Search found 163 matches

by sofia
Sun Nov 09, 2014 11:53 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Infusion related side effects/allergic reactions.
Replies: 3
Views: 3844

Re: Infusion related side effects/allergic reactions.

It turned out to be an attack, with two new leasions. I understand that the stress of lemtrada treatment can set off MS relapses, and that it is not that uncommon. Neuro said that it did not mean that the treatment was unsuccessful, as the lemtrada takes time to work, it does not kill off the white ...
by sofia
Mon Oct 27, 2014 12:01 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Infusion related side effects/allergic reactions.
Replies: 3
Views: 3844

Infusion related side effects/allergic reactions.

I finished my first lot of infusions Friday, today is Monday morning. I am feeling pretty shite. I am tiered, itching, stinging, blotchy (comes and goes), feeling old ms symptoms. I know it is early days, and I think this is expected side effects, but I don't know. One of the neurologists said it wo...
by sofia
Sat Oct 04, 2014 5:41 am
Forum: General Discussion
Topic: CCSVI Evolved and the Missing Infectious Link
Replies: 2
Views: 1604

Re: CCSVI Evolved and the Missing Infectious Link

I am happy to hear ccsvi is still being researched. I had the treatment done years ago, and it made med better for years. The biggest test of the procedure was all of us travelling abroad having it done, starting to feel better.
by sofia
Fri Aug 12, 2011 9:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No new lesions on last MRI
Replies: 2
Views: 1308

No new lesions on last MRI

I have not posted on here for a while. When I was poorly I ha som much time to stay online, as most of my day was spent on the sofa in front of the telly, with my net book on my knee. I had a MRI January 2010, I was at the time really week, and getting worse all the time. I had liberation done in Bu...
by sofia
Sun Jan 30, 2011 8:27 am
Forum: Parents with MS
Topic: Trying to decide...
Replies: 7
Views: 5650

I was diagnosed at 26 years old in 2002. I was doing all right, and we decided to have a child in 2005. First one came along start of 2006. We had decided just to have just the one because of my ms. Due to faith or should I say carelessness came along in 2007 :D I think it is important to remebemer ...
by sofia
Sun Jan 30, 2011 7:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 202732

Hello Pinksaphire and everybody else! Nice to see a familiar name from last year :-) Great to hear you are still doing well. I had my liberation a few weeks after you, in mid may, and there is no doubt in my mind that it has helped me tremedously. I am still nor 100%. I still have to pace myself, if...
by sofia
Tue Jan 11, 2011 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for ladies ONLY who have had CCSVI
Replies: 18
Views: 3374

feel worse around my period, ms wise
by sofia
Sat Sep 11, 2010 11:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PING!!!
Replies: 2
Views: 1222

PING!!!

As there is no "ping" when we update the tracking sticky, I thought I'd just let you know. Did my 4 month update on there, saying basically. It is still great stuff, still very pleased with the outcome, still getting stornger and ejoying my new life. The long term effects of liberation is also good ...
by sofia
Mon Jul 19, 2010 11:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI & The Spinal Cord
Replies: 6
Views: 2065

You need to post reply. If you choose new topic, it will ask you for a new heading and it will be a new thread.

BTW I think it is mainly the azygos that drains the spinal cord. That is my understanding of it anyway, but I am no expert on this.
by sofia
Sun Jul 18, 2010 11:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: May-Thurner and MS/check it out
Replies: 62
Views: 12490

I've had years of a discolored spot on my left leg. I have also once not long after I was diagonsed with MS had swelling of my leg. It was a couple of cm bigger then the other one, I was hospitalized cause of it, as I had reduced feeling due to MS, and doc could not be sure it wasn't a deep veine th...
by sofia
Sun Jul 18, 2010 10:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 month update
Replies: 15
Views: 4185

I am glad for all who have shown improvements. Wonderful. But going on with your life should include surveillance to assure that restenosis does not result in recurrence. So can you tell me, how you are being tested for this doppler? MRV? clinical examinations? how often? Who is following your prog...
by sofia
Fri Jul 16, 2010 1:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 month update
Replies: 15
Views: 4185

Than you!
Hope you are keeping well yourself :D
by sofia
Fri Jul 16, 2010 1:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Re:
Replies: 49
Views: 10520

Sorry to hear about your problems. Vertigo issues is absolutley hell. I've had my fair share of them, and know what you are going through. I also suffered a bit of breathingproblems after having my azygos treated. It was uncomfortable but nothing major. Dr. Petrov has got a pretty impressive CV, and...
by sofia
Thu Jul 15, 2010 10:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 month update
Replies: 15
Views: 4185

2 month update

2 month update: I still have vertigo issues, but it is very much reduced. The vertigo issues are easier to deal with when the fatigue and the MS blanket feeling has disappeared. I still have optic nerve issues, but it is not that often and bothersome. My legs hardly ever feel weak anymore. Whatever...
by sofia
Tue Jul 06, 2010 1:50 am
Forum: Parents with MS
Topic: Hello
Replies: 9
Views: 5568

Hello It was nice to see activety here, I sort of forgot about this forum for a while :-) But I have bben very caught up in ccsvi and liberation lately. We got a 12 feet trampoline in the garden. My 2 year old did not like me getting on, and told me to get off, she did not enjoy bouncing with me. I ...