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no, i wasnt in that study...
but Im PPMS, so in the 10% of lucky people with PPMS(without drugs, treatments, hope)

anyway i'm in canada so I can wait a while before being on a study...
and the PPMS people are always excluded of trials, because we are not enough...

I dont know why the previous topic was locked, but from my point of view, the results of the study is complete bullshit! I'm one of the lucky 10% with primary progressive, and I had procedure done 4 months ago. 3 veins blocked and my edss score has passed from 5.5 to 4, and it was assessed by my neu...

CCSVI TRACKING MS HISTORY Name: Mathieu Male/Female: (M) Age: 31 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): PPMS 02-18-2010 Lesion locations (most affected side, if known), number: 2, but very tiny MS treatments: ppms, no treatments MS symptoms before stenosis in...

Last friday it was my turn, with Dr Sclafani. I had blocages in Left Jugular, Azygos(18mm big!) and Illiac, The day after, the fatigue was gone, and I already had less spasticity in my legs. since I didnt have any headaches too. Now I got a flu, so every muscle of my body is hurting, but even with t...

Hi DrS

from what you seen, what's the frequency of obstruction in the Illiac veins?
You realy surprised me when you balooned my illiac because I was thinking that will be higher! and is a valve was the problem with this vein too??

and what can cause valve problem? it is genetic?

Ontario is waiting, Quebec is waiting, Canada is waiting... but MSers Cant wait...

I already voted, because I will be in NYC for my procedure at the elections...

Mine will be april 29, with dr Sclafani!!
can't wait!!!

at the chickens and eggs, I have the answer:
the Eggs

Dinosaurs were laying Eggs way before any chickens!!
samething with CCSVI,
Veins were a problem way before MS, but no one seem to notice before zamboni!!

"While this may suggest an association between the MS and CCSVI, association does not imply causality," Zivadinov

it looks non-conclusive and like they need to continue their research...

http://onlinelibrary.wiley.com/doi/10.1002/ana.22436/abstract it's funny how fast a negative study can be published in the Annals of Neurology!! and and the funnyest thing is how fast the can do a research!! I am the only one that think it's just bullshit and that is now enough to balance all the fi...

doing politics on th back of sick people... no comments! they had the opportunity to do something months ago, and now they think we'll be stupid enough!!! let's throw the actual government out and elect anyone else!!! Mark Freedman as a contact! yeah right! he's a world class moron and he's on confl...

c'est signé, et j'ai mis le lien sur fesse-bouc

reste plus qu'a attendre les prochaines elections!!!

there is only one thing to do: Blame Canada =-))

Dr. Zamboni mentioned the Putnam dog study recently. He noted that at 3 months no MS in the dogs, 6 months no MS, but at 9 months ALL THE DOGS developed MS (at 19:20 in the presentation). Commentary: Does chronic venous insufficiency play a role in ms pathogenesis? < shortened url > Putnam publishe...

in the article: A Charlottetown woman who saw some success with an experimental stem-cell treatment for multiple sclerosis would like to see more research done on the controversial liberation therapy. and Nabuurs said even if her MS wasn't in remission she would not get liberation therapy. She feels...