Search found 3175 matches

by drsclafani
Tue Mar 27, 2018 3:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI Atlanta legit???
Replies: 6
Views: 1453

Re: Is CCSVI Atlanta legit???

CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet. My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him. Please reply if ...
by drsclafani
Tue Mar 27, 2018 2:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

be heard

Ahmen Dr Sal. What can we do to help? DL As I said back in 2010 and 2011, doing a randomized trial without safety trials and without determining best technical practice would not get the proper data. Now we see an underpowered study in Brave Dreams where large high pressure balloons and IVUS were n...
by drsclafani
Tue Mar 27, 2018 2:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: An easy question

yes ccsvi could be the cause of the tinnitus, so could it be a symptom of MS tinnitus is often heard when the dye is injected into the catheter. it is related to turbulent flow near the middle ear. No way! My dear neuro told me that i have tinnitus because i listen to loud music :) I guess trance l...
by drsclafani
Fri Jan 05, 2018 10:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Hi Dr. Sclafani, How have the results of the Brave Dreams trial affected your practice of treating CCSVI? Not at all. Zamboni's premise that MS might be caused by venous obstruction is not answered by this study. The paper asserts that treatment of obstructions is not shown to improve the condition...
by drsclafani
Thu Mar 09, 2017 12:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

The findings of this newest study is consistent with other similar studies done in recent years and with the experiences posted by many here on this site. Dear Elliot, there has been no similar study ever done to this one. This is the first randomized double blinded trial with sham arm that had pow...
by drsclafani
Wed Mar 08, 2017 8:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Yes, because flew is proportional to the fourth power of the reasons, I estimated that there was an 80 per cent reduction of blood flow AFTER angioplasty Did the diameter of the vein decrease? Going from 54% stenosed to 39% stenosed would seem to be an improvement albeit a small one but if the diam...
by drsclafani
Wed Mar 08, 2017 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Yes, because flow is proportional to the fourth power of the reasons, I estimated that there was an 80 per cent reduction of blood flow AFTER angioplasty
by drsclafani
Mon Feb 27, 2017 4:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Let's hope for results that can stimulate us to investigate further instead of putting another nail in a coffin with an living person in it
by drsclafani
Mon Feb 27, 2017 12:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Cece, for me two things changed and saw a dramatic improvement in patency and thrombosis rate. Anticoagulation and antiplatelet therapy and use of ivus for sizing balloons.
I don't mean to be insensative work the patience thing. Unfortunately, a risk to evidence, led to really bad data,
by drsclafani
Sun Feb 26, 2017 1:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

I am here but no one is asking very much. Strange, is it not? Hi Dr. Sclafani. Are you still treating patients? Now that we may be reaching the culmination of all of our ruminations, no one is here. It would be great if you could elaborate on the "culmination of all of our ruminations." Thanks. "Ru...
by drsclafani
Fri Feb 24, 2017 9:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

I am glad to see all of you still here. Personally the progress of the disease seems to have stopped. For years I had no relapse, tho I also don't regain any lost function. @Doctor Sclafani: do you recall we once talk about a marker in the blood that peak when a thrombosis start forming? I searched...
by drsclafani
Fri Feb 24, 2017 2:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

I understand the frustrations with the long time it takes to get results we want. Studies have to be funded, protocols written and consensus attained, followed by IRB approvals, FDA approval, both requiring revisions of the study protocol, then patient recruitment, randomization, procedures performe...
by drsclafani
Fri Feb 24, 2017 10:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Is this thread dead? Do you still here Doctor? Cheers all; Algis Greetings Algis. It has been a very long time since I read your words. I am here but no one is asking very much. Strange, is it not? Now that we may be reaching the culmination of all of our ruminations, no one is here. Is there somet...
by drsclafani
Wed Jun 15, 2016 5:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Dr Sclafani, have you seen or know of anyone maybe outside of Zamboni's inner team, that have any knowldge regarding the collar tested in space? it appears they will be using it in some form at the new Italian testing site. https://translate.googleusercontent.com/translate_p?hl=en&ie=UTF8&prev=_t&s...
by drsclafani
Fri Jun 10, 2016 8:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567359

Re: DrSclafani answers some questions

Sal is there discussion about the role of CSF and it's issues amongst the group? It appears that the CCSVI learnings are bouncing against the findings with CSF, such as, the lymph system that appeared out of nowhere! This all comes back to the multitasks and feedback systems that we humans rely on ...