site so I only pray I can find this again. So Good Liva has had improvements. I was so 'glad' to read reactoins to the GP probs people have reagarding CCSVI - MINE HAS TAKEN ME OFF HER LIST! : :cry: . Widdayado?? Only baecau...

Thanx for the info hockeydad! Cheerleader and 1hotmama, I totally agee re the patronising :x and the involvement of the Pharm co.'s whostand to lose BILLIONS. I have written to my GP insisting on a 'dianosis for VENOUS BLOCKAGE which would be dangerous'so that if they deny me this right I will SUE t...

I am also down for Ameds. Look very good and great at responding...but you can't judge from that. I'm in Scotland (the MS Capital 8O ), but dying to get to California sometime soon. :D There is a new clinic Essential Health Clinic Near where I stay but not sore about this one (too much doubt about c...

Hi folks :D Happy_canuk I quite agree. what a rational person you are. It's a huge logistical issue. I did tell one of our MP's ( I am in Scotland - MS CAPITAL, apparently, about Zamboni and CCSVI but have heard NOTHING since so I will email them again. I did hear though, on (Nurse) Elaine De Lack's...

dear Whyarewehere I am not adept at using thisims yet, please excuse me. I was replying to a post by 'mrsjitters' who mentioned the sad fact of a fatality. I am so sorry if it has brought sad memories. It is a credit to this group of supportive, loving people that Molly is remembered fondly by you a...

:) HI Mrs Jitters Thanks for the reply and thanks also for the link and take care, remember stress can cause panic attacks which will make you feel dizzy and numb/weird sometimes by the way, as can PREGNANCY :D . I knew there would be other factors in the fatality case. Existing family predispositio...

Dear Whyarewehere Firstly please forgive any inadvertant coincidence...I do not want to offend anyone. You seem very well gen'd up on the whole Liberation thing...... so you would be be the one to ask, or if anyone reading thi can comment... I read from another thread that, although there are known ...

Hi Mrs Jitters

I was surpised to read that of fatality.... Could you perhaps expand on this ? It is alarming and very sad. I wonder if there were other factors involved.
Isn't the site a good way to keep in touch?

Good luck

DAMN it I meant to say Good luck i my forst post - butg I choked and blew it

Kevin(thecornernow)

Hi I'm Kevin4apenny new kid on the block. I'm amazed at the knowledge you all have and the support you share. I just deleted my post (I think) and it is very late so this may be a duplicate, sorry :? I want to let you know that 'Tokuda Hospital in Sofia' are publishing prices but their site although...

:) Hi Mrsjitters I had the same reaction from some of my family ... perhaps a bit of denial? Don't worry, why should they be any more sure than the doctors. Well no you've found Thisisms - rejoice ! A geat Forum eh? Such support and LOTS of knowledge/info. I nursed MS so I knew in 1982 that I'd had ...