Search found 31 matches

by SoberSandy
Thu Jul 15, 2010 5:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 35666

Thank you for the update - such wonderful news to start my day with. I hope Patrick and John have a fantastic time at Wonderland. I hope Barb continues to improve and amaze her Doctors. Glad it is all being documented also. Love it!!
by SoberSandy
Sat Jul 10, 2010 6:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 35666

I am so thrilled for Barb, Patrick and their son. Can you imagine being given such a gift. To be facing the end of your life and now everyday improving and improving. Off the feeding tube!!! This is so amazing. I wish them all the best.
by SoberSandy
Thu Jun 24, 2010 7:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2368953

Dr. Sclafani: Thank you for all the work you have done for the MS community. We love your dedication, your principles and your prioities. Actually, we love you. I have been sitting here quietly reading, following along. But now I must break my silence. I am facing a scary possibility which I am tryi...
by SoberSandy
Sat Jun 19, 2010 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Letter writing campaign for Barb Farrell - VICTORY
Replies: 97
Views: 24553

I am soooooo please for them. I wish them all the best.
by SoberSandy
Fri Apr 09, 2010 4:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADIANS ASK YOUR MP TO HELP CANADA FOLLOW KUWAIT RE CCSVI
Replies: 23
Views: 6276

Your name so suits you Brightspot as you are BRILLIANT - Way to go!!!!
by SoberSandy
Sun Apr 04, 2010 8:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI RESEARCH here
Replies: 190
Views: 165227

OBJECTIVE: To develop an objective method for quantifying venous vasculature in brain parenchyma on susceptibility-weighted imaging (SWI). To apply this technique in multiple sclerosis (MS) patients and in healthy controls (HC). BACKGROUND: SWI is a MRI application that can directly image cerebral v...
by SoberSandy
Sun Apr 04, 2010 8:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI RESEARCH here
Replies: 190
Views: 165227

NEUROLOGY 2010;74:1041-1047 © 2010 American Academy of Neurology Vascular comorbidity is associated with more rapid disability progression in multiple sclerosis R.A. Marrie, MD, PhD, R. Rudick, MD, R. Horwitz, MD, G. Cutter, PhD, T. Tyry, PhD, D. Campagnolo, MD and T. Vollmer, MD From the Department...
by SoberSandy
Sun Apr 04, 2010 7:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PUT ANY RESEARCH RESULTS HERE FOR CCSVI
Replies: 3
Views: 2504

Thanks 'my name is not really Johnson' - I had somehow missed that thread - I will post it now.
by SoberSandy
Sun Apr 04, 2010 7:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PUT ANY RESEARCH RESULTS HERE FOR CCSVI
Replies: 3
Views: 2504

OBJECTIVE: To develop an objective method for quantifying venous vasculature in brain parenchyma on susceptibility-weighted imaging (SWI). To apply this technique in multiple sclerosis (MS) patients and in healthy controls (HC). BACKGROUND: SWI is a MRI application that can directly image cerebral v...
by SoberSandy
Sun Apr 04, 2010 7:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PUT ANY RESEARCH RESULTS HERE FOR CCSVI
Replies: 3
Views: 2504

PUT ANY RESEARCH RESULTS HERE FOR CCSVI

NEUROLOGY 2010;74:1041-1047 © 2010 American Academy of Neurology Vascular comorbidity is associated with more rapid disability progression in multiple sclerosis R.A. Marrie, MD, PhD, R. Rudick, MD, R. Horwitz, MD, G. Cutter, PhD, T. Tyry, PhD, D. Campagnolo, MD and T. Vollmer, MD From the Department...
by SoberSandy
Sun Apr 04, 2010 2:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Class Action Law Suit
Replies: 38
Views: 9611

Hi 'my name is not Johnson' - sorry I misunderstood you! - it is good to post the results of this research though as it gives others a chance to view it who have not yet seen it. This research was performed by peers and will be reviewed by peers at the American Annual Neurology Conference in Toronto...
by SoberSandy
Sun Apr 04, 2010 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Class Action Law Suit
Replies: 38
Views: 9611

What do you mean this condition is unproven??? Plese do not be mislead, the relationship between CCSVI and MS has been studied extensively and has been well documented - there is a lot more proof out there than what I have posted here. Read On!!! OBJECTIVE: To develop an objective method for quantif...
by SoberSandy
Fri Apr 02, 2010 11:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 1st Canadian Patient Summit Toronto (March 28 & 29)
Replies: 22
Views: 5797

Here is a website worth looking into - Patients' Association of Canada - heard about them at the Patient Summit - very strong about patient advocacy - www.adppa.org. This is a website regarding advocacy: www.advocacysolutions.ca - should be helpful also.
by SoberSandy
Tue Mar 30, 2010 5:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta in Albany, NY - Thank you, Kacey!
Replies: 315
Views: 89181

Hi Kacey: Thanks for your post - do you mind letting us know how you went about getting your insurance company to pay for your testing and treatment - did you just submit a regular insurance claim? Are you from Canada?

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