Search found 42 matches

by VeeBee
Sat Jan 01, 2011 12:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 27427

Re: Dr Sclafani asks a question

Living life as if there is a Damocles sword over your head. Fear that you have passed this on to your children. Feeling betrayed by your body. Having to concentrate on each step otherwise you trip over your own feet. Even on a good day knowing you are still on that rollercoaster ride of uncertainty...
by VeeBee
Thu Dec 30, 2010 10:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 27427

Dr S. Forgive my last post, ive kinda lost the faith in the medical profession over the past year. No offense intended. I understand bloodflow issues from a practical perspective. I know a blockage in my lower spine caused tingling in the back of my legs right down to my heels. I noticed that a bloc...
by VeeBee
Thu Dec 30, 2010 9:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: burning building
Replies: 14
Views: 3158

Dr. Tariq Sinan will love that.

Clap, clap, kathy. You should be in for a raise. Please dont mention burning buildings, raw subject & most docs dont have a clue.
by VeeBee
Tue Dec 28, 2010 7:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 27427

Cece wrote: Not much of what you just said would be appropriate to the clinical evaluation of MS patients.
Monster?

Who's selling what? Appropriate? Forum talk?
by VeeBee
Tue Dec 28, 2010 7:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 27427

MSers (aka PWMS) to describe the MonSter. DrSclafani Explain that approx 30% don't see any benefit. Explain that re-stentosis happens at least 50% of the time over a period of a year. Explain that this service cost a considerable amount of money for odds the bookies would laugh at. Explain that a h...
by VeeBee
Fri Dec 10, 2010 10:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Facebook CCSVi
Replies: 13
Views: 3222

Facebook is a gossip column. Dr. Sclafani's post would get lost, as do all others. Easy to use Spam Bots. Weak security. Most CCSVI groups are 10 a penny and run for business reasons. Most groups have Numerous Posting accounts. Most groups have Numerous groups so dilute their value. Most groups talk...
by VeeBee
Fri Dec 10, 2010 9:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: English CCSVI supporters want to get undiagnosed
Replies: 11
Views: 3044

Well diagnosis is supposed to help. It can be used to monitor progression and highlight stages in progression, instead used to distance treatment for a specific condition "CCSVI". I highly doub't CCSVI is specific to MS although the label MS might be a good indicator that CCSVI is present ...
by VeeBee
Fri Dec 10, 2010 8:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: An Open Letter to Mark Freedman
Replies: 27
Views: 6169

It's an "Open Letter", more of an invitation to discuss. It's intended for a larger audience because doors are closed within the hierarchy of the scientific field where scientists can talk science till their hearts content. If it was purely science based, Dr Embry has a website to publish ...
by VeeBee
Wed Dec 08, 2010 2:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: An Open Letter to Mark Freedman
Replies: 27
Views: 6169

<shortened url>

this should work
by VeeBee
Wed Dec 08, 2010 2:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: An Open Letter to Mark Freedman
Replies: 27
Views: 6169

"We need a nation where the smartest people -- the professionals, the pharmacists, the doctors, the researchers, and so on -- actually engage in things that help people, not things that hurt people." http://www.naturalnews.com/009173.html Not-CCSVI but I hope Dr. Embry/Dr. Freedman can at...
by VeeBee
Tue Dec 07, 2010 6:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Zambonis Initial Patients - Current Status?
Replies: 8
Views: 2428

Dr Zambonis Initial Patients - Current Status?

"while in the 2 years following surgery 73% of the patients had no more attacks" - Bologna, 8 September 2009. I'm hearing stories of treatment, out the door, see you never, only for patients to re-block a few months down the line. Dr Zamboni had the earliest lot of patients. Im assuming th...
by VeeBee
Mon Dec 06, 2010 8:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta
Replies: 13
Views: 3843

Rhonda, I've been finding fake accounts on both sides, hidden agendas left, right and centre. I was naive enough to come into CCSVI expecting doctors/charity/awareness groups to be interested in helping the overall cause, to help people on a road to recovery. Some do but many others can't see beyond...
by VeeBee
Sun Dec 05, 2010 9:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheaper options than $25,000
Replies: 19
Views: 6411

There was a post the other day about a woman selling her house to pay for an unsucessful treatment. Just to clarify, this was a post about a woman selling her house for a SUCCESSFUL treatment. Sorry Cece I stand corrected. Wasn't meant to mislead. Cant edit it, thread locked. I get worried when I h...
by VeeBee
Sun Dec 05, 2010 6:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta
Replies: 13
Views: 3843

thought we were all ADULT'S here fighting for the same cause????? finger pointing at the VERY DOCTOR'S that are fighting for our cause???? BIG HUGE DIFFERENCE from the article about timing and the poor womans leg and MS here folk's!!! The case was settled recently. It's not pointing fingers, It was...

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