Search found 42 matches
- Sat Jan 01, 2011 12:34 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani ASKS a question
- Replies: 109
- Views: 27427
Re: Dr Sclafani asks a question
Living life as if there is a Damocles sword over your head. Fear that you have passed this on to your children. Feeling betrayed by your body. Having to concentrate on each step otherwise you trip over your own feet. Even on a good day knowing you are still on that rollercoaster ride of uncertainty...
- Thu Dec 30, 2010 10:54 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani ASKS a question
- Replies: 109
- Views: 27427
Dr S. Forgive my last post, ive kinda lost the faith in the medical profession over the past year. No offense intended. I understand bloodflow issues from a practical perspective. I know a blockage in my lower spine caused tingling in the back of my legs right down to my heels. I noticed that a bloc...
- Thu Dec 30, 2010 9:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: burning building
- Replies: 14
- Views: 3158
- Thu Dec 30, 2010 7:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Coffee ?
- Replies: 5
- Views: 2598
UK says you should
http://www.nhs.uk/news/2008/07July/Page ... rosis.aspx
http://www.nazi.org.uk/prince-philip.htm
Happy new year
http://www.nhs.uk/news/2008/07July/Page ... rosis.aspx
http://www.nazi.org.uk/prince-philip.htm
Happy new year
- Tue Dec 28, 2010 7:18 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani ASKS a question
- Replies: 109
- Views: 27427
- Tue Dec 28, 2010 7:07 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani ASKS a question
- Replies: 109
- Views: 27427
MSers (aka PWMS) to describe the MonSter. DrSclafani Explain that approx 30% don't see any benefit. Explain that re-stentosis happens at least 50% of the time over a period of a year. Explain that this service cost a considerable amount of money for odds the bookies would laugh at. Explain that a h...
- Fri Dec 10, 2010 10:28 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Facebook CCSVi
- Replies: 13
- Views: 3222
Facebook is a gossip column. Dr. Sclafani's post would get lost, as do all others. Easy to use Spam Bots. Weak security. Most CCSVI groups are 10 a penny and run for business reasons. Most groups have Numerous Posting accounts. Most groups have Numerous groups so dilute their value. Most groups talk...
- Fri Dec 10, 2010 9:44 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: English CCSVI supporters want to get undiagnosed
- Replies: 11
- Views: 3044
- Fri Dec 10, 2010 8:10 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: An Open Letter to Mark Freedman
- Replies: 27
- Views: 6169
- Wed Dec 08, 2010 2:27 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: An Open Letter to Mark Freedman
- Replies: 27
- Views: 6169
- Wed Dec 08, 2010 2:02 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: An Open Letter to Mark Freedman
- Replies: 27
- Views: 6169
- Tue Dec 07, 2010 6:13 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr Zambonis Initial Patients - Current Status?
- Replies: 8
- Views: 2428
Dr Zambonis Initial Patients - Current Status?
"while in the 2 years following surgery 73% of the patients had no more attacks" - Bologna, 8 September 2009. I'm hearing stories of treatment, out the door, see you never, only for patients to re-block a few months down the line. Dr Zamboni had the earliest lot of patients. Im assuming th...
- Mon Dec 06, 2010 8:11 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Mehta
- Replies: 13
- Views: 3843
Rhonda, I've been finding fake accounts on both sides, hidden agendas left, right and centre. I was naive enough to come into CCSVI expecting doctors/charity/awareness groups to be interested in helping the overall cause, to help people on a road to recovery. Some do but many others can't see beyond...
- Sun Dec 05, 2010 9:36 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: cheaper options than $25,000
- Replies: 19
- Views: 6411
There was a post the other day about a woman selling her house to pay for an unsucessful treatment. Just to clarify, this was a post about a woman selling her house for a SUCCESSFUL treatment. Sorry Cece I stand corrected. Wasn't meant to mislead. Cant edit it, thread locked. I get worried when I h...
- Sun Dec 05, 2010 6:52 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Mehta
- Replies: 13
- Views: 3843
thought we were all ADULT'S here fighting for the same cause????? finger pointing at the VERY DOCTOR'S that are fighting for our cause???? BIG HUGE DIFFERENCE from the article about timing and the poor womans leg and MS here folk's!!! The case was settled recently. It's not pointing fingers, It was...