This Is MS Multiple Sclerosis Knowledge & Support Community

Just popping in and waving hi to Dr. Sclafani ((((waving)))) Hope you are doing well and taking time for YOU!

Well, my boyfriend had the procedure done twice by the good Dr. Sclafani and it did not work for him. It was so worth the try though! Wish it had been a better outcome for us :cry: I do believe that my boyfriend has gotten alot worse since the last CCSVI proc. But we would do it all over again just ...

Just posting after being away for so long. The thread said post if CCSVI did not work. It did not work for my boyfriend and he had it done twice. Oh well, did'nt hurt to try!

drsclafani wrote:

soapdiva884 wrote:Just wanted to pop in and say Hi to Dr. Sclafani!!! Hi!!!!

which one is john?

Hehehehe, he is the bunny of course ;)

Just wanted to pop in and say Hi to Dr. Sclafani!!! Hi!!!!

OMG, too funny about the other thing that you do in bed. We have not sailed that ship yet. LMAO! :D But, John just told me he is going to have to start sleeping naked due to the immense wedgies he is getting as he slides down the bed. OMG, that is making me laugh so hard. 8O ***John just told me he ...

CeCe, John woke this morning and said that his right hand (which is almost useless) feels stronger! He was actually using it to steer while driving today for a short period of time. He did not sweat this am. however. We are confused on what to attribute this to, but we're taking it. LOL

Does your BF feel ill at all? (just ruling out virus etc) How is he doing MS wise? remind me....is he still on the thinners? Maybe not using the jugulars solely at night this might help with the bloodflow x He is not ill as in virus wise at all. He has RRMS, although we feel it's PPMS............du...

So, my bf woke up this morning and said "Wanna hear something weird?" he said he is sweating! He NEVER sweats! I have to tell you that he had 6 inch blocks put at the head of the bed yesterday and slept like that for the first time last night. We dont know if it is the blocks inclining the...

The typical CCSVI patient has a blockage in both jugulars and one in the azygous. Even if one of the blockages is untreatable, there would still be two other blockages to be treated. John only had one stenosis on one side per Dr. Sclafani. The aszygous was fine during both procedures. At the second...

This happened to my bf. He clotted off after first procedure and during the second procedure Dr. Sclafani went the groin route and got nowhere and then went the neck route and got nowhere too! It was many hours of pain and frustration on both my bf and Dr. Sclafanis part. I am sorry this is happenin...

I soooo wish it was all rosey for everyone, but unfortunately it's not. I am glad to hear the good, bad and the ugly regarding CCSVI. Keep it coming!

Yaaaaaaaaay.............here's to really favorable results. Rest!

Let liberation ring! I too have the same dreams!

MS HISTORY Name (if want to give other than TIMS login name): John Male/Female : (M/F) Male Age: 45 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): RRMS dxd: 6-6-06 Lesion locations (most affected side, if known), number : Brain and spine-right side weaker than left ...