Search found 38 matches

by growing2boys
Sat Feb 12, 2011 5:01 am
Forum: General Discussion
Topic: Exercise make symptoms worse?
Replies: 11
Views: 10614

Thank you for the replies. I don't know if my neuro is horrible or the same as all neuro. Mine just gave me the DMD options & let the door hit me. He doesn't have any advice to offer regarding daily life issues. When I told him I can't walk or exercise he actually patted my knee & said I looked grea...
by growing2boys
Sat Feb 12, 2011 4:52 am
Forum: General Discussion
Topic: Best in supine position and worst while I stand
Replies: 1
Views: 1147

I hope to see a lot of replies on this too. I have to lay completely flat on the floor several times a day to stop severe muscle spasms & relieve pain. Standing is impossible for me in one spot- walking is better. Sitting is misery. I do have severe spine issues , so I don't know if my issues are sp...
by growing2boys
Sat Feb 12, 2011 4:45 am
Forum: General Discussion
Topic: Are you sure you have MS?
Replies: 19
Views: 4323

Thank you all again for the replies & sharing your stories. Dear Lyndacarol, over the last year+ I have cut out dairy, red meat, white sugar & white flour. I try to eat as many gluten free products as possible & raw food. I take Omega3, Vit D & B complex + dietary enzymes. I have a soft spot for bre...
by growing2boys
Thu Feb 03, 2011 6:51 am
Forum: Avonex
Topic: Avonex without side effects
Replies: 3
Views: 3622

HI NHE, I'm sorry any of us have to deal with any of this. I did my second shot last night & wanted to update. I did wake up at 3am with very bad chills after taking my shot a 8pm. I took 2 Ibuprophen, wrapped myself in an extra blanket & put a heating pad on my chest. They stopped in about 1/2 hour...
by growing2boys
Thu Jan 27, 2011 8:43 am
Forum: Avonex
Topic: Avonex without side effects
Replies: 3
Views: 3622

Avonex without side effects

Just wanted to post that I bit the bullet for my kids & took my first Avonex shot last night. I agonized over the decision because of what I have read about the horrible side effects. I have an ulcer so I took a Prilosec OTC (generic) 4 hours before my shot. Then I took 400mg of Ibuprophen (generic)...
by growing2boys
Wed Jan 26, 2011 12:14 pm
Forum: General Discussion
Topic: Are you sure you have MS?
Replies: 19
Views: 4323

All great insights & replies guys- thanks Tara, I had to look up Sjogrens & I am a nurse :oops: I am sorry you are suffering so much. I am only hung up on my diagnosis for 1 reason. The spinal doctors will not operate on my thoracic disk (the one most pressing on my cord) if they can blame my weakne...
by growing2boys
Wed Jan 26, 2011 12:04 pm
Forum: General Discussion
Topic: Exercise make symptoms worse?
Replies: 11
Views: 10614

Exercise make symptoms worse?

Hi again everyone :oops: This will be my last question for awhile so you don't tire of me! How about exercise? I did a test this morning. I opened up my exercise room to the outside (it's a garden room & it was 9 degrees F when I opened the door) I then did a gentle walk on my treadmill in shorts & ...
by growing2boys
Tue Jan 25, 2011 2:16 pm
Forum: Avonex
Topic: Anyone else can't take Nsaids? (Ibuprophen/Aleve)
Replies: 4
Views: 2883

Thank you very much for the replies!
by growing2boys
Tue Jan 25, 2011 9:59 am
Forum: General Discussion
Topic: Are you sure you have MS?
Replies: 19
Views: 4323

Thanks for the replies. I've had a negative LP & evoked potentials. Heat does not cause symptoms to worsen. I have periods where my symptoms are worse & then get better, but I have constant weakness, numbness & pain that is getting progressively worse. My neuro states "I am 100% certain you have MS"...
by growing2boys
Tue Jan 25, 2011 3:43 am
Forum: General Discussion
Topic: Crazy question about SCUBA diving and MS...
Replies: 17
Views: 6402

The idea of scuba is that you obtain a normal oxygen supply while diving. Do you have physical limitations? That should be your only concern (although I am not an expert) I was a diver for 15 years. I've had to stop because the gear is too heavy & I am too weak/unbalanced to ambulate the boat safely...
by growing2boys
Tue Jan 25, 2011 3:28 am
Forum: General Discussion
Topic: Are you sure you have MS?
Replies: 19
Views: 4323

Are you sure you have MS?

Hi everyone, I have a few lesions on my brain "suggestive" of MS. Negative LP. No obvious spinal lesions. I also have 4 herniated disks & 8 cysts growing around the nerve root areas of my spine from cervical to thoracic area. My symptoms- severe leg numbness, weakness, spasticity. The favorite pins ...
by growing2boys
Fri Jan 21, 2011 6:40 pm
Forum: Avonex
Topic: Anyone else can't take Nsaids? (Ibuprophen/Aleve)
Replies: 4
Views: 2883

thank you for your reply
by growing2boys
Thu Jan 20, 2011 6:51 pm
Forum: Daily Life
Topic: Pain advice?
Replies: 2
Views: 2009

Pain advice?

Just curious what you are taking for neuro related aches & pains? How much & how often?
My neuro refuses to offer anything other gabapentin & it doesn't work for me. Even when I have such bad jaw pain that I can't eat he refuses to prescribe anything different.

Looking for advice.
by growing2boys
Thu Jan 20, 2011 1:30 pm
Forum: Avonex
Topic: Anyone else can't take Nsaids? (Ibuprophen/Aleve)
Replies: 4
Views: 2883

Anyone else can't take Nsaids? (Ibuprophen/Aleve)

I hated Copaxone... going to try Avonex. Anyone else on here who can not take Nsaids? I have ulcers. Nothing but Tylenol for me & I am a bit worried I will get a sky high fever. Tylenol doesn't work very well for me with big fevers. One Ibuprophen & I am bleeding. Anyone do ok with just Tylenol? Tha...
by growing2boys
Fri Dec 10, 2010 11:20 am
Forum: General Discussion
Topic: Help with Lyrica/ MS Hug
Replies: 5
Views: 3673

Thank you both for the replies. I have set a gastro appointment & I am going to ask my general doctor about the low dose Amitriptyline. He has been very helpful through all of this. I will also follow the bowel tips mentioned. This dx just gets more fun by the day :wink: Thank you again for the time...