Search found 21 matches

by lifeisgood
Sun Oct 06, 2013 4:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Big day this week - finally having CCSVI
Replies: 7
Views: 1463

Re: Big day this week - finally having CCSVI

Thanks. I feel like I know you, too!
by lifeisgood
Sun Oct 06, 2013 12:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Big day this week - finally having CCSVI
Replies: 7
Views: 1463

Big day this week - finally having CCSVI

Hi all- My husband has had RRMS for over 25 years. He is still able to work and if you looked at him, you really couldn't tell that he even has MS. I am the one who visits this sight and surfs the net to trying and keep up with what is new in the MS world. I remember sitting in front of my computer ...
by lifeisgood
Sat Jul 30, 2011 5:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does anyone know how many times you could have CCSVI done?
Replies: 6
Views: 1350

Does anyone know how many times you could have CCSVI done?

Is there a limit? If there is, than my husband might wait a little longer and watch from the sidelines.
by lifeisgood
Tue May 10, 2011 5:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812551

How many times can the procedure be done?

This might have been asked and and answered already. My husband has had RRMS for 20+ years and had been able to be very functional. His symptoms are numbess from the elbow to hands, knees to feet, brain fog, spasticity, horrible burning and of course the fatigue. I am afraid that he will "use up" hi...
by lifeisgood
Wed Mar 30, 2011 5:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chicago-March 29th--CCSVI Alliance Symposium
Replies: 10
Views: 3353

It was wonderful!

Last night was great. Thank you to all that organized it and all the doctors that came and talked. It was great to see and meet all of you and to hear first hand about the procedure and all of the info that was shared. It was also wonderful to meet and talk to some of the many people that came who h...
by lifeisgood
Fri Mar 11, 2011 4:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: deleted
Replies: 4
Views: 1982

I honestly was only trying to help.
Sorry.
by lifeisgood
Wed Mar 09, 2011 8:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: deleted
Replies: 4
Views: 1982

Deleted by lifeisgood.
by lifeisgood
Sun Mar 06, 2011 8:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: deleted
Replies: 4
Views: 1982

deleted

Deleted by lifeisgood.
by lifeisgood
Mon Aug 02, 2010 4:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812551

Asked previously, but it was the day of the symposium and I think think it might have been missed. There did seem to be some interest and also others that's experienced the same type of relief. In fact, someone started another thread regarding it if you'd like to relay your own experience: Dr. S: I...
by lifeisgood
Sun Aug 01, 2010 5:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812551

Asked previously, but it was the day of the symposium and I think think it might have been missed. There did seem to be some interest and also others that's experienced the same type of relief. In fact, someone started another thread regarding it if you'd like to relay your own experience: Dr. S: Is...
by lifeisgood
Mon Jul 26, 2010 5:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sudden but short remissions
Replies: 5
Views: 1967

I had posted this on Dr. Sclafani's thread today and I think Rosegirl thought it might be good for a thread of it's own and so it was "born". So I'll also post it here and see what happens - it is pretty interesting. Is it possible to have veins temporarily open on their own for an unknown reason wh...
by lifeisgood
Mon Jul 26, 2010 4:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812551

Dr. S: Is it possible to have veins temporarily open on their own for an unknown reason which then relieves symptoms? I think this might get lost in all the postings that will be happening since the symposium is today., but I'll still try... Here is our story: About two years ago, on a typical Satur...
by lifeisgood
Fri Jul 09, 2010 4:43 am
Forum: Veterans and MS
Topic: MS_ Veterans - Service Connected Disability
Replies: 23
Views: 28791

MS_ Veterans - Service Connected Disability

Maybe I'm missing it here and I just can't find it? There should be a whole forum for this topic so that any veteran looking at the lists of topics can spot this one right away and not have little bits and pieces scattered in different forums. It should be in the "Life" section of topics. MS has bee...
by lifeisgood
Fri Jul 09, 2010 4:34 am
Forum: General Discussion
Topic: MS - Veterans - Service Connected Disability
Replies: 0
Views: 1420

MS - Veterans - Service Connected Disability

Maybe I'm missing it here and I just can't find it? There should be a whole forum for this topic so that any veteran looking at the lists of topics can spot this one right away and not have little bits and pieces scattered in different forums. It should be in the "Life" section of topics. MS has bee...

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