Search found 39 matches

by sumsum
Tue Jul 17, 2012 10:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell
Replies: 3
Views: 1912

Re: Barb Farrell

I am also wondering how she is doing. Has anybody any news?
by sumsum
Mon Jan 02, 2012 1:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NICE IPG420 - CCSVI Procedure allowed in UK - 28Mar12
Replies: 40
Views: 8937

Re: UPDATE=NICE (UK) did not publish CCSVI Guidance on 1/1/2

Please Mark, keep posting on the developments. I think this is all very important for anyone interested in CCSVI and especially for Europeans like me...in Germany we are still very far from anything that comes close to this. However, I am sure that if nice considers CCSVi favourably for the UK in th...
by sumsum
Thu Nov 17, 2011 11:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Dake at CIRSE
Replies: 43
Views: 6304

Re: Dr. Dake at CIRSE

Hi there, one question in regard to the retinal nerve: in the German Wikipaedia version I read that the retinal nerve is not myelinated with Schwann cells but with oligoden-droctyes. Can we hence really say that the retinal nerve is not myelinated? I am asking, because I would like to put this quest...
by sumsum
Thu Jul 14, 2011 9:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kathleen Lynch (klynch56)
Replies: 39
Views: 10168

Wonderful to hear from you Kathleen. Keep strong and let us know if we can help in mobilizing support or if this was rather detrimental... :!: :?:
by sumsum
Wed Jun 08, 2011 9:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kathleen Lynch (klynch56)
Replies: 39
Views: 10168

Wasn't she also the one who made the conversation that a couple of MS drug sales men had on an internet forum (seeing us patients first of all as golden cows) public via the CCSVI facebook page? This stirred quite some noise a couple of months ago. I hope, this - or anything else - has not brought h...
by sumsum
Tue Jun 07, 2011 8:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kathleen Lynch (klynch56)
Replies: 39
Views: 10168

Kathleen Lynch (klynch56)

Does anybody know how Kathleen Lynch is doing? Her videos on youtube are not online anymore...
by sumsum
Thu Feb 03, 2011 10:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No evidence of CCSVI at MS onset
Replies: 26
Views: 6584

Well, I am not sure what these researchers defined as CCSVI and according to which criteria they were investigating. What I know is that I am CIS and according to blood flow measurement, my left jugular only has 1/10th of the capacity of my right one.

Certainly, this is a quite disbalanced result...
by sumsum
Tue Dec 28, 2010 8:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heart rate variability in multiple sclerosis during a stable
Replies: 1
Views: 2254

Heart rate variability in multiple sclerosis during a stable

Here is a link to an interesting study: http://onlinelibrary.wiley.com/doi/10.1111/j.1600-0404.1998.tb00615.x/abstract "Results– Low frequency power (0.01) and low frequency/high frequency power (0.01) were significantly higher in multiple sclerosis patients independently, all together or in su...
by sumsum
Mon Sep 20, 2010 10:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6-month update from Dunkempt
Replies: 12
Views: 3992

Very happy for you Denkempt! Keep on going strong :)
by sumsum
Wed Aug 04, 2010 12:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic hypoperfusion article - wonder if relevant?
Replies: 10
Views: 2783

:D

That sounds good gibbledygook! Keep on healing and all the best to you and your family.
by sumsum
Tue Aug 03, 2010 11:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic hypoperfusion article - wonder if relevant?
Replies: 10
Views: 2783

I don't understand how there can be literature out there on reflux and it's effect on body parts (in this case the eyes) - written by neurologists if I am not mistaken - and still there is such a hostile blockage from the neurological establishment... This is really startling me (although I guess it...
by sumsum
Sun Aug 01, 2010 3:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rivers, Putnam, Polio and MS
Replies: 11
Views: 3521

Just ordered the book!

Thanks for the hint cheerleader! :D
by sumsum
Sat Jul 31, 2010 12:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Youtube pre and post procedure / testimonial videos
Replies: 212
Views: 157090

HelenWilson59 got liberated (youtube).
by sumsum
Fri Jul 30, 2010 10:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Youtube pre and post procedure / testimonial videos
Replies: 212
Views: 157090

jennykash has updated on youtube. Quite impressive, her husband has PPMS and some very nice improvements.

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