This Is MS Multiple Sclerosis Knowledge & Support Community

A clinic in Romania was flaming the board with advertising in violation of the rules. Probably was that clinic deleted.

Brian

DrCumming, So what is the answer. When you use IVUS, then what ? How would you recommend the procedure be performed ? I want this done the best it can be done. Thank you from my heart for your input. Best, Gary Thanks to Dr. Scalafini, I am an IVUS convert. IVUS offers several advantages. First, it...

Donnchadh wrote: Shame, MS patients already have enough to deal with-now have to figure out how to come up with big bucks for a procedure with no guarantee's.
Donnchadh

Gilenya, the latest and greatest ms drug, is being introduced at $48,000 per year.

Are they giving any guarantees?

Brian

This is the problem . The CCSVI treatment cost is prohibitive .... especially in light of the fact there is a 50 % chance ..... of needing multiple treatments . This is why Medical insurance is slow to react. Somehow , someway ..... the cost of the procedure needs to drop to about $ 5000 ....... an...

IMO Brian, the math will be challenged. Dr McDonald was quoted as saying the cost of one-time treatment would be approx $1500.00. The naysayer will challenge this as it does not take into consideration multiple treatments, follow-up care, training of technicians, new imaging equipment, increased nu...

5. Disease modifying drugs are available to MS sufferers with relapsing-remitting MS at a cost of $20,000.00 or more a year. The drugs all have serious side effects. As of 4 March 2011 Tysabri has been linked to causing permanent brain infection in 102 people and 21 deaths. Tysabri has been approve...

I am pleased you are happy Ethan but two points: - VENOPLASTY is the 2011 word for the procedure, not the L word. - MS is a variable disease so please report trends over 6 months not day to day changes. MarkW Mark- I don't care if a patient who has had their veins rotorootered calls it Liberation o...

Over 100,000 people have MS in the UK (MS Trust data) and the average lifetime cost of MS to UK plc is one million pounds per patient (Oxford Uni data). This is the financial case for investigating if treating CCSVI syndrome with balloon venoplasty slows or stops MS progression. Are MS experts list...

Does anyone know the estimated cost of the Stanford study?

$6,000,000 sticks in my head, but I know that can't be right...

Brian

What if CCSVI proponents formed a human barricade that blocked the walk route? A narrow opening in the "barricade" would allow walkers to pass. The resulting back-up would symbolize venous stenosis. It would force media, participants and event organizers to pay attention. Radical way to ge...

I'm in!

Chicken in my pot.

Brian

Mark-

Your story is amazing. Any way you can get this into the media to share with others?

Brian

I emailed Dr. Williams 4 days ago. No reply yet.

Brian

I have the Novi address too but it doesn't help until they open their doors for business. Also I talked to them several months ago before they were involved with Hubbard. At that time they said they were thinking about doing the examination only and not the procedure. So it's possible that their ba...

They are finding azygous problems in over 95% of patients?

Wow!

I wonder what they are doing different to get those results. Is it the IVUS?

Brian