This Is MS Multiple Sclerosis Knowledge & Support Community

I just sent you a message but I can see you already have arranged things. Best of luck, hope everything goes really for you. Luv to hear hear how it went when you get back. Cheers

Hi, thank you so much for that. If you dont mind me asking, how did you find LDN, was it of benefit to you? I have heard great things about it, and it is much less harmful than any of the drugs for MS. If you prefer you can PM me.

I am wanting to approach my Doctor about getting LDN. Not sure how to go about or even if she knows it exists. Who in NZ gets it from their Doctor and what do I need to do to get it? Any advice appreciated

Hi, I had my last infusion in February after deciding to come off it due to increases in PML. I was also not advised of any possible relapses after coming off it, was also never advised of the increased risks while I was on it.. After reading all this I have been a bit paniced. My Neuro gave me the ...

My story is similiar to above. I have just this month stopped Tysabri after being on it approximately 5 years. I only became aware of the increases in PML and deaths from this site and others. I was never advised of the increase in PML or any of the latest news re longtime risks. 42 cases with 9 dea...

I know it seems wrong to say, but I'm happy you got the results you did, its all good for the future..All the best

Hi everyone, things are going better, not sure if it is related but the temperature has dropped considerably as summer comes to an end and with it most of my breathing issues. So is it related to heat or is it related to IBT. I started it a week ago and so far it is very encouraging, better sleep , ...

Hi. I have only been doing IBT for one week, and from the very first night I didnt have to get up at all. Usually I need to get up a couple of times and have had to for a long time ( can't remember exactly how long), so this is really good. I also suffer from vertigo when I lie flat without a huge p...

Thank you everyone for your replies, its good to know there is a reason, because I have been panicing. I will try the hold your nose and see if it helps and yes I am an MS person who has CCSVI.

I have been diagnised with CCSVI and am awaiting procedure. In the last 6-8 weeks my breathing has been concerning me. I am aware of my breathing now as before I was never conscious of it before. I feel I am unable to take deep breaths now, every 3-4 breaths I need to take a deep breath but that doe...

Just want to say how great it is to hear about everyones progress since procedure. It just makes me so hopeful. Thank you so much for sharing.

Hi, I Live in Auckland NZ, can someone provide me with Prof T's contact details so I can contact him to see if he can recommend a Surgeon in Auckland? Booked for Doppler on 18th, want to see VS as soon as. To everone in Aussie who has already been treated, you guys are fantastic making this happen. ...