Search found 103 matches

by msgator
Wed Jun 15, 2011 5:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rhode Island or California
Replies: 6
Views: 1300

I had my procedure done last oct in RI, I believe i was patient number 20 for the practice and have been back for 3 follow up ultra sounds. The staff there is wonderful. I have good flow on both sides still and have seen wonderful improvements. I did physical therapy after the procedure and went wit...
by msgator
Thu May 19, 2011 5:17 am
Forum: General Discussion
Topic: birth control pill
Replies: 6
Views: 1898

never been on the pill and still MS.

Ann
by msgator
Tue May 17, 2011 8:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: delayed results?
Replies: 2
Views: 1166

the only things I noticed withing the first week were better handwriting, typing and other fine motor things (very subtle), but over the last six months I have continued to see improvements including wearing high heels to my brothers wedding (it had been years). When I get stressed though, averythin...
by msgator
Tue Apr 26, 2011 6:13 pm
Forum: General Discussion
Topic: My ankle is weak and keeps "turning" anyone experi
Replies: 8
Views: 6003

my ankles turn frequently. Never thought to link it with MS...I will keep an eye on this thread. (almost 15 years since first flare, still walk without help, though awkwardly, much better since CCSVI treatment)

Ann
by msgator
Fri Apr 22, 2011 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many of us are smokers/ex-smokers?
Replies: 33
Views: 3886

never smoked (definitely second hand smoke exposure, though not at home), never drank, no recreational drugs, exercise, healthy living, MS since age 21. At least I don't have to wonder if any of those things contributed.

I am pretty convinced I was born with vein issues.
by msgator
Wed Feb 23, 2011 9:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-liberation CCSVI testing in Bangor, Maine
Replies: 5
Views: 2269

Dr. Haskal is in Maryland. They had 5 docs doing the procedure in RI when I went in for me 3 mos follow up US. They were very open about having follow up US done elsewhere even during my initial consult.

I forget how many procedure they were doing a week at this point.

Ann
by msgator
Sun Feb 13, 2011 1:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 116545

All the best to you Cece. Can't wait to see your posts with your new post procedure perspective. Neck pain, I had an 18 mm balloon in my RIJV myself and was sore for several days, but it gradually got better. I also believe firmly in staying "supine" as much as possible for the first few days to ens...
by msgator
Sat Feb 05, 2011 4:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 28452

yea, thanks for the update. I think of her often

Ann
by msgator
Sun Jan 30, 2011 11:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I now have no symptoms
Replies: 13
Views: 3081

thanks for sharing. Hope to be in the same boat someday soon.

Ann
by msgator
Thu Jan 27, 2011 6:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 116545

can't wait to hear your post preocedure reports and to see your experience impact your already tremendous contributions to this site and pwMS.


Ann
by msgator
Mon Jan 17, 2011 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Physical therapy after ccsvi treatment?
Replies: 10
Views: 2145

I had the proceedure Oct. 15th and started physical therapy the week before Christmas. I have balance problems and an uneven gait, and widened base, but did not use any assissted devices for walking. The four weeks I have been going to PT have been very helpful. My balance is improving, and i am get...
by msgator
Fri Jan 14, 2011 11:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Physical Therapy
Replies: 2
Views: 1306

Physical Therapy

I am three months post procedure as of tomorrow. I am 35 yrs old, female, RRMS diagnosed 1999, mother of two. I had gait, balance, bladder and fine motor issues, spasticity in my right calf, EDSS 3 pre procedure. ( I think that covers what people want to know, when they read about other people, if I...
by msgator
Sat Jan 08, 2011 5:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for ladies ONLY who have had CCSVI
Replies: 18
Views: 3328

You already know my info, but for anyone else is reading this who missed my post on another thread. I have had three periods since my procedure in Oct. and every time I have almost a flare up for 24-36 hours. I have seen some nice improvements since the procedure and these "flares" make it really ob...
by msgator
Fri Jan 07, 2011 5:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: starting to panic
Replies: 72
Views: 10514

I had an US at one month, because after getting better I had 48 rough hours. Turns out I get them every time I have my period. (3 now since my procedure) Still trying to figure out what that could be related to..... I also started Physical Therapy three weeks ago and have found that very helpful at ...
by msgator
Tue Jan 04, 2011 5:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: EJC Liberated in Edinburgh 27/12/2010
Replies: 56
Views: 12013

I noticed improved handwriting after I had my procedure also. Then when I met with my neuro he said the tremor in my right hand was gone. I can also type with all ten fingers again, I was typing with 5 on my left and one on the right. Of course I am right handed. Wishing Emma continued improvements....